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    Old 07-12-2006, 03:24 PM   #1
    lbm0102
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    Hepatic adenoma

    I'm new here. I'm 32 years old and had a baby last year. Since then, I've had a dull to sharp ache behind my right rib cage. My drs thought it might be my gallbladder, but now are considering it might be a hepatic adenoma. I have a CAT scan next week. Can anyone tell me how their symptoms began, how they were diagnosed, what treatment they received,... I'm probably totally freaking out, because there's no way to know definitely if that's what it is until the scan, but I can't help it.

     
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    Old 07-17-2006, 10:41 AM   #2
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    Re: Hepatic adenoma

    lbm0102, Just checking in and saw your message. I saw that Kartar mentioned that Hepatic Adenomas are most closely associated with chronic alcoholism and I wanted to share that I have been told something different that may indeed be relevant to you (as a woman of child bearing age). It is my understanding HE are most commonly noted in young women and that the use of oral contraceptives can be a causal factor.
    My story is this: even with a CT scan and an MRI, it was impossible to accurately determine whether I have a hepatic adenoma or another type of benign liver tumor (focal nodular hyperplasia or atypical hemangiona). I understand that this lack of definitive diagnosis is not uncommon. Unfortunately it is also not possible to rule out cancer 100% without a biopsy although the multitudes of radiologists who have examined my scans are quite confident that I do not have cancer. We attempted to do a fine needle biopsy, aided by an ultrasound, but the tumor was not visible on the ultrasound. Nobody is inclined to cut me open because the general consensus is that is way too risky given the overwhelming likelyhood that I have nothing wrong with me. So we will rescan in a couple of months and check for growth or change. I should also note that I do not have a single symptom. I was getting a CT scan for something completely unrelated when this was found.
    Anyway, I urge you to check this out further BUT please do not be frightened. I have been told by several doctors now that hepatic ademonas rarely cause serious problems. Good luck!!!

     
    Old 07-29-2006, 01:56 PM   #3
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    Re: Hepatic adenoma

    I had a hepatic adenoma rupture two years ago. I had no prior symptoms. After stopping the bleeding, I had 60% of my liver removed along with the gall bladder(it was in the way). It was a scary thing to go through. I was told by my surgeons that oral contraceptives caused the tumors to grow and rupture, and as long as I am off of the pill they would not come back. Are you on the pill or other synthetic hormones?

     
    Old 02-24-2007, 02:22 PM   #4
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    Re: Hepatic adenoma

    Windygal, you say that several doctors have told you that adenomas don't usually cause problems? What kind of doctors were those? What size lesion do you have?

    I have a 5 cm adenoma and my gastroenterologist is sending me to a university hospital to see if I need resection. I'm concerned that the surgeons there, transplant specialists, may be too quick to recommend surgery. I'd like to be sure that just watching it wouldn't be a reasonable strategy. Mine hasn't grown since it was detected a year and a half ago. I'm also about to go through menopause and wonder if this might decrease the likelihood of growth and even rupture.

    Does anyone else have anything to say that might be of help to me? I really appreciate this discussion. It's good to know I'm not alone in this. Thanks to all of you who contribute.

     
    Old 02-24-2007, 03:04 PM   #5
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    Re: Hepatic adenoma

    Quote:
    Originally Posted by dlynnel View Post
    Windygal, you say that several doctors have told you that adenomas don't usually cause problems? What kind of doctors were those? What size lesion do you have?

    I have a 5 cm adenoma and my gastroenterologist is sending me to a university hospital to see if I need resection. I'm concerned that the surgeons there, transplant specialists, may be too quick to recommend surgery. I'd like to be sure that just watching it wouldn't be a reasonable strategy. Mine hasn't grown since it was detected a year and a half ago. I'm also about to go through menopause and wonder if this might decrease the likelihood of growth and even rupture.

    Does anyone else have anything to say that might be of help to me? I really appreciate this discussion. It's good to know I'm not alone in this. Thanks to all of you who contribute.
    Hello everyone!

    Yes, I have something to say.

    I was having lower abdomenal pains back in 2000 and during a CT they found 5 lessions, two in left lobe & 3 in the right thought to be hemangiomas. It turned out that the doctors thought I also had endometreosis ( not sure if that is how it spelled) and ended up with a total hysterectomy --labs came back neg for endo. We tried the hormone supplements and never could get me regulated so I stopped taking them in 2001.

