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    Old 04-23-2002, 06:34 PM   #1
    ~*~Kim~*~
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    Post CLL

    Hello.
    My name is Kim.My husband is now 33. He was diognosed with CLL 3years ago. He had flu-like symptoms at first that lasted very long. Once we found out it was CLL he started going through chemo treatments. He went through 5 sessions. It has been over a year now with no chemo but he is starting to feel bad again. He has a doctors appointment in a week.
    Now, this is weird... My husband's half sister was diagonsed with ALL when she was 3 years old. She is now 22 years old and in forever remission.
    Iam wondering if this is hereditary? My husband and I have a 3year old daughter and are worried it may be passed onto her.
    My husband was working at a local newspaper outlet as a printing press operator. We were told that if you work around printing materials like this that there could be a chance of contracting cancers. We think this is how he contracted CLL.
    Well, I hope I have not bored anybody here with my story.
    My prayers go out to everybody.
    ~*~KIM~*~

     
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    Old 04-24-2002, 05:00 PM   #2
    Jaytor
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    ALL is quite different from CLL, and your husband's quite young to be diagnosed with CLL.

    For children with leukemia, hospitals usually do DNA analysis in order to make an accurate diagnosis because there are several ALL sub-types. Your sister-in-law's DNA results may still be on file.

    Considering the family history [and if you really want to know], ask your family doctor for a referral to a genetic counsellor. Genetic counsellors [often M.D.s] may suggest a DNA analysis for your child but usually just discuss the probablitity/risk.

     
    Old 05-02-2002, 06:39 PM   #3
    Paraclete
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    I found out that "Benzene" is a major contributor to Leukemia. Has your husband worked around Benzene before?

    Jay

    [This message has been edited by moderator2 (edited 05-02-2002).]

     
    Old 06-14-2002, 08:34 AM   #4
    tinam2002
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    MY PARTNER DIED 3 YEAR AGO WITH CML AND HIS DAD DIED OF THE SAME,,BUT MY GP SAYS ITS NOT HEREDITORY BUT U CANT HELP WONDERING AS I HAVE KIDS ASWELL.
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    Old 06-26-2002, 03:28 PM   #5
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    Hi.. I am new here and was reading about leukemia because my dad(built homes) died in 1986 from AML and only had flu like symptoms for a week prior. The doctor told him if he would of gone one more week without help, he wouldn't of made it. Secondly, my girlfriends husband came down with ALL(as I understand,common in children)at the age of 30yrs.old last Oct. and he recently had a bone marrow transplant and doing great, but what I found odd is that he too worked in as a printing press operator since he was 18yrs. and his dad died of Lymphoma(not sure on spelling)when the boy was 7yrs.old..but also worked in the same trade. I too worry about hereditary means because of my six kids but then again..you never know..I just found that chilling on trades.. I will quit blabbing for now..

     
    Old 03-12-2004, 07:34 PM   #6
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    Re: CLL

    [Did your husband have enlarged spleen or liver when he underwent chemo the 1st time?

     
    Old 03-17-2004, 06:02 AM   #7
    dazedandconfused1
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    Re: CLL

    i believe it has to be some hereditary my grandmother died of cancer when she was 47 my moms brother died of it 3 years ago and my mother was diagnoised with lymphomia luekemia 7 months ago and i now am being tested i have one more blood test in april last blood test showed everything borderline

     
    Old 04-09-2004, 06:45 PM   #8
    TatorK
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    Re: CLL

    [QUOTE=~*~Kim~*~]Hello.
    My name is Kim.My husband is now 33. He was diognosed with CLL 3years ago. He had flu-like symptoms at first that lasted very long. Once we found out it was CLL he started going through chemo treatments. He went through 5 sessions. It has been over a year now with no chemo but he is starting to feel bad again. He has a doctors appointment in a week.

    Hi Kim,
    How did your husband's doctor visit go? And a question for you, if I may, how high was his wbc when he started receiving chemo?
    I am 38 and my doctor suspects CLL due to my WBC being high for the past 9 years but hasn't referred me to a specialist. So I was just curious how high his WBC was before they started trmt.

    Thanks
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    Old 04-09-2004, 07:23 PM   #9
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    What chemicals used in printing?

    In reading this thread I'm wondering if printing is one of the occupations that has ethylene glycol monobutyl ether (2-butoxyethanol) or something from this family of chemicals. If so, and I do suspect so, there is a possibility that CLL and leukemias and similar cancers are caused by this chemical.

    Enlarged organs as spleen and liver and gall bladder ... are often common place too. There is compensated hemolytic anemia starting up, if so, but because the bone marrow compensates for the loss of red blood cells, the counts can come in OK or borderline & usually nothing more is checked.

    Could you ask your doctor to check the 'retic' ratio? and find out the size and shape of the red blood cells? For these who have shared, when did the fatigue set in? (That might be an indication of when this chemical exposure became too much) Also dark urine, chills, pale color, etc

     
    Old 04-09-2004, 08:00 PM   #10
    dazedandconfused1
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    Re: CLL

    i am also curious on wbc count my red and wbc count are both going up i have to many red cells and thick blood have had flu symptoms long time and very tired most of time bones hurt

     
    Old 04-10-2004, 03:40 AM   #11
    LIBLONDIE45
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    Re: CLL

    Hi,

    In reading this thread and in doing over 2 months of "obsessive" research on leukemia because my girlfriend was diagnosed with AML 2 months ago, I found that BENZENE is a KNOWN carcinogen that causes leukemia. They say anyone working in gas stations, printing shops, etc. are exposed to chemicals that contain benezene and that is probably the direct cause of their leukemia. I know of a guy who worked for a gas station and had AML but he's been in remission for 5 years now. He has a lawsuit going with Mobil. I also found out that leukemia is NOT hereditary but other cancers are.

