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    Old 09-13-2013, 08:46 AM   #1
    nastyKnees
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    Question Desperate For Relief

    Hi

    I began having (bilateral) knee pain when I was about 14 or 15 during my sophomore year of high school. I am assuming it was an overuse injury as I was exerting substantially more effort to improve my running as the pain began. I did the usual, heat/ice, taping, brace stuff, after that didn't help, I went to see an Orthopedist, got MRI's which showed nothing significant, more taping, different brace, PT, still no improvement. That was when I became a frustrated high school student who didn't want to deal with all the stress associated with all the doctor's appointments, etc. with no results. So, I stopped pushing the issue on my parents.

    Now I am 19 years old, am in significant pain on a daily basis, and am at a dead end as to what I should do. I began seeking treatment again around February or March of this year. We began with the usual NSAIDs, PT, etc. Not so shockingly, nothing seemed to help. Scheduled another MRI which revield possible Plica inflammation. Decided to have orthroscopic surgery done to remove that and fix whatever else they might find. Doctor gave me 5/500 mg Vicodin P.R.N. up until the surgery. About two months ago I had a Plica Excision and a Partial Lateral Release. I had, what I assume to be, abnormal, excessive, persisting, post-operative pain. It would take 10-15 mgs Oxycodone along with some Tylenol to take away. After 2 weeks I was taken off all narcotics.

    I am in PT now 2 times a week, which finally seems to be doing something for my left knee. Not close to pain free, but something. And I'll take anything. But, the added stress on my right knee, from using it as sort of a crutch after surgery, has caused the pain in that knee to go out of control. After my surgeon's team tried 25 mg Tramadol at nighttime, then 300 mg Gabapentin, I was referred to a pain management center. I should also note that I cannot and will not take NSAIDs anymore due to the heinous ulcers they bring with them. After the recommendation from my suregeon's team of taking just a little Ibuprofen to help, I ended up with another ulcer, which I knew would happen, but decided to listen to the doctor's, because they know best, right? I have now had persisting nausea, stomach pain, and irregular bowel movements for upwards of a month.

    At the pain management center I met with the doctor and explained my situation. He recommended Synvisc injections, which I am going for in three days, and 300 mg Gabapentin T.I.D. After the Gabapentin wasn't helping I went back and received a script for 50 mg Tramadol T.I.D. P.R.N. I'm still in pain. My pain management doctor and I have a small issue/disagreement that I think may be getting in the way of my treatment. I use marijuana, it helps with my anxiety, I can only eat after smoking because of the nausea, it can sometimes relieve my migraines, and occasionally it will help with the pain. My doctor told me his "treatment options for me are limited if I continue to use marijuana." I told my doctor about my marijuana use before they decided to drug test me. Do all pain clinics routinely drug test every these days? Will any doctor be willing to help me if I'm using marijuana? Some of the reasons he gave me about stopping my marijuana use were that 1. It makes me lazy, 2. I should be focused on my school work and marijuana negatively impacts that, and 3. We don't know how it will interact with other substances. I felt very judged and as if there was a condescending tone coming from him. I really do not want to discontinue my marijuana use. I fear it will cause me to need to increase my benzodiazepines, I won't be able to eat, and honestly, I like that I can come home at the end of the day and have something to allow me to relax and uplift my mood.

    What can I do? I really am at a loss. I was pretty persistent about calling my doctors when I needed pain relief. Nothing seemed to help. I have spoken with all of my doctors about this issue and am completely honest with them about my drug use and anything else. I can't keep living like this.

    Last edited by nastyKnees; 09-13-2013 at 09:53 AM.

     
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    Old 09-13-2013, 11:43 AM   #2
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    Re: Desperate For Relief

    Quote:
    Originally Posted by nastyKnees View Post
    Hi

    I began having (bilateral) knee pain when I was about 14 or 15 during my sophomore year of high school. I am assuming it was an overuse injury as I was exerting substantially more effort to improve my running as the pain began. I did the usual, heat/ice, taping, brace stuff, after that didn't help, I went to see an Orthopedist, got MRI's which showed nothing significant, more taping, different brace, PT, still no improvement. That was when I became a frustrated high school student who didn't want to deal with all the stress associated with all the doctor's appointments, etc. with no results. So, I stopped pushing the issue on my parents.

