Dear One,
It may be that easy, sad to say. It depends on what your mom and her relatives clean with. Six days ago I got a call from a woman who has had some serious health problems and was mostly calling about her husband whom she loves dearly. He is battling a rare cancer. As a military man, he thought it was exposure to Jet Fuel 4 long years ago as he was an aviation man and when he did the checks on the jets, it would run back in his face.
True this might be one exposure to 2-butoxyethanol. The jet fuels numbers 2, 3, 4, 5, 6 are labeled as pesticides and talk in their warnings about 'defatted' skin (...which is one thing 2-butoxyethanol does, it causes leathery skin, dries out the skin and mucous membranes, nosebleeds occur, etc)
Now, I'm going to get my discussion that I wrote up ... and add it on this post.
As to ruling out anemia? That's because the anemia I am talking about DOES NOT show up in the regular blood work doctors do, and if it did, they wouldn't be saying that they do not know what the fatigue is of Chronic Fatigue Immune Dysfunction Syndrome, Chronic Fatigue Syndrome, even 'gulf war syndrome' How long has your mom felt this fatigue? Ask her if she remembers her eyes burning and hurting and having flu-like symptoms and her urine turning dark and a horrible FATIGUE hitting her that has been with her all this time, no matter what she does?
Check for blood in urine, and monitor the red blood cells compared to prior to fatigue Red Blood Cell Count, and the reticulocyte count which is the rate new red blood cells are made. It will be higher than it is supposed to be at first, and slowly drop, and drop. The mystery for medical science to answer is why the hemoglobin and hematocrit and all blood counts look OK even years and years later: when not enough red blood cells are being made, and those that a person has are immature ... not the normal ratio of mature to immature red blood cells.
The direct Coomb's test and the ferritin counts and what's going on with protein in the body may shed some light, too. I have no medical background; however, I studied the one chemical that causes a lot of cancers, and gets blamed for none of them, so if they would participate in a preliminary health survey ... maybe we can help a lot of other people, too.
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OK, This is on
9-20-04 to
Dee & Randy of Texas -
They both have health ailments that could be related to the chemical I study. She called me this AM because her husband's rare malignant soft tissue sarcoma was from JP-4
He was an Air Force Sgt in 1972-1976
He was a mechanic who tested the airplanes and the jet fuel would pour back on his face ... or mist or something.
Pray for Randy
Says his wife, "
Randy has Malignant Fibrous Histiosarcoma High Grade 4 caused by JP-4 Jet Fuel" It started as a lump on his leg, then kept growing, but the doctor said it was just a fatty mass, not to worry; then it spread to the lymph nodes in the groin, then the lungs. He has had multiple surgeries and chemo therapies. Now his inner ear is bleeding a clear fluid (?)
She shared some of her own health-ailments... bone, thyroid ...
& I passed on some things to check for the 'identifying marker' of 2-butoxyethanol: autoimmune hemolytic anemia (Is there blood in urine and are the red blood cells mostly immature?)
left out web page
I shared with Dee that we would be praying for her, and those at church, too, to which she replied,
Quote:
Thankyou for your prayers and putting in prayers with your church because through all of this there has been so many miracles that only the heavenly father could have done. So thankyou!! Every prayer helps!
The sad part about all this is there is not any services available for people like us that own our home and were in business for ourselves until both of us were down & sick in February and had to close the company. Being middle age it makes it very hard!
Again, Please Pray for Us!
Thanks
Dee
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Dee said,
Quote:
Like I said soooo many great miracles have happened the last two years that sometimes I let the bad things take over! I have been so blessed keeping Randy for as long as I have because this is a very deadly cancer and I praying he will be here alot longer! I do believe that Randy with God's help has proved so many Doctors wrong and their heads are still turning! I'm so proud of him!
