It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Liver & Pancreas Disorders Message Board

  • husband has cirrhosis(nash)

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 12-29-2009, 06:13 PM   #1
    hjzgz
    Newbie
    (female)
     
    hjzgz's Avatar
     
    Join Date: Dec 2009
    Location: bowling green,ky usa
    Posts: 9
    hjzgz HB User
    husband has cirrhosis(nash)

    was diagnosis 6 months ago and was told to just get his life in order, was left with what happens now and what can we expect to happen near the end, stays in coma like state lots of times but still gets up and goes thru the day????Now has lots stomach trouble??? does anybody knows whats going on ?????

     
    Sponsors Lightbulb
       
    Old 12-30-2009, 08:14 PM   #2
    grandma2o2girls
    Member
    (female)
     
    grandma2o2girls's Avatar
     
    Join Date: Nov 2008
    Location: sacramento, ca
    Posts: 59
    grandma2o2girls HB User
    Re: husband has cirrhosis(nash)

    Quote:
    Originally Posted by hjzgz View Post
    was diagnosis 6 months ago and was told to just get his life in order, was left with what happens now and what can we expect to happen near the end, stays in coma like state lots of times but still gets up and goes thru the day????Now has lots stomach trouble??? does anybody knows whats going on ?????
    I am so sorry to hear about your husband. I know first hand what you are going thru. My husband was diagnosed June 2008 and passed away January 2009. He was waiting for a liver transplant which he was to be put on a waiting list in February, but his body couldn't make it. My husband had lots of problems with this horrible disease. Is your husbands' stomache full of fluid? He got so large towards the end. He had pain on his side that went thru to his back. He started to pee rust colored urine then eventually didn't pee at all. His liver was shot. He hardly could walk the last month cuz how large he got. He literally had to hold his stomache up when he walked. It was horrible. He slept most of the time and started to get a bit delerious. Then one morning he told me to call 911 and so off to the hospital he went again. This time they put him on life support and tried to help him. He eventually got sepsis in his blood. They took him off the machines and he passed away about 20 mins. later. Also, he got nose bleeds alot. One time I had to take him to urgent care cuz it would not stop. They bleed badly. It has to do with the brain or something. He was losing oxygen to his brain and that is why he was getting delerious.

    I am not sure how advanced your husbands cirrohosis is, but my husbands liver was practically null. His kidneys failed and eventually all his organs failed. I know this is horrible what I am writing but like I said this is what happened. I am hoping your husbands is not advanced as much as my husbands was. His cirrohosis was caused by alcohol. I don't think my husband thought he was gonna die til like 2 months before he did. I was in denial and just thought they would "fix" him.

    I did not write this to scare you, I am just telling you my experience. I hope you will write me back. We were married 38 years and I am having a terrible time coping without him. I would like someone to talk to and hopefully be able to help you if you need to know anything.

    Take care and God Bless
    Darlene

    Also, did doctors ever mention a transplant? Please let me know.

     
    Old 01-05-2010, 01:14 PM   #3
    grandma2o2girls
    Member
    (female)
     
    grandma2o2girls's Avatar
     
    Join Date: Nov 2008
    Location: sacramento, ca
    Posts: 59
    grandma2o2girls HB User
    Re: husband has cirrhosis(nash)

    hjz

    I was wondering how you and your husband are doing? Have you found out anything further about his condition? I see you never posted back and so I was a little concerned. I hope everything is okay.

    Please let me know how he is doing and if the doctor had any other information.

    Take care
    Darlene

     
    Old 01-14-2010, 04:52 AM   #4
    Poppit
    Newbie
    (female)
     
    Poppit's Avatar
     
    Join Date: Jan 2010
    Location: South Africa
    Posts: 8
    Poppit HB User
    Re: husband has cirrhosis(nash)

    Hi Guys

    My name is Candice and my fiance Shane was diagnosed with Cirrhosis in November 2009. Our story started pretty normal, I knew him from school, didn't see him for 10 years and then met him at a concert. It was love at first sight and there you go. I knew he was an alcoholic when I met him - reasons that are fairly complicated and a lot to do with his parents - but I figured that he only drank beer and wine and never touched hard tac that everything would be ok. Be that as it may I continued and pretty soon we were living together. We have been together for 2 and a bit years now. Fortunately for me he is not an abusive alcoholic and I am one of the lucky ones who has never had to put up with that type of thing. If anything he is a loving and caring man who is punishing himself.

