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Hemodialysis patient in constant pain

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Old 01-22-2013, 02:35 AM   #1
Join Date: Jan 2013
Location: Lost Creek, WV
Posts: 7
jbrady4 HB User
Unhappy Hemodialysis patient in constant pain

Hello all!

First timer here... Am at a total loss and I feel as if this is my only option and hope. I had a dialysis at 16, a transplant at 17, and my cadaver kidney lasted it's lifespan... I have now been on dialysis for the last 7 years and I am 33. I have been in pain for years but was afraid to ask for help because I never wanted to be viewed as a drug addict. I use to work out between 1 and 4 hours daily with my room mate, and I had received my personal trainer certification just 6 months ago. I have not been able to work out for 7 months because of my constant pain in my knees and my heels nor have I been able to utilize my certification... considering that I cannot work out. I cannot run, do squats or anything that requires me to kneel or bend my knees, and walking up and down stairs is excruciating!

I now had no option but to ask for help. I had went to several doctors, including my kidney doctor, and I feel as if I am being viewed as a drug addict or someone who intends to sell drugs. I feel bad for even asking for them, but I know that I need something! I had seen many doctors and had many x-rays and whatnot, but no one finds anything... so I don't get treated. My dietitian and my kidney specialist tell me it is bone pain associated with my renal failure because of calcium being drawn from the bones because of phosphorus, and they know that I am in pain... Why won't anyone do anything about it?

I now foresee myself getting on disability, not being able to play with my children, taking care of 'man' projects around the house, or being able to begin my career as a personal trainer - which has been my dream.

I am trying to get in to a pain clinic here so that I can hopefully get some kind of shot or perhaps surgery, if it is an option? I don't really care, as long as the pain is gone and I can live some sort of normal life, or to even play with my children!

I apologize for my rambling... It is 5:31 AM and I have been up all night reading! I suppose my questions would be...

1) Anyone have any similar issues and able to find resolution?

2) Anyone know anything about how to get in to a Methadone clinic to get pain managed?

3) What does it take to get in to a pain clinic? No doctor here even wants to discuss it!

4) Why won't doctors prescribe or even discuss prescription pain medications?

I don't want to get a high. I don't want to sell medicine. I just want my pain managed so that I can live my dream, and play with my children. Thank you for your options, answers, and reading this.

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