    Now I am 19 years old, am in significant pain on a daily basis, and am at a dead end as to what I should do. I began seeking treatment again around February or March of this year. We began with the usual NSAIDs, PT, etc. Not so shockingly, nothing seemed to help. Scheduled another MRI which revield possible Plica inflammation. Decided to have orthroscopic surgery done to remove that and fix whatever else they might find. Doctor gave me 5/500 mg Vicodin P.R.N. up until the surgery. About two months ago I had a Plica Excision and a Partial Lateral Release. I had, what I assume to be, abnormal, excessive, persisting, post-operative pain. It would take 10-15 mgs Oxycodone along with some Tylenol to take away. After 2 weeks I was taken off all narcotics.

    I am in PT now 2 times a week, which finally seems to be doing something for my left knee. Not close to pain free, but something. And I'll take anything. But, the added stress on my right knee, from using it as sort of a crutch after surgery, has caused the pain in that knee to go out of control. After my surgeon's team tried 25 mg Tramadol at nighttime, then 300 mg Gabapentin, I was referred to a pain management center. I should also note that I cannot and will not take NSAIDs anymore due to the heinous ulcers they bring with them. After the recommendation from my suregeon's team of taking just a little Ibuprofen to help, I ended up with another ulcer, which I knew would happen, but decided to listen to the doctor's, because they know best, right? I have now had persisting nausea, stomach pain, and irregular bowel movements for upwards of a month.

    At the pain management center I met with the doctor and explained my situation. He recommended Synvisc injections, which I am going for in three days, and 300 mg Gabapentin T.I.D. After the Gabapentin wasn't helping I went back and received a script for 50 mg Tramadol T.I.D. P.R.N. I'm still in pain. My pain management doctor and I have a small issue/disagreement that I think may be getting in the way of my treatment. I use marijuana, it helps with my anxiety, I can only eat after smoking because of the nausea, it can sometimes relieve my migraines, and occasionally it will help with the pain. My doctor told me his "treatment options for me are limited if I continue to use marijuana." I told my doctor about my marijuana use before they decided to drug test me. Do all pain clinics routinely drug test every these days? Will any doctor be willing to help me if I'm using marijuana? Some of the reasons he gave me about stopping my marijuana use were that 1. It makes me lazy, 2. I should be focused on my school work and marijuana negatively impacts that, and 3. We don't know how it will interact with other substances. I felt very judged and as if there was a condescending tone coming from him. I really do not want to discontinue my marijuana use. I fear it will cause me to need to increase my benzodiazepines, I won't be able to eat, and honestly, I like that I can come home at the end of the day and have something to allow me to relax and uplift my mood.

    What can I do? I really am at a loss. I was pretty persistent about calling my doctors when I needed pain relief. Nothing seemed to help. I have spoken with all of my doctors about this issue and am completely honest with them about my drug use and anything else. I can't keep living like this.
    Dear nastyKnees:
    I have not used marijuana and know nothing about how it might affect your knee pain situation there, but your doctor is saying treatment options are limited if you continue using the marijuana.

    I am assuming he knows more about this than you or I do, else why consult him at all? Apparently you have consulted more than one doctor and they appear to agree on this?

    It seems to me that it is worth a try stopping the M use to see if the doctor can come up with some way to relieve your pain. But then you are the only one who can make this decision.
    We all do know that drugs can have unpredictable side effects when mixed and I for one would hesitate to mix them.
    Please let us know how this all comes out.
    We are not doctors here on this forum and can only express our opinions.
    __________________
    Had two hip replacements about a year apart - the last one being August 2009.

     
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    Old 09-13-2013, 12:03 PM   #3
    nastyKnees
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    Re: Desperate For Relief

    In some states, marijuana is used, medically, to treat chronic pain. There have been numerous studies on how it is effective in treating chronic pain (Sources: http://www.*****.com/pain-management/news/20100830/marijuana-relieves-chronic-pain-research-show
    http://www.ncbi.nlm.nih.gov/pubmed/22048225). I have done the research on marijuana, just like I do for any substance I put in my system, and decided that the benefits outweigh the negatives. I am a chemical engineering student with a focus on pharmacology, so I'm not completely clueless here. When my doctor tries to tell me that marijuana is not beneficial to me, when I know, from personal experience as well as research, that it is, I start to get the feeling that he is slightly ignorant. I think it is commonly known that different medications affect different people in different ways, so if I tell my doctor that it is helping, who is he to tell me it's not? As to why I would consult him, because I cannot self-diagnose and treat my own conditions. That's not the way healthcare in this country works. (Sorry if that sounded rude or offensive, I don't mean to be, I'm just frustrated with my situation) I have been using it now for about a year for my pain and anxiety and have had no adverse side effects with any medication I have taken, which, is quite a lot. My other doctors do not agree with what the pain management specialist had to say. They told me to find another doctor. Problem is, it took forever to get this appointment, and it'll take at least another month to get an appointment with a new doctor.