    He was diagnosed with Chronic liver disease in June 2009 - 3 days after we printed our wedding invitations... needless to say the wedding got postponed indefinitly until he got better. I first noticed that our sex life was shot a few months before that but I figured it had to do with the normal stresses of life. Then he started bloating and picked up a good 30kgs before he was diagnosed. His feet and legs were so big that he couldn't wear boxer shorts nor put shoes and socks on. Bare in mind that before all of this started he was a relatively fit guy with a 6 pack.

    After the initial diagnosis we went to see a specialist physician - they hated each other from the moment they met and that kind of ended the treatment there. Our GP was fantastic and took up the role treating him. Unfortunately the more he tried to give up drinking the more he drank - I am sure it was psychological.

    In Nov 2009 we went on holiday to the coast. One night he woke up and couldn't move his entire right hand side of his body. Even his eye was shut closed. This lasted for 6 hours and then it went back to normal. The week after we returned, I had gone shopping preparing for Christmas when he called to say he had been vomitting. He neglected to tell me that it was blood. That was the 25th of November. When I got home he begged me not to panic until he coughed up fresh blood. We went straight to casualty and being a stupid man sometimes he discharged himself when the doctor wanted to take his blood. Shane has a pathological fear of needles.

    The following day he was so weak he couldn't really argue with me and so I took him back to the hospital. They admitted him immediately. That night the General Surgeon came to see and asked to see me alone. He said that they didn't think that Shane would make it and to start preparing for the worst. When I went back into his ward, he asked me what the doctor said and I lied and said that everything is going to be ok.

    The following day they did a biopsy and discovered that he has cirrhosis of the liver. They managed to stop the sore in his stomach that was bleeding and said that if he gave up drinking they would put him on the donar list. He was in hospital for 6 days. Shane has been sober since the 26th of November 09.

    Shane also has terrible nose bleeds and to date he has had three drains to drain his ascites fluid in his stomach. He is constantly cold and his body gets very sore all the time. He sleeps for most of the day and generally since that first day when he was diagnosed with Chronic Liver disease; I prepare myself to find his body when I get home from work.

    His new doctor who is a special physician and gastroenterologist is very good but not really a people's person which means that he speaks in cryptic terms and won't really commit to saying Shane will be ok.

    I don't know if Shane will live through this - there are days when he seems fine and then there are days when he walks around like a 85 year old. I am battling with this and I don't really have anyone to talk to about it because everyone around me is trying to be supportive but the under current is - he did this too himself and your reap what you sow.

    I would love to have a baby but its too late to freeze sperm and his body is creating too much estrogen so that is kind of out the window until who knows how long.

    There are days that I am so angry and days when I think how could I have picked such a dud and then there are days that I just feel guilty. I love him so much but I resent him too and when he walks slowly or is wearing 2 jackets and its 30 degrees outside I get impatient and irritable with him.

    I know I have a choice - I can cut my losses and walk away. I know if I do this he will resume drinking until he dies. His main reason for seeking treatment and giving up drinking was for me.

    I could stay and see what happens - perhaps I will marry him and perhaps I will bury him. I am going with the first option.

    I am not really sure if there is a point to my letter except to say that you are not alone in this world even if it really feels like it. I am 32 years old, engaged to a 34 year old and every day when i phone him to see how is feeling I am always preparing myself for him not to answer the phone and for me to get home from work and find him. i think that is my biggest fear - I won't be there if he dies. My second biggest fear is - that I will be.

    Candice

     
    Old 01-16-2010, 11:40 AM   #5
    grandma2o2girls
    Member
    (female)
     
    grandma2o2girls's Avatar
     
    Join Date: Nov 2008
    Location: sacramento, ca
    Posts: 59
    grandma2o2girls HB User
    Re: husband has cirrhosis(nash)

    Candice, I am soo very sorry you and your fiance are going thru this. All I can say is that everything he is going thru, my husband went thru the exact same thing. From the nosebleeds to body bloating up. My husband was to be put on the transplant list in Feb. 09 but his body was just to far gone. I pray that your fiance makes it. It is a horrible disease and a horrible way to die. My husband drank since he was 17 and passed away at the age of 55. My husband must have been suffering alot longer than I thought. He never complained so I had no idea that he was that bad. He just wouldn't go to the doctors. But finally he had to. And it was too late. He lived for 6 months after being diagnosed.
    I will pray for the both of you that you come thru this. Please write me and let me know how he is doing, ok? You take care of yourself also.
    We were married 38 years and I am pretty well lost right now. It was a year this past Jan. 6th,2010. I am still in a daze. So I would love to hear from you.

