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    Old 03-20-2008, 04:37 PM   #1
    saint90ms
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    Liver Hemangioma - please help

    I went for an ultrasound last week of my abdomen because I've been having discomfort under my rib for about 4 months. The first US showed a 14mm structure in my gallbladder, probably a polyp. The doctor sent me for second US today and instead of the 14mm polyp, it showed multiple areas of shadowing in the wall of gallbladder which is probably cholesterolosis. Todays ultrasound also showed a 1.8cm echogenic mass-like area compatible with a hemangioma of the liver. I'm very concerned about this... is this something to see a gastro doctor for. I can't understand why the first US (done at a different facility)said that my liver was normal.

    What's going on. Does anyone have the same thing????

     
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    Old 03-20-2008, 05:31 PM   #2
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    Re: Liver Hemangioma - please help

    I think your best bet would be to see a liver specialist at the biggest teaching hospital in your area. They will most likely order a CT scan or an MRI to get a better picture of what they are looking at, but you are on the right track. You can read the threads about FNH/Adenomas, they are similar to what you have been told so far.
    I hope you find your answers!
    kt

     
    Old 03-21-2008, 08:24 AM   #3
    feelbad
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    Re: Liver Hemangioma - please help

    the hemangioma is basically just a little glob of venous fed blood vessels that in most cases and depending upon the location,really wont cause you any major problems. most are best just left alone. tho they can bleed in some cases,since they are only venous fed lesions,they tend to just ooze a bit and stop.

    i unfortuently had one of these inside of my spinal cord,which did turn out to be a very bad bad spot for these. but the liver,being the type of organ it is,it really shouldn't pose you any major problems or harm. my mom has been living with one in her liver as well for her whole life and has had no bleeds or any symptoms/problems from it. location,like i said,is everything with these. i personally would be more concerned about the GB findings and finding out just what that is all about.

    there are some threads in this liver board here on hemangiomas. you can look them up using the search area on the very top of this board.very helpful good info there for ya. don't use the web MD one but the actual healthboards search area if you want to find the henmangioma info from this particular board.i know there are a few good threads here. just put in 'hemangioma' it should bring them up for you.

    depending upon the type of test and the tech who actually did it,they could have possibly missed it. most hemangiomas are actually there from birth. i would try and seek out a good GI doc to really determine whats up with your GB. honestly,in only very rare cases,is a hemangioma within the liver ever a major problem or complication,really. most never ever really show any actual symptoms. one good thing to try and remember when it comes to the actual liver is,the liver itself doesn't "feel' pain since there are no actual nerves running thru it. unless it became inflammed(or other medical problems caused it) which would cause other things to come into play,that hemangioma most likely would not be casueing you pain in the location it is in. like i said,the location really makes the difference.

    hope things are okay with your GB. please keep us posted on what you find out.marcia
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    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 03-21-2008, 10:08 AM   #4
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    Re: Liver Hemangioma - please help

    I was recently diagnosed with hemangiomas. They are not typically dangerous. My doc compaired them to blood blisters, or strawberry birthmarks. They are not malignant, and my doc wants to monitor me just to make sure they are not growing too quickly-my largest is about 1". About 20% of the population has them, but do not know it because they rarely have symptoms--they are usually found when doing other tests, as mine were. Unless they are causing you pain (which it seems yours are) it is nothing to worry about. My doc did not even order a further MRI (because of my age and history), and did not want to do a biopsy because it would just cause them to bleed. He ordered a follow up CT in 6 months and if everything looks fine, will probably do an annual CT just to monitor.

    Try not to worry (I was panicking when my GP told me there were "spots" on my liver and didn't know what they were). If they are indeed hemangiomas, they have to be quite large or bothersome before they will remove them, and are really nothing to be too concerned about.

    Take care.

     
    Old 03-21-2008, 11:51 AM   #5
    saint90ms
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    Re: Liver Hemangioma - please help

    Thanks for putting my mind at ease. I'm wondering how can a doctor tell for sure that it is indeed a hamangioma and not something else. Do they have unique characteristics on ultrasound?

     
    Old 03-22-2008, 07:25 AM   #6
    saint90ms
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    Ultrasound finding of 1.8cm liver hemangioma

    I would like to know if anyone knows how definitive an ultrasound is in diagnosing a liver hemangioma. Is it recommended to have a CT or MRI scan afterwards to confirm that that is in fact what it is. I'm a little nervous and was wondering if you can give me your experience with the diagnosing/accuracy of an ultrasound. I had an ultrasound done last week and that was one of the findings along with multilple tail like areas of shadowing in the wall of the gallbladder compatible with cholesterolosis of the gallbladder. I guess I am more concerned about the liver.

