It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Leukemia Message Board

  • Polycythemia Vera & RBC numbers

  • Post New Thread   Reply Reply
    Thread Tools Search this Thread
    Old 11-29-2018, 03:06 PM   #1
    Lashigirl
    Junior Member
    (female)
     
    Join Date: Nov 2016
    Location: Ontario, Canada
    Posts: 25
    Lashigirl HB User
    Polycythemia Vera & RBC numbers

    Quick update.

    Had hematology appointment today. Blood work done to test for JAK2 mutation, EPO and Ultrasound ordered for enlarged Spleen found upon examination. Higher than normal resting heart rate (100) observed during appointment today. History of elevated WBC & RBC counts, particularly neutrophils, hemoglobin and hematocrit over last 6 or so labs so primary referred me.

    To add some context, last CBC differential showed:
    WBC 13.3 (range 4-11) HIGH (the highest it's even been is 14.6)
    Neutrophils 9.2 (Range 2-7.5)
    RBC 5.15 (range 4-5.10) HIGH
    Hemoglobin 167 (range 120-160) HIGH
    Hematocrit .480 (range .350.450) HIGH
    Platelet 313 (range 150-400) NORMAL

    Symptoms include headaches, itching, red eyes, pain in lower extremeties (mainly thighs and hip/groin area) and lower back, dizziness, red dots on palms of hands (red "flecks" non blanching) but no where else, digestive issues, hot flushes and extreme fatigue. I also should note I have hypothyroidism and was diagnosed with fibromyalgia since 2016.

    Won't know results for about a month so likely to post another update then, even if it's nothing.

    Doc mentioned possible Polycythemia Vera but also could be just my body adjusting to fact that I had endometrial ablation (due to severe anemia, heaving menstrual bleeding and iron deficiency) so no more menorragha, although I had that in October, 2016 so I would think my body should've adjusted by now. No inflammation, ESR and CRP are both low. Not experiencing any symptoms of viral/bacterial infections. I'm 49 yo female.

    My question is for those with PV, primary or secondary, what were your rbc, hemoglobin and hematocrit levels at diagnosis? Wouldn't they be signficantly higher in PV than mine? Also, if you were tested for JAK2, how long approximately did your results take?

     
    Reply With Quote
    Sponsors Lightbulb
       
    Old 01-02-2019, 05:30 PM   #2
    Lashigirl
    Junior Member
    (female)
     
    Join Date: Nov 2016
    Location: Ontario, Canada
    Posts: 25
    Lashigirl HB User
    Re: Polycythemia Vera & RBC numbers

    Quick Update - got test results back today. Ultrasound came back with no significant findings however I tested positive for the JAK 2 mutation (V167F). Have been placed on daily low dose of aspirin and will be scheduled for a follow-up for possible phlebotomy and bone marrow biopsy and potentially testing for other gene mutations common to myleproliferative neoplasms.

     
    Reply With Quote
    Reply Reply




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 09:08 AM.





    2019 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!