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Old 09-05-2009, 05:40 PM   #1
Join Date: Sep 2009
Location: Roscoe, IL , USA
Posts: 2
kedaka3 HB User
new to these boards


My 6 year old daughter was diagnosed with ALL on August 17th of this year. I am looking for a place where I can get suggestions, ask questions and get some support from people who are experiencing the same thing. My daughter had another dose of vincrisitine on Tuesday and has just been exhausted ever since. She is usually a bundle of energy but now just sleeps and lays around. The doctors said that I should expect this, but it is such a drastic change that I am worried. We did get a call from her doctor on Friday with the news that she is in remission. How bad do the treatments get? Any support would be greatly appreciated.

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Old 02-11-2010, 06:29 AM   #2
Join Date: Sep 2009
Location: Roscoe, IL , USA
Posts: 2
kedaka3 HB User
Re: new to these boards

We are currently in delayed intensification. Kailee had a really rough beginning. She developed diabetes as a result of the steroids and then got a life threatening infection at a bone marrow biopsy site. Very scarey!!!! We were in the hospital for a very long time. Since early October she has been doing great. Consolidation and Interim Maintenance went very well. She was a bundle of energy and acted like her old self. I didn't want her to get any mouth sores from the methotrexate so we gave her glutamine to help with that. I don't know if she would have developed the mouth sores or not but wasn't about to take the chance. She has been through enough already. We are in the third week of DI. The steroids are very strong. We only have five more days of steroids for this phase. :0) Overall, Kailee has tolerated everything very well. I am amazed by her strength and courage. Every child reacts differently but you get lots of ideas.

Last edited by Administrator; 05-19-2010 at 08:19 PM. Reason: removed disallowed website reference.

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