     
    Old 03-22-2008, 08:22 AM   #7
    feelbad
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    Re: Ultrasound finding of 1.8cm liver hemangioma

    honestly,i really am not too sure about the US and angiomas.they DO tend to show themselves much more defiitively upon MRI. you can also tell on MRI whether or not this may have actually bled at some point to the outside. it would state in your MRI report that they noted 'hemosiderin staining" or a 'halo effect" around it. BUT,since this is an actual vascular type lesion i would be pretty certain that an US would be able to differintiate that part of things. US are good at looking into the blood vessels,or anything made up of a vascular nature. it kind of comes down to just what it is you actually want to really know about it,you know what i mean?

    the other poster is very right about NOT doing any real biopsy on these tho since it can do exactly what she stated,start a bleed. you have to keep in mind that these are merely little venous globs. they are not anything like having a tumor or some sort of mass in your liver.just blood vessels,thats it. like i mentioned in the other post,having this in your liver is not a bad place at all compared to other possibilities. mine was a really bad bad spot since with every bleed i had it was closing off more and more cordspace in there. there is no 'give' inside your spinal cord at all. the next bleed would have paralyzed me so mine had to come out,causing major damge to my cord and definite disabilites. if this had not bled or become an 'active' bleeder,believe me it would still be there right now.

    honestly,most docs who are knowledgable about angiomas and the charchteristics of them would in almost every single case(with certain exceptions like mine)tell you its not a huge deal and would be best left alone. just moitoring it from time to time to see if there have been any real changes would be the real course of action in most cases.

    i know it is hard not to worry when you find something in an organ that is simply not supposed to be there,but in the case of what you actually have,really,the risks to you are minimal. it is more just something to be checked out every once in a while. this doesn't change your life in any real way at all. out of any possible thing that they could find in your liver,an angioma is not that bad,really. i do hope this helps at least some to calm your fears. i really do think you will be okay as far as the angioma is concerned.

    hope all stays well for you with the GB. please keep us posted as to what you find out,K? marcia
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    3-22-01,herniated C-6-7
    11-20-01,placement of hardware for failed fusion
    9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.

     
    Old 03-27-2008, 04:24 PM   #8
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    Re: Liver Hemangioma - please help

    No worries!! If you can, click and see some of my other replies to people....anyhow, following a gallbladder removal, three hemangiomas were discovered. I monitored them with a liver specialist and yearly MRI's. I had one that just continued to grow. The two others have remained the same the past four and a half years. They are 2mm and 1.2 cm. The largest sat right on the top of my liver near my diaphragm. It grew to be over 7 cm. It began to cause referred pain to my right shoulder and it hurt at times to breathe deeply. So, in December, upon recommendation of my dr and the symptoms it caused, I had half of my liver removed. Hemangiomas are very vascular and they can't just remove the tumor itself. If it hadn't been for its placement, my doc would have just left it alone. He sees them all the time. In fact, I'm just going to monitor the other two that are still embedded in my liver. The surgery absolutely sucked, but I lived with shoulder pain for almost a year and it is so amazing that it is gone.

    good luck to you

     
    Old 03-28-2008, 06:52 AM   #9
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    Question Neens7982 need your help with hemangioma surgery

    neens7982 - Thanks for sharing your experience. I'm getting ready to have my surgery, too. I have tons of questions and hope you can help me out. Where did you have your surgery? I live in the Dallas/Fort Worth area and will be having the surgery in Dallas. My doctor is Dr. Goldstein. Anyone out there with the same doctor? Neens, when you got out of the hospital, were you able to get around on your own? Did you need someone with you after surgery to help with normal everyday life requirements? I am 50 years old and have two precious dogs...my babies...and they are my life. I'm more worried about being able to take care of them (take them outside on leash) than I am about me. HA...hey, what can I say, I love 'um'! Did you have problems with a lot of air in the tummy area that caused pain after surgery? I heard they pump air inside of the abdomen and it's hard to get the air out and the pressure is horrible. Did you experience that? Did you loose any weight after surgery? I'm not over weight at all, but don't need to loose any either. How bad was the pain after surgery? OKay, that's good for starters. Thanks Neens. Stay well. cj

