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  • Liver Resection for Hepatic Adenomas

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    Old 06-22-2009, 07:30 PM   #1
    chandrasweetums
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    Liver Resection for Hepatic Adenomas

    I am 32 years old and just learning about the liver. In February I landed in the hospital with intense pain that started in my back and then moved over my chest & abdomen. After about four days of pain & being transferred twice to different hospitals, I was finally diagnosed by a liver specialist with numerous Hepatic Adenomas on my liver (they counted about 11 for sure, maybe more). One of them was 7 cm in size & had ruptured, causing bleeding into my liver & the reason for my pain. They did a radiology procedure to stop the bleeding, telling me that if the rupture had gone outside of my liver, it would have been catastrophic. They think these adenomas are due to my being on birth control pills since I was 16, so they told me to stop taking them, which I did.

    After six weeks of recovery (slow & painful), I had a liver resection done (April 14) where they removed the right lobe (about 65% of my liver) to get rid of most of the adenomas. I lost a lot of blood during the surgery, so they had to give me two transfusions. They had me on morphine for the pain, but during the next two days I became so 'out of it' & my lungs were filling up with fluid that they had to contemplate moving me to the ICU with a breathing tube. Luckily they figured out it might be an overdose, so they gave me an 'anti-Narc' shot. I remember my eyes flying open & seeing several people in the room standing around my bed. It was the scariest thing waking up like that & not knowing what had happened (I don't remember anything). After that, they would only give me Tylenol for the pain, which didn't do much at all. After a week in the hospital, they sent me home. I remember almost going crazy from the pain & not being able to sleep at all for a week after that.

    So, 9 weeks later I'm still not feeling back to normal & am getting frustrated. I still have pain in my side & not much of an appetite. I've gone through my whole life with 'sluggish' bowels (i.e. only using the bathroom once or twice a week). They tell me that's the reason I'm still in pain & I need to work on getting 'regular.' Well, I'm taking Miralax & it makes everything soft & easy to pass, but I'm still not what they call 'regular.' I don't know what else to do. This last weekend I couldn't hardly eat anything because my stomach hurt so bad, but I wasn't puking or anything. I don't know if it was a flu bug or what? No temperature. Now I've also noticed these tiny red dots all over my stomach which I don't think I had before. Oh, and last night I was rolling over in bed & felt something 'pull' or 'pop'. Today I've had a lot of pain in my upper right abdomen, like something is tight, maybe I tore a muscle or something? I'm scheduled to go back to the liver specialist July 6th for another CT scan to see if the remaining adenomas have gotten smaller (trying to get them all during surgery was too dangerous since they can only remove so much of a person's liver).

    Anyway, sorry this is so long. I just wanted to share my story & maybe I can help someone else, or someone can help me figure out if what I'm going through after the surgery is 'normal' or if I should be worried?

     
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    Old 06-26-2009, 09:54 AM   #2
    Farmgrrl
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    Re: Liver Resection for Hepatic Adenomas

    Hi Chandra,

    I like you recently underwent a liver resection, but mine was only 10 days ago. My understanding with healing (I am a nurse too) is that the sensations change over time from tingling to incision pain to referred pain. I'm going through a lot of that myself. I do believe that some of my pain is caused by constipation; I'm only eating about 1/2 the portions I used to (a good thing for me...carrying extra weight) and if I over do it, I suffer! I had a good BM at post op day 5 and then nothing until yesterday. I have been taking Miralax twice a day as well as needing to take Dulcolax to make myself "go". I have Perhaps a good bowel clean out is in store for you? *BTW, I know a lot of my constipation use has to do with the opioid pain meds and I was on a Dilaudid pain pump for almost 4 days...

    Are you still only taking Tylenol for pain? My docs have allowed me to start using NSAIDS (i.e. Motrin, Aleve). I find these help me out a lot...right now I take Aleve, 2 pills twice a day. I'm down to taking only ~3 Vicodin a day.

    Its unfortunate that they completely took you off good pain control immediately post-op. Did the hospital have a pain service? It sounds like yes, you were receiving a bit too much but that doesn't mean you should only get Tylenol for pain. There are other alternatives to morphine; it frustrates me to hear that.

     
    Old 07-07-2009, 04:15 PM   #3
    chandrasweetums
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    Unhappy Liver Resection for Adenomas

    I went in for an updated CT scan yesterday (my surgery was 4/14). The liver surgeon says my liver has grown back nicely & the remaining adenomas have shrunk since I've been off the birth control pills. Good news. He wants to do another CT scan in 6 months to check things again.

    He says my pain is probably from bowel issues (constipation); wants me to try 2 Senna Plus tablets twice a day, Miralax every other day, Tylenol as needed for pain (says Vicodin could be adding to my problem, even though I only take it a couple times/week, & Ibuprofin is too hard on the liver). I'm also supposed to keep a journal of everything I eat & when, how I feel, when I have bowel movements, what they look like, etc... for a month, then come back to see him & if it's not better, he'll have me see a GI doctor.

