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    Old 01-24-2016, 08:27 AM   #1
    Missylovell's Avatar
    Join Date: Jan 2016
    Posts: 1
    Missylovell HB User
    So scared

    Hi everyone
    I'm not trying to get a on line diagnosis here just am pretty scarred.... Well terrified really!
    My story beings in the September just past , when I dislocated my knee for the first time in 15 years- didn't cause me any concerns as I'm hypermobile with a Brighton score of 9!
    Since then my health has really taken a downward spiral.
    I stated getting pain -EVERYWHERE , weather it was spasms in my hands and arm ,( tested true for mild carpal tunnel in December) full blown cramp in my calves ( mostly left sided) tingling pain (I say this because it was more this then pins and needles like soda water under my skin.) flu like pains in top of both arms and both legs,really heavy feeling, my bones hurt! And I mean my bones not mussel of joints my bones like a broken feeling only not so bad .
    And I really really bad back like someone was push down on my back ( lumber religion) to be honest I thought it was fibromyalgia?
    My gp refereed me for a lumber spine Mir on the 21st of dec and on the 11 Jan I went back to my gp .
    She told me I had bulging disc but there was a abnormal finding in my bone marrow for my age - she was quite quick to say she thought it was a red herring and I shouldn't be worried and arranged blood test for two days later.
    Two days after that the gp reception call and asked me to go back to the gp that morning for more bloods.
    I got there and firstly she asked me loads of question like - have you been ill recently- no , are you sweating at night- sometimes but I do get cold sweats mostly on my nose at any time, had I lost weight- no but also didn't gain over Xmas ( unheard of ) she then check my groin ,neck and some other places. Then I had more bloods taken.
    She said her gut feeling was in refer me to neurology within two weeks but the letter has came for haematology and oncology!
    It doesn't look good does it? I can't see why I would have abnormal bone marrow for any other reason and don't understand how this is a red herring?
    Also I'm now feel drunk! Like I'm on a boat dizzy and like everything is moving but only very slightly and my eye sockets and head hurt, I spat blood whist brushing my teeth yesterday and I'm teeth paranoid so this has never happened before.
    lastly I noticed I'm starching EVERYWHERE but it seems to be leaving small amounts of brushing under my skin?
    Thank you for reading and please don't just read and leave - I'm really looking for some opinions , please don't worry about scaring me ,it's the Unknown that scares me. Many thanks xxx

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    Old 07-14-2016, 05:06 AM   #2
    Nancylyoussef's Avatar
    Join Date: Jul 2016
    Posts: 2
    Nancylyoussef HB User
    Re: So scared

    I do not know what red herring, it must be slang for something that I don't know about. Is it awful when you're faced with something and you are still trying to find out the DX. One thing I could say about any type of bone marrow cancer blood disease, it takes forever to get a definite diagnosis. Nothing moves quickly. Don't be scared. Nancy.

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