    Last edited by cjntx; 03-28-2008 at 06:57 AM. Reason: change title

     
    Old 03-28-2008, 08:17 AM   #10
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    Re: Liver Hemangioma - please help

    hi cjntx
    my name is nessie i have just had a partial liver resection done 2 weeks ago. i write on the liver cell adenoma thread where there is a group of very supportive ladies who can answer probably all of your questions. rather than type it all again have a look at this and post on there all about surgery/pain etc any other questions about surgery. for what its worth im 2 weeks out and doing real good. i can move around well but have an issue with my weight. i was under weight anyway and now have lost a little more so im on some shakes that the doc has perscribed so feel a lot better .

    do not feel you are alone hun , like i say check out the other thread.

    nessie x

     
    Old 03-30-2008, 06:55 AM   #11
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    Re: Liver Hemangioma - please help

    CJ

    I also had Dr Goldstein and let me tell you....he was absolutely amazing!!! You will be in such good hands!! and Baylor is amazing also!! Incredible care!! I've posted my experience on another thread...but I'm copying and pasting 3 different posts here for you...

    I just had a liver resection at the end of December 2007. I had a large hemangioma removed. They took out over 50% of my liver...the right lobe.
    I am 29 years old and was in excellent health prior to the surgery.
    I was in the hospital for a total of 6 days. My surgery started at 8:00am and lasted until 11:00am. I had been advised that it could have lasted 6 hours. But, I was fortunate. I did not need a blood transfusion and everything went very well. The first day was a real blur. I remember waking up in recovery, but I felt okay. I was not wheeled to an actual room until nearly 11:00pm that night. I had a naso-gastric tube which emptied the contents of my stomach through my nose. I had no abdominal discomfort at all. I had little tiny tubes that were administering anesthetic directly to my incision. The tubes where attached to a medicine ball inside of a purse. I had no drains at all. The tube in my nose stayed for two days. I also had a central line in my neck. The day after surgery, I was up walking. I think my main problem was being nauseous. I was nauseated for five days and they kept trying different meds to help. All they did was make me sleepy. IBut other than that, recovery went really well. I was released on the 6th day. My appetite was low and I still had bouts of nausea, but for the most part, I was very tired. My incision runs from my sternum to the center of my stomach and then takes a slight curve around the right rib. The incision is approximately 12 inches long. They used glue to close it and it is looking very very good. I can't pick up anything over 5 lbs for 6 weeks. I am now almost 4 weeks out. I move around very well, but I still get exhausted. I am taking two more weeks off of work and then I plan to return. I am very happy I had the surgery done. My tumor had caused me referred pain in my shoulder and that pain is completely done. It is nice that I won't have to worry about my tumor. Aside from having blood tests every few months, I don't have to worry about anything.


    My tumor was on my right lobe of the liver. It was 7cm. It actually was at the top of my right lobe near my diaphragm. So, it began to hit my diaphragm which caused referred pain in my shoulder. Sometimes, it would hurt to take a breath. The nasal tube is gross, but they have to give your liver a day or two of rest. So that is why it sucks everything out. I could eat ice chips and drink juice, but that was it. I didn't eat solid food until day 5...this was due to my nausea. I think the nausea was the worst part of it all. But everyone reacts differently to surgery and anesthetic. You may not have any nausea at all. I think that if I wasn't nauseous, I would have felt a ton better and maybe would have left the hospital sooner. I did not have an epidural. I am a wuss for pain. I've had two children and needed epidurals for both. In addition, I had gallbladder surgery before and had crazy pain for that (and that was just laparoscopy). With this surgery, when I came out, I had something that administered pain right to the incision. There was literally a black purse that had a plastic ball of medicine in it. The purse had a tube that led to several tiny tiny tubes that administered medicine right to my incision. It was left in for four days. When they took it out, it was nothing. No pain or anything. I had a PCA morphine pump, but I hardly used it. Out of 15mg I could use a day, I was only using 2. I think I was using it for minor discomfort...but not actual "pain". The purse thing was amazing. I was amazed that I didn't have a ton of pain. I was in recovery for four or five hours, but then, I was sent directly to a room. No intensive care. Oh, and I didn't have any drains which was good. Everything has gone extremely well. I had an amazing dr. at Baylor Univ. Med Center in Dallas.
    I was very scared going in. Thinking of all the what if's. But, I knew that eventually, it would have to come out. I do think that being younger is a definite benefit. Again, I am very glad I had it done. Right after surgery, I immediately noticed that I did not have shoulder pain like I had before. Of course you are nervous because it is major surgery! I followed my tumor for four years. It grew from 2cm to 7cm in that time. My doctor was comfortable with just watching it, but, it became symptomatic last Feb. and between Feb 07 and Nov 07, it grew 1cm. So, he decided that it really did need to come out. It is much easier hearing a doctor say that than making a decision about it myself.