    Last edited by chandrasweetums; 07-09-2009 at 10:40 PM.

     
    Old 07-08-2009, 11:57 AM   #4
    ChelleRose
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    Re: Liver Resection for Adenomas, NEED HELP PLEASE!!!

    Hi its been awhile since Ive been on I had my liver resection on 4/21 I had a hemangioma the size of a large grapefruit removed from my left hepatic lobe all went very well. Im still sore and had to go today to get checked out because I started getting pain again and nausea. My doctor said that my stomache is displaced that it has moved to the area where he removed the tumor and that this is very common with my type of surgery. And that my stomache isn't emptying properly. So he put me on some medication for a month that I have to take 30 min before I eat. Farmgirl Im so glad to hear your surgery went well and I hope christines went good to. Chelle

     
    Old 07-09-2009, 10:56 PM   #5
    chandrasweetums
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    Re: Liver Resection for Hepatic Adenomas

    My doctor did mention, after taking a quick look at the CT scans, that my liver has grown back more towards the middle of my abdomen (instead of being towards the right side) & that my colon is moving up to fill in that empty space. He says that is normal.

    Taking the Senna & Miralax seems to be helping a little bit, but it's a miserable process. My stomach feels so bloated, full, crampy, etc... & I'm still having pain on my right side. I don't even want to eat anything. I get hungry (stomach growling) maybe once/day.

    Chelle - a grapefruit! wow! you say your stomach moved, it must have caused problems for you & that's why you're taking medication? How did you get them to listen to you & try to figure out what the problem is? Did you see a GI doctor right away? I'm seeing my liver surgeon right now and he blames everything on my occasional constipation. Some weeks I'll go once, other weeks I'll go several times. He says I have to try this aggressive approach with the Senna Plus & Miralax & keeping a journal for a month before a GI doctor will listen to me. But, I'm so miserable just after this week that I'm not sure I can go through this another three weeks. I'm just so tired of it all.

    Farmgrrl - how are you doing now?

     
    Old 09-14-2009, 01:44 PM   #6
    csatt
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    Re: Liver Resection for Hepatic Adenomas

    Something very similar happened to me. I was 23 years old, and I had a abdenoma on my liver and galblatter. The tumor burst. It was the most painful thing I have ever been through, and let me tell you, I have been through a lot. Same story. I was on Birth Control, and that's what caused the tumor. What made it burst, who knows?! It ran out of room to grow?! Anyway, Im glad to see Im not the only one coping with this. It seems ever since surgery my health and attitude towards life have taken a nose dive. My confidence is down the drain, and I still am in constant pain. Scar Tissue might be the reason though to answer your question. I feel pain still in my abdomen/liver and its been 2 years. Get it check on though...

     
    Old 09-14-2009, 04:50 PM   #7
    chandrasweetums
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    Re: Liver Resection for Hepatic Adenomas

    Thanks for the post csatt. I agree that the rupture pain was unlike any pain I have ever felt before in my life. I'm sorry you've been dealing with the pain still after 2 years. It's very discouraging to hear that since I am in constant pain on my right side and it has only been 5 months after surgery. My feelings/mental state have been all over the place. Some days I do okay and other days I just burst out crying for absolutely no reason. I guess I just get hopeless about things and that I'm never going to be without pain. I know I should be grateful to be alive, but (and I know this is extreme) sometimes I wish I had died. But, for some reason I must be meant to be here since I lived through the rupture and the surgery (I was in bad shape for both).

    My last visit with the liver surgeon was 8/10 and as far as he's concerned, my liver is fine. So, he's bowing out of my case and referred me to a GI doctor (whose specialty is liver disorders) to monitor things for the future. The plan is for me to get an updated CT scan in December and visit with the GI doc to make sure things are still good and no more adenomas show up.

    The liver surgeon also referred me to yet another GI doc for my abdominal pain/constipation issues. I saw him on 8/20 and he's not really concerned about my constipation issues. He says as long as I'm using the bathroom at least once/week, it shouldn't be a problem. As far as the pain goes, he's not sure what to tell me. So, he referred me to a pain clinic. I went to the pain clinic 9/09 and they think it might be nerve-related. So, they gave me some injections of Novocain/steroids in my scar (OMG did that hurt!), prescribed me Neurontin, Lidocaine patches, and a TENS unit to use. I have to go back on 9/23 for follow-up and possibly some more injections. I haven't noticed much for results and am skeptical of all this because it seems like they're just treating the surface. My pain feels like it's deep inside. So, I'm not sure what to think. All I know is that I can't miss any more work and I just have to try my hardest to keep going with life 'as usual' even though I don't feel good and I'm not happy. I think the hardest part is that I live alone, so there's no one there when I come home from work. It would just be nice to have someone's shoulder to cry on once in awhile. My mom is very supportive, but she's 3 hours away and talking on the phone just isn't the same.
    Anyway, I could go on and on with this 'sob' story, but it's not going to make things any better.