    No one knows what causes different forms of leukemia but benzene and its derivatives or properties and radiation CAN cause leukemia. Also, using dark hair dyes for years can cause lymphoma.

    Please always read the labels of EVERYTHING you buy and eat and look for anything that sounds like benzene. If it contains that, runnnnnnnnnn.

    Digressing from the subject for a moment, avoid BHT and BHA as those additives can cause stomach cancer in animals. I imagine with the high rate of stomach cancer, these additives can be the cause. BHT is found in a lot of foods, especially pepperoni so please read all the labels. If you can't pronounce the ingredients, don't buy the product!

     
    Old 04-10-2004, 04:13 AM   #12
    Dear Maggie
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    Flu symptoms - signal too much chemical exposure

    Many, many times the flu symptoms are actually a way your body is warning you of too much of some kind of chemical exposure. Can you think back to what you were doing differently when they started up?

    And if they are continuing (one person shared that he had flu symptoms 24/7s for a whole year!) then maybe the exposure is ongoing too. This is a warning sign to evaluate what is in the products you are using at home and at work. Or even if a new person has come into your life (There is also such a thing as second had solvent exposure)

    Is there any way your doctor would refer you to a specialist in blood? (Hematologist) This is a very complex specialty - knowing what's going on in your blood

     
    Old 04-10-2004, 04:34 AM   #13
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    Benzene vs ethylene glycol monobutyl ether

    Quote:
    Originally Posted by LIBLONDIE45
    I found that BENZENE is a KNOWN carcinogen that causes leukemia. They say anyone working in gas stations, printing shops, etc. are exposed to chemicals that contain benezene and that is probably the direct cause of their leukemia. I know of a guy who worked for a gas station and had AML but he's been in remission for 5 years now. He has a lawsuit going with Mobil. I also found out that leukemia is NOT hereditary but other cancers are.

    No one knows what causes different forms of leukemia but benzene and its derivatives or properties and radiation CAN cause leukemia. Also, using dark hair dyes for years can cause lymphoma.
    Thank you for sharing. Benzene also causes aplastic anemia, meaning that the blood should show an inhibited ability to produce all 3 types of blood cells: red, white and platelets. The friend from the gas station work (which agreeably is very hazardous ... why do you think they have switched to so many self-service auto fill stations in gas stations?) should see if someone else who worked there has the same health problems. One person's testimony is not enough, but 2? ... or 3? ... a thing can be established & many people may be helped.
    The blood problem should be there also... underlying the leukemia.

    This other chemical I share on, 2-butoxyethanol, causes a LOT of health problems, the whole 'array' of 'gulf war syndrome' symptoms, actually. AND it causes a hard to diagnoses hemolytic anemia which underlies all of them. The red blood cells are dying off prematurely and being replaced with immature, low functioning red blood cells. Size and shape of red blood cells and ability to store and utilize iron may also be a part of what should be looked into. (Liver and kidney and central nervous system damage and endocrine problems are the 'package' of harm from this chemical added on to the blood damage ... which is the often overlooked cause of fatigue in the USA today)

    Children of those exposed to 2-butoxyethanol are at higher risk for leukemia and tumor of the brain, per the World Health Organization. You will note that the USA didn't keep track of brain tumors until about 1977 -

    Lastly I had a friend who was exposed to some kind of chemical after getting a permanent. Her voice changed & never came back to normal (One of the signs of too much of some kind of chemical)

     
    Old 04-10-2004, 08:05 PM   #14
    dazedandconfused1
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    Re: CLL

    i am seeing a rhematolist my wbc went from 7.2 to 9.6 my rbc went from 4.45 to 4.75 my platelet went from 400 down to 365 my ck levals are high my hematocrit are high and my mpv is low but no one is saying anything i am alway so tired and bones hurt and wake up with brusis im stumped

     
    Old 04-11-2004, 03:16 AM   #15
    Dear Maggie
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    I would be concerned about the flu-like symptoms

    Can you remember what you might have been doing differently when the flu-like symptoms started? When it is NOT the flu, and lasts for awhile, you may be coming into contact with some type of chemical that is just too much for your body. It is a sign to take an inventory & make some changes. (Stop the exposure to whatever chemical you're dealing with)

    What kind of work do you do?

    For the fatigue ask the doctor if you could have a 'retic ratio' the next time you get any blood work. Also, do you know what size and shape your red blood cells are? One often overlooked cause of fatigue is compensated hemolytic anemia in which your red blood cells die off prematurely, but the bone marrow makes up for it by making more (You then would have too many IMMATURE red blood cells in proportion to the mature red blood cells, that is.) In your case, you are getting too many? ... or are they still in normal range?

    I did read about thick blood when looking up information on pernicious anemia recently. (vitamin B-12 deficiency where body can't utilize it even when taken) One article on that topic said eating liver daily helped one man's mother live to be 83 ... and she had this disease when she was 40.

    Where do your bones hurt? And when did this start? (Sometimes this can happen when blood starts to be made in the peripheral organs like the liver & spleen instead of just in the bone marrow.)

    I had not heard of a Rheumatologist before; but since you have questions on your blood, do you think you could be referred to a hematologist (specialist in blood)?

     
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