    I was in the hospital for six days. I then stayed in Dallas for another 5 days before I actually flew home. During those five days, I was very tired. I was able to walk into the kitchen though and make my own sandwich. You can't lift anything over 5lbs for 6-8 weeks...which of course is a challenge with kids...but if you do, there is a risk of a hernia which could lead to another surgery...so you sorta become very concientious of it. When I did return, my boys were amazing. they are 8 and 11. They helped pick up and put stuff away. They would bring me things if i needed them. I had family bring over meals for a little while. I also purchased some things the boys could make themselves in the microwave. My fiance did most...and is still doing....the housecleaning, laundry, etc. You really have to take it easy and rest. If you don't, you'll have a set back. I actually won't return to work until I am six weeks out of surgery. Even, then, I may take a week and return half time.

    Okay...so now, today....3/30/08....I am now three and a half months out and I feel wonderful!! The surgery really did zap a ton of energy from me at first, but I am glad to be feeling good. I did return to work six weeks after surgery...but then, I took two weeks and did half days to ease back into it. Which turned out to be a great idea. I was soooo tired by the end of the day. About four weeks after surgery, I did have an allergic reaction to the glue...which was a weird, not so common delayed reaction. I just had to sit in a bath for an hour and peel all of it off. I use Vitamin E on the incision and it looks great. It is still sort of pink, but I already have some areas that are fading. I recently had blood work done and get this.....everything was in the NORMAL range except for my monophils. They were at 11.4 and normal is at 11. After surgery, your numbers will be completely out of whack. But they should go down.

    CJ...let me know if you have any other questions!!!! When is your surgery scheduled? I still have two other hemangiomas on my liver that are quite small. He looked at them but told me that they are embedded. They haven't grown in the past four years like the other one, so hopefully they will be fine.

    I live in New Mexico and was able to follow up with my primary care physician here after surgery.


    Hopefully this wasn't too much info....but let me know if you have any questions. Goldstein was awesome!! I am so glad you will be in good hands!!!
    --------------------------------------------------------------------------------

     
    Old 03-31-2008, 12:03 PM   #12
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    Re: Liver Hemangioma - please help

    Neens, thank you for reposting your surgery info. I am having surgery this Thursday and having trouble focusing on anything but surgery.
    You are the greatest!
    Katie

     
    Old 04-01-2008, 01:04 PM   #13
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    Re: Liver Hemangioma - please help

    Praying for you Katie!!

     
    Old 04-22-2008, 09:10 PM   #14
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    Question Re: Liver Hemangioma - please help

    hello,
    i am new here and i couldn't fiqure how to post a new thread. i had a ct scan showed a lesion in my liver and one in my kidney.
    have had discomfort on and off right abdomen for 5 months. went for a mri and results show cyst on kidney and 4 lesions very small no larger than 1 cm in liver. According to the impression of the report it cannot be definitively characterized, however most likely represent hemangiomas.
    my doctor has told me to see a specialist. i am very scared it could be cancer. I don't feel sick just this come and go pinching pain.
    the kidney leson was defined as a cyst.
    please tell me this will be ok.
    thank you all and god bless

     
    Old 06-13-2008, 09:15 AM   #15
    patriciamia
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    Re: Liver Hemangioma - please help

    Hi Everyone,
    Like Neens, I live in NM and during gall bladder surgery they found a 10cm hemangioma on my liver. They are removing it in 3 weeks and I am freaked out. I just have a question. They are removing it here at UNMH. What doctors have you seen? The doctors at UNMH have been good. The initial doctors I went to made some major errors like needle biopsying it and such. This was at another hospital. I am so scared. It's on my left lobe and I have never had any surgery besides th gall bladder, which was super easy. I'm only 32 and I keep reading online that you never touch these, but I eventually want to have kids. Please help.

     
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