    It is now 7 years since this started with the lesions and this year my cholestrol and Alkaline phosphate is elevated. Upon the blood test, I was sent in for a CT to look at the liver again. It showed a new 8.8cm lesion so I was sent for MRI. Now the MRI showed that it was not a 8.8cm but that I have 11 lesions, 5 on the left & 6 on the right. Some are close together.

    Was sent to a hepatologist for review and ended up with a biopsy on the funniest looking one deep in my left lobe. Here is the explaination from the doctor.

    The biopsy came back FNH but that he can not tell me 100% that the others are FNH. FNH and Adenomas look very much a like, very difficult to tell apart unless biopsied and A typical FNH are not usually multiple like in my case. FNH never have been know to go cancer like Adenomas do, they are just cells in the liver that go wacky. Sometimes they shrink and go away, sometimes they don't. Sometimes BC or Supplements can help this things to grow or increase, but that is not my case.

    Now I have not taken BC pills since before 1995 & no supplements since 2001 and now I have 11 lesions that are growing & possibly multipling more with time. Nobody can tell me what is causing these cells to do this or why they are multipling. As of last Tuesday they are running more blood test on me such as GGT and Anti-mitochondrial AB. I was tested for hep and am neg.

    What blood work have they done on you and what have the results been? Is anyone experiencing several lessions/tumors like I am out there?

    Well that is the short version of my story! Good luck to all!

    Zetah

     
    Old 03-10-2007, 08:09 AM   #6
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    adenoma or hemangiomas

    i just recently had all kinds of test run ultrasound , ct , hida, and mri all within
    2 wks , see they saw on the 1st that i had a lesions on my liver, and the ct show several so i saw a gastro dr, he said they were harmless hemanigoms
    to come back in 2months cause by taking birth control for over 20yrs so i stopped immediately, but i was having some discomfort under my ribs and soreness internal for about 4wks now so i called they thought it might be my gallbladder so did a hida scan but its was fine so since i am still have discomfort they order a mri done had that i haven't got the results back yet but they called me friday and said not to worry over the weekend cause if it was real bad the radiologist would have called the dr by not so that gave me a little relief i have been so worry i have lost 14 lbs and my stomach is upset an nerves shot i just want to be ok maybe my ribs are just inflammed or pulled muscle or something

     
    Old 03-10-2007, 01:20 PM   #7
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    Re: Hepatic adenoma

    Quote:
    Originally Posted by MsMagic84 View Post
    Hey guys. I had a catscan in dec that came back clean
    Sat night i had a cat scan that showed a 8.3cm mass on my liver.

    They did the liver test and almost all of tthem came back normal or just slightly elevated.

    So what could this be? I am not on birth control.

    Hello,

    Which ones were slightly elevated?

     
    Old 03-10-2007, 01:22 PM   #8
    zetah
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    Re: adenoma or hemangiomas

    Quote:
    Originally Posted by shellybean1 View Post
    i just recently had all kinds of test run ultrasound , ct , hida, and mri all within
    2 wks , see they saw on the 1st that i had a lesions on my liver, and the ct show several so i saw a gastro dr, he said they were harmless hemanigoms
    to come back in 2months cause by taking birth control for over 20yrs so i stopped immediately, but i was having some discomfort under my ribs and soreness internal for about 4wks now so i called they thought it might be my gallbladder so did a hida scan but its was fine so since i am still have discomfort they order a mri done had that i haven't got the results back yet but they called me friday and said not to worry over the weekend cause if it was real bad the radiologist would have called the dr by not so that gave me a little relief i have been so worry i have lost 14 lbs and my stomach is upset an nerves shot i just want to be ok maybe my ribs are just inflammed or pulled muscle or something

    I haven't lost any weight, but if you find out what your pain is, could you please post it? I have had upper abdomenal pain for about 4 months now and my doctors are now looking at the intestines.

    Thanks, Zetah

     
    Old 06-03-2007, 02:17 PM   #9
    Irishdancer216
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    Re: Hepatic adenoma

    Dear IBM0102,
    I had a hepatic adenoma and my symptoms were: severe vomiting of bright yellow bile, raised right rib cage, soreness of right rib cage, and abdominal pain.
    I've never been on birth control, i'm only 16, but i got this adenoma anyway. It may have been my anti-seizure meds.
    I hope your tests go well.

    Last edited by Irishdancer216; 06-03-2007 at 02:25 PM.