     
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    Old 09-13-2013, 01:23 PM   #4
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    Re: Desperate For Relief

    Quote:
    Originally Posted by nastyKnees View Post
    Hi
    Try asking about the series of shots called Eufluxxa ( might be misspelled ) and you might get some rerleif from that. I had one of my knees go for a about as year with the shots and now have has the three again. Some people it works for a long time.

    I began having (bilateral) knee pain when I was about 14 or 15 during my sophomore year of high school. I am assuming it was an overuse injury as I was exerting substantially more effort to improve my running as the pain began. I did the usual, heat/ice, taping, brace stuff, after that didn't help, I went to see an Orthopedist, got MRI's which showed nothing significant, more taping, different brace, PT, still no improvement. That was when I became a frustrated high school student who didn't want to deal with all the stress associated with all the doctor's appointments, etc. with no results. So, I stopped pushing the issue on my parents.

    Now I am 19 years old, am in significant pain on a daily basis, and am at a dead end as to what I should do. I began seeking treatment again around February or March of this year. We began with the usual NSAIDs, PT, etc. Not so shockingly, nothing seemed to help. Scheduled another MRI which revield possible Plica inflammation. Decided to have orthroscopic surgery done to remove that and fix whatever else they might find. Doctor gave me 5/500 mg Vicodin P.R.N. up until the surgery. About two months ago I had a Plica Excision and a Partial Lateral Release. I had, what I assume to be, abnormal, excessive, persisting, post-operative pain. It would take 10-15 mgs Oxycodone along with some Tylenol to take away. After 2 weeks I was taken off all narcotics.

    I am in PT now 2 times a week, which finally seems to be doing something for my left knee. Not close to pain free, but something. And I'll take anything. But, the added stress on my right knee, from using it as sort of a crutch after surgery, has caused the pain in that knee to go out of control. After my surgeon's team tried 25 mg Tramadol at nighttime, then 300 mg Gabapentin, I was referred to a pain management center. I should also note that I cannot and will not take NSAIDs anymore due to the heinous ulcers they bring with them. After the recommendation from my suregeon's team of taking just a little Ibuprofen to help, I ended up with another ulcer, which I knew would happen, but decided to listen to the doctor's, because they know best, right? I have now had persisting nausea, stomach pain, and irregular bowel movements for upwards of a month.

    At the pain management center I met with the doctor and explained my situation. He recommended Synvisc injections, which I am going for in three days, and 300 mg Gabapentin T.I.D. After the Gabapentin wasn't helping I went back and received a script for 50 mg Tramadol T.I.D. P.R.N. I'm still in pain. My pain management doctor and I have a small issue/disagreement that I think may be getting in the way of my treatment. I use marijuana, it helps with my anxiety, I can only eat after smoking because of the nausea, it can sometimes relieve my migraines, and occasionally it will help with the pain. My doctor told me his "treatment options for me are limited if I continue to use marijuana." I told my doctor about my marijuana use before they decided to drug test me. Do all pain clinics routinely drug test every these days? Will any doctor be willing to help me if I'm using marijuana? Some of the reasons he gave me about stopping my marijuana use were that 1. It makes me lazy, 2. I should be focused on my school work and marijuana negatively impacts that, and 3. We don't know how it will interact with other substances. I felt very judged and as if there was a condescending tone coming from him. I really do not want to discontinue my marijuana use. I fear it will cause me to need to increase my benzodiazepines, I won't be able to eat, and honestly, I like that I can come home at the end of the day and have something to allow me to relax and uplift my mood.

    What can I do? I really am at a loss. I was pretty persistent about calling my doctors when I needed pain relief. Nothing seemed to help. I have spoken with all of my doctors about this issue and am completely honest with them about my drug use and anything else. I can't keep living like this.

     
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