    Oh, your comment about scar tissue? I've asked different doctors about that and/or adhesions, but so far I've gotten "that only happens to old people" or "it takes years for that to become a problem."

     
    Old 09-15-2009, 09:21 AM   #8
    csatt
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    Re: Liver Resection for Hepatic Adenomas

    I sometimes wish I had passed on the table as well. I guess it is normal to pity yourself after such a life altering experience. But the good news is I have advice. If you aren't currently seeing a gastroenterologist; please do. Since surgery I have had all sorts of issues with Bowel Movements, Gas Pain, etc. You may have IBS. (Irritable Bowel Syndrome). I know I do. But the scar tissue thing they told you is false, as soon as your wounds begin to heal you will have some scar tissue. Every ones pain threshold is different, sometimes with even a little it can hurt very much. I would get an endoscopy/colonoscopy done though. If you are feeling pain and having problems making bowel movements, etc, it is probably related to what happened, but a different thing entirely. But hang in there girl, people out there rarely survive things like what we went through. It will just make you a stonger person, and have more character. You are the first person who seems to share a story close to mine.
    Thanks.
    Candice

    Last edited by moderator2; 09-15-2009 at 05:09 PM. Reason: no contact info - please read the posting rules

     
    Old 09-15-2009, 09:26 AM   #9
    csatt
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    Re: Liver Resection for Hepatic Adenomas

    Ah, I forgot! If you are seeing a gastroenterologist, and he is telling you its not a big deal. Get a new one! He sucks! LOL

     
    Old 09-16-2009, 05:32 AM   #10
    aliha
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    Re: Liver Resection for Hepatic Adenomas

    Hi There

    I had a tennis ball sized adenoma + 25% of my liver resected just over a month ago.

    I think I am doing okay so far but am intrigued by a few of your comments - I love reading these forums as I think it provides a far deeper insight than doctors can provide.

    I had an open resection and have a GIANT back to front 'L' shape. Since th operation I find that I cannot burp - I can eat whatever I want however feel nauseous after eating and I think this is because I am gassy and cannot belch, has this happened to either of you?

    I have also lost quite a bit of weight, I didn't initally but the last three weeks weight has been falling off of me and my clothese now just hand - I only weigh around 50kg so am not too keen to lose much more! Did this happen to you?

    I have been off of pain medications for around 3.5 weeks now. I am still in pain but it's tolerable except when I walk, I get a horrid stitch pain - is this normal?

    And finally, to touch the area of stomach near the scar (where the liver is) is now numb - is this feeling gone forever?

    Any experience info you can provide would be fab!

     
    Old 09-16-2009, 10:03 AM   #11
    chandrasweetums
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    Re: Liver Resection for Hepatic Adenomas

    I didn't really notice not being able to burp, but I did have problems with eating for a long time. I'm just now starting to be able to eat more and my resection was back in April. For the longest time I would just feel nauseous or repulsed by food for no apparent reason and I had no appetite. I did lose 30 pounds (13-14 kg I think) in a span of 3-4 months, which was good for me since I was slightly overweight.

    My incision did bother me quite a bit in the beginning and even now it still does, especially since the beginning and end are both keloid. I also had the numb feeling and was told that was normal since they cut through quite a bit of your nerves during the surgery. I'm still slightly numb at times and have heard that for some people the feeling never goes back to what it originally was before the surgery. I also have days where just my shirt touching or brushing against certain areas of my stomach is the most annoying thing ever!

    Congrats on making it through the first month...that is the hardest part!

     
    Old 02-12-2010, 09:57 PM   #12
    mwel
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    Re: Liver Resection for Hepatic Adenomas

    Wow after reading all of your post I'm actually scared to request for surgery. I've been turned away twice. But now I want to beg them to remove my adenoma since I want to start having a family. I've been told that becoming pregnant will make it grow and more of a chance of rupture and loosing the baby. I dont want to spend a pregnancy as very high risk so I would rather go through the operation than loose a baby or not being able to enjoy a pregnancy. I hope I finally get an answer to getting it removed but I also hope I dont have a hard recovery as you all did. I'm glad you all pulled through the recovery successfully. Please any words of advice before surgery?

     
    Old 02-15-2010, 12:04 PM   #13
    csatt
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    Exclamation Re: Liver Resection for Hepatic Adenomas

    My advice is make sure you have Plastic Surgery Sew You up! My scar is over a foot long and 1/4 thick. It will make healing easier on the mind and body...

     
    Old 05-06-2010, 06:17 PM   #14
    liver
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    Re: Liver Resection for Hepatic Adenomas

    DO NOT wait till july to see your doc,, i had 85% of my liver removed in 1984, mine also from birth control pills i had 2 huge tumors in each lobe of the liver and they hemmoraging into each other,, stay away from the tylenol and meds as much as possible as the liver is a filter and if you dont filter the meds, like the morphine, accumulate in your system not a good thing, make sure you are walking and drinking alot of water this will help the bowels, pain is not caused from constipation unless you are obstructed then it is a big problem good luck

     
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