     
    Old 07-24-2007, 10:32 PM   #10
    LindaG40
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    Re: Hepatic adenoma

    I just found this board as I have recently been diagnosed with a hepatocellular adenoma. I did not have any symptoms at all, but back in early May, I was out for a run with my dog and he yanked the leash too hard (with my hand attached to it!) when he spotted another dog. A couple of hours later, I experienced back pain, but paid no attention to it. By that evening, my right shoulder was hurting, but I still toughed it out through my salsa aerobics class. I took a vicodin that evening, but it didn't do anything for the pain. The next morning, I felt better, so I went for another run with the dog. I went through the rest of my day (I even worked out with my trainer), but felt a lot of gastric pressure in my chest. I tried chewing Tums and taking Prilosec, but nothing helped. Late that evening, the pain in my right shoulder and right side were so intense that I went to the emergency room in tears.

    Well, to make a long story...longer! After spending the night in the ER, they finally ran an ultrasound, CT, and chest x-ray, and saw that there had been internal bleeding in my liver. The fluid (hematoma) was right under my diaphragm, which is why I had so much pain in my shoulder (referred pain) and difficulty breathing. I went in for regular blood checks for a month, and everything stayed normal, which meant the bleeding stopped and my body started to heal. A couple of months later, I went in for a follow-up CT, and they saw that the fluid was almost gone, but there was still a 5cm mass on my liver. Yikes! The dr. sent me back in for an ultrasound, which confirmed the adenoma. Thank goodness there's only one. I had been on oral contraceptives for about 17 years, so the dr told me to stop them immediately. I am going back in for another CT in two weeks, and in the meantime the local GI dr is referring my case up to UC San Francisco. My internist told me that the treatment for this type of adenoma is liver re-section (which I already knew thanks to a little bit of research and reading these message boards). He also said that most likely the tumor ruptured as a result of the trauma (running with the dog) to my liver.

    So now my question is, what is the liver re-section surgery like? How long does it take? How long are you in the hospital? Are there any additional tests I should do before surgery? Is there anyone out there who can recommend a surgeon in San Francisco?

     
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    Old 08-02-2007, 12:11 PM   #11
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    Re: Hepatic adenoma

    Hi, just wondered if you could give me an update since this post. I am new here and have just been told I have 3 benign lesions. That is all the info I have....now I wonder how they know they are benign without a biopsy. All bloodwork was normal but I didn't have an AFP. Any feedback would be appreciated. Thanks

     
    Old 08-08-2007, 12:19 PM   #12
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    Re: Hepatic adenoma

    Hi! My name is Domenica, Iím 23 from NJ.

    I too was just diagnosed with Hepatic Adenoma (Focal Nodular Hyperplasia) which is 7cm. How they found out: I went to my primarily doctor complaining of bad cramps he sent for a CT to rule out a cyst on my ovaries. I went and had the CT, I had a check up appointment with my OBGYN who was the one to break the news to me. And probably since I have been on the pill since I was 13 the tumor was a side effect from OC. I had never heard any thing like this before, I was in complete shock! The only symptoms I have been having are being nausea all the time and getting really bad headaches. I went for a few additional tests such as a MRI, a liver panel and a full blood work up. I am still awaiting the results of my blood work. The radiologist that read the MRI recommends another MRI in six months, but I am concerned of it rupturing and also this isnít something I was born with so shouldnít it just me removed? I have two appointments coming up in the 2 Ĺ weeks with Liver Surgeons. I am curious to find out more information if any one has had a resection, how long was recovery, and any additional information would help. Any information regarding sizes, and who is still waiting to find out about surgery. Pretty much any information would help!! Thanks!!

     
    Old 08-15-2007, 01:28 PM   #13
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    Re: Hepatic adenoma

    Hi LindaG40

    Been there. Last Oct. I had an attack of heart burn that didn't go away. I did the Zantac, Prilosec, Prevacid route. Finally went to a GI thinking I had gallstones. The ultrasound showed none but found 2 liver masses. The GI flips and starts going down the cancer road. At Christmas he tells me to start preparing myself for a possible liver transplant and I go in for a biopsy and PET scan (this is after multiple MRI, CT, xray, blood test, etc.). When everything is negative he shrugs his shoulders and tells me to reduce my stress. Mind you, I have been on BC for 20 years and 3 weeks into this found out about HA in my own research and brought this to his attention. He dismissed it. My husband & I demanded a second opinion and asked to be sent to Mofffitt cancer center in Tampa, FL.

    In Feb. we met with a top liver surgeon and within 2 weeks had a firm diagnosis of HA. A followup CT (digital tri-phasic this time) revealed not 2 but 4 growths! I had surgury in April. The growths weren't big(all under 5 cm) but we are trying to have kids and it's a bad combination, pregnancy and HA. I had ablation done on mine and lost about 20% of the liver, but it grows back.