I really am glad I found your web site! It feels so good to let some of this go and have someone to listen! It makes me realize that we all need a sounding board sometimes and I just get so busy trying to get things done and never take the time just to release some of this stress inside! All we need is the prayers and the Lord will take care of the rest! Please allow me to send you emails so I can release some of the anger and fear I have inside, that's all I need!
Reading your website was not an accident, this was meant to happen!
Thanks for being there!
Dee
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and more
9-21-04:
Oh, Oh, You Use Simple Green! Question: When did Randy's fatigue start? ... yours?
Dee, do either you or Randy remember a time when your eyes burned and hurt and you had flu like symptoms and your urine turned dark and you were so, so tired ... just exhausted?
That is sometimes a clue that someone has had exposure to this ethylene glycol monobutyl ether (2-butoxyethanol)
If so what were you doing at that exact point in time?
Check through this info
left out 2 web pages - not allowed on this forum
2-butoxyethanol causes hemolytic anemia. Seems to be autoimmune hemolytic anemia; however, I suspect this same chemical of being the cause of CFS, CFIDS, 'gulf war syndrome'
Answer: I've had these problems for quite some time?
We owned a service company where we worked on food prep equipment for restaurants, deli's etc. Randy would come in with grease ALL over his clothes and it was very hard to get it out. I started using Simple Green and would scrub his shirts until I had blisters on them from 2000 to 2004.????? I started having symptoms a few years ago, but Randy's just started within the last few months, I believe his is from ALL the chemo, meds and stress, but maybe not!!
I will research this later today. I have to go to the doctor today and I will have them check what you have told me. Maybe she can help. I'm going to take a copy of your fax with me if that's OK and help her get updated on this!
It's about time we gather together and stop the EPA & the US Government!!!!!! It's really sad that we can't even do laundry without having to worry if it's going to kill us!!
I'll get back with you later today and update you on what the doctors reaction is! Do realize we both have seen a whole lot of doctors within the last two years! I will get with them in the near future and talk to them! These are very renowned doctor's in the Oncology world and the medical field. They can make a difference if I can convince them to help!
MAD IN TEXAS!!!
Dee Reply, "OK - Mad in TX
Simple Green would have been an exposure for you to 2-butoxyethanol...." left out web page - not allowed on this forum
and if a strong exposure, Randy could have gotten some second hand exposure
The eyes and the cuticle area of hands are the best route of exposure for this chemical
Glad you have influence with the doctors
left out web page OK, ALL, this is a clue that our average every day citizen needs protection from this chemical, too. These are the pages I faxed to her yesterday:
Sorry, not allowed to share on this forum
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9-22-04 Jet Fuel 4? ... what she thought was the cause of her husband's cancer caused her to go searching for answers. She didn't say much about her own health ailments, but I recognized them as being part of the 'pattern' of the chemical I study. (I should do screening for this chemical prior to doctors seeing patients) ...
This is what she shared last night
Quote:
Sorry but I got a little upset with our Government last night!
Your right that's probably what has happen. That's probably the reason I lost my thyroid in Jan. 2004! I gave the info to my doctor. She was interested and said she would read & research it. That's a start! More than likely it didn't completely wash out of his clothes because I could smell it even after I dried them. I sure hope she can help. Now I need to get with several of the Oncologist, surgeons & regular doctors we have seen in the last two years. Also Randy used Simple Green in cleaning things too because he was the one that told me to try it on his uniforms!
I'll keep you posted! We might have to go to M.D. Anderson in the near future because the only chemo for this cancer didn't work so he will have to do experimental meds
Thanks for being here!!!
Dee ( Not So Mad Now in Texas)
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Her doctors will have back up medical that will help them, her, and others ... whose harm from this chemical is going unrecognized.
I've been praying for them; with my friends who pray
So, I will be praying for your mother and your family.
Quote:
you just replied, All i wanted to know is if the symptoms listed in my first post were signs of leaukemia. no need to try and be all argumentative.
Thanks anyway. lovethemusic, daughter
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Sorry, I don't know the answer to that, but your mom's doctor or your mom at least should be interested in this info