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IGA Nephropathy

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Old 11-21-2012, 09:32 AM   #1
Join Date: Aug 2012
Posts: 8
JoshH79 HB User
IGA Nephropathy

I was recently diagnosed with IGA Nephropathy, or Berger's Disease. Just wondering if anyone else out there is going through this too. Also, if you have any good resources, please pass along. It's been hard finding info and support and it seems that most doctor's don't know really all that much about it.

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Old 11-21-2012, 10:36 AM   #2
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Re: IGA Nephropathy

I know there is a foundation for iga. If you search for it, there may be some good information. I have a friend that had it and it took him many decades for the disease to progress to the point where he needed dialysis. Not sure if this is typical or not as I don't know that much about the disease.

If you have questions about kidney issues in general, I can probably help as I have been through many stages. Best of luck.
Dxd T1 1966, 2001 dialysis, 2002 kidney transplant, 2003 insulin pump, 2008 pancreas transplant

Old 11-26-2012, 06:05 PM   #3
Join Date: Nov 2012
Location: Indiana
Posts: 2
chris772 HB User
Re: IGA Nephropathy

I have had IGA for four years now. Its been awhile since I've looked up any websites, but My doctor started me on a low protein diet and steroids and fish oil. I was on the steroids for a year (watch what you eat if you get on these i put on 60 lbs) After that i was on immune system suppressants for about 2 years, and started on a high blood pressure medicine. I don't really know if it helps but i just found this site and its been helpful to hear that other people are going through the same thing. Best of luck! and if you have any questions let me know and I'll try to help.

Old 11-27-2012, 07:21 AM   #4
Join Date: Aug 2012
Posts: 8
JoshH79 HB User
Re: IGA Nephropathy

Thanks Chris for sharing. I am currently on fish oil too but no steroids. I am also on blood pressure meds because my blood pressure skyrocketed in the past six months. Went from around 110/60 to 160/100. My symptoms first began late January and I was diagnosed in September. The symptoms came on so rapidly it was bizarre.

Now, I've been getting headaches and my urine is much more foamy. I've also lost about 30lbs since this all began.

Thanks again for sharing and best of luck to you too. It's helpful connecting with others going through the same thing...I don't feel so alone.

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