    It was tough, but by the time I got to the hospital I was very ill will b12 anemia, had lost 15 pounds due to not being able to eat and other complications. One of the growths was adjacent to my main liver artery and bile duct. I lost another 10 pounds in the hospital and 10 more after I got home. I woke up with 2 IVs, an epidural, cathedar, nasal gastric suction drain tube, other monitor devices for vitals, and pneumonic pressure socks on my legs to prevent clots. This all lasted 3 days and then slowly started to come off. Of course on day 2 they had me up and moving with all this stuff in tow, that was a challenge. I was on ice only for 5 days then clear liquids for 2 and soft food for the last day. Well, actually I got nothing until the gastric tube came out. THAT was the worst of it, pulling that thing.

    Ask about having a epidural for pain relief. It helped a lot to manage my pain but keep me from being snowed. Also, if you are having a lot of burning pain ask about getting Toredol (sp?). Its like a super ibuprofen but you can't take it if you have kidney problems. I call it a wonder drug. Knocks out pain with little side effects. I was in for 8 days and out of work for 2 months. I have a 10 inch frown that runs along my ribs and severed every major abdominal muscle group. The surgeon says it will be about a year before it all fully heals. I am at probably 85% of function physically and I still hurt to some degree every day. But, I can eat again and I have back my energy and general feeling of health. I am glad I did this, but for me it has been a long road. I just had an MRI at my 3 month mark that looked Ok and I have another triphasic digital CT in Oct for a better look.

    As of the day of surgury I am off the BC for good. No hormones of any kind for me from now on. That should make menopause interesting. I also can not take any product with Tylenol in it. It is highly toxic to the liver.

    I hope this helps.

    Last edited by TabathaD; 08-15-2007 at 02:34 PM.

     
    Old 09-05-2007, 01:43 AM   #14
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    Talking Re: Hepatic adenoma

    TabathaD...

    Wow. The surgery details are not what I expected! Yikes! I thought the type of surgery they did on these tumors was laproscopic (sp?), but apparently that wasn't the case in your situation.

    I still haven't met with the specialists at UCSF, but I sure do know what kinds of questions I'll be asking on my first visit. I spoke to my internist last week, and he had a conversation with one of the UC physicians who had a chance to review my tests. Now they are saying that there are several adenomas, but one big one (I think it's 5cm) on the lower right lobe of my liver. They want me to meet with the hepatologist first, and then they will determine a treatment plan. It takes 4 - 6 weeks just to get an appointment (I've been waiting only 3), so I guess they are not rushing me into anything yet. Also, my internist said the rupture had nothing to do with my running with the dog, but if that's the case, then why are they waiting so long to see me? Otherwise, I feel fine and have not experienced any weight loss. Just my luck. But, now that I have gone off the pill after being on it for so long, I do get more tired and experience pms symptoms during my period. And it lasts longer, cramping, lack of concentration, lethargy, irritable, emotional, etc. Menopause should be interesting, but I don't even want to think about that right now!

     
    Old 09-10-2007, 10:34 AM   #15
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    Re: Hepatic adenoma

    LindaG40

    Laproscopic wasn't an option for me because my 4 growths were spread from one end of my liver to the other and they were not near the surface. A resection takes quite a bit of the liver itself. Ablation burns the tumor and only a small section of the surrounding liver. I believe you lose less mass. The issue with RFA is that not all facilities have the equipment and not all doctors are trained. It is a relatively new procedure. I am lucky to live near one of the leading research centers in the nation. They jump right on these things. I did read of one in California, but I can't remember where it is now, sorry. I was told I would be in the hospital for only 5 days but I had complications and was granted a longer stay. I personally had planned on being out in 3-4 days because I had always recovered fast from prior surguries.

    I feel up to 90%-95% now of my old self. Heavy lifting and strenuous activity are challenging, I just have to be careful and know my limits. I am an active person by nature and waiting for my muscles to heal is a test of my patience. But again, I had gotten very sick and did not realize how many facets of my life this was affecting and for how long. I never had any pain until the end and I thought it was an ulcer or gallstones. Every time I ate I got sick, water even made me ill. But there were other signs for close to 2 years that something was wrong, and I was going to my doctor for, that were misinterpreted. But hindsight is very revealing.

    The funny thing is, since I came off the pill in April my period symptoms have gotten much less. I don't have any bloating or cramping or near the mood swings. Who would have thought?

    I'll keep checking back. Let me know if you have other questions.

     
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