    God Bless you both,
    Darlene

     
    Old 01-16-2010, 11:43 AM   #6
    grandma2o2girls
    Member
    (female)
     
    grandma2o2girls's Avatar
     
    Join Date: Nov 2008
    Location: sacramento, ca
    Posts: 59
    grandma2o2girls HB User
    Re: husband has cirrhosis(nash)

    Also, Candice, I am always checking on here to read new posts, so if ever you want to vent or have questions, please do not hesitate to talk to me. It helps me to be able to help someone else.
    Darlene

     
    Old 01-17-2010, 11:47 PM   #7
    Poppit
    Newbie
    (female)
     
    Poppit's Avatar
     
    Join Date: Jan 2010
    Location: South Africa
    Posts: 8
    Poppit HB User
    Re: husband has cirrhosis(nash)

    Thanks Darlene!

    Do you know how I can send you a message - I added you as a contact but that is as far as I got.

    Thanks
    Candice

     
    Old 01-18-2010, 01:05 PM   #8
    vibelady
    Newbie
    (female)
     
    vibelady's Avatar
     
    Join Date: Jan 2010
    Location: Wichita, KS USA
    Posts: 5
    vibelady HB User
    Re: husband has cirrhosis(nash)

    hjzgz,
    I know what you are going thru, my husband was diagnosed 1 1/2 years ago with stage 4 cirrhosis. They gave him 3 to 5 years. Spent the 1st year going to Mayo clinic took a lot of time, travel and money with no results.
    We now go to the Lied transplant hospital in Nebraska. He's mil 11 and you have to be 15 to get on transplant list. He some times seems like he has dementia or Alzhiemers but it is the toxins messing with his brain. He falls asleep just sitting, is crankie more than not, has a lot of pain. He has edema in both legs real bad. Takes duietics but they don't help much. He is very weak and it upsets him because he can't do the things he used to. It is very hard to watch him go thru all this and can't doing anything to make him better. I'll put you and your husband in my prayers. Vibelady

     
    Old 01-18-2010, 01:37 PM   #9
    hjzgz
    Newbie
    (female)
     
    hjzgz's Avatar
     
    Join Date: Dec 2009
    Location: bowling green,ky usa
    Posts: 9
    hjzgz HB User
    Re: husband has cirrhosis(nash)

    Quote:
    Originally Posted by hjzgz View Post
    was diagnosis 6 months ago and was told to just get his life in order, was left with what happens now and what can we expect to happen near the end, stays in coma like state lots of times but still gets up and goes thru the day????Now has lots stomach trouble??? does anybody knows whats going on ?????

     
    Old 01-18-2010, 01:58 PM   #10
    hjzgz
    Newbie
    (female)
     
    hjzgz's Avatar
     
    Join Date: Dec 2009
    Location: bowling green,ky usa
    Posts: 9
    hjzgz HB User
    Question Re: husband has cirrhosis(nash)

    Quote:
    Originally Posted by grandma2o2girls View Post
    I am so sorry to hear about your husband. I know first hand what you are going thru. My husband was diagnosed June 2008 and passed away January 2009. He was waiting for a liver transplant which he was to be put on a waiting list in February, but his body couldn't make it. My husband had lots of problems with this horrible disease. Is your husbands' stomache full of fluid? He got so large towards the end. He had pain on his side that went thru to his back. He started to pee rust colored urine then eventually didn't pee at all. His liver was shot. He hardly could walk the last month cuz how large he got. He literally had to hold his stomache up when he walked. It was horrible. He slept most of the time and started to get a bit delerious. Then one morning he told me to call 911 and so off to the hospital he went again. This time they put him on life support and tried to help him. He eventually got sepsis in his blood. They took him off the machines and he passed away about 20 mins. later. Also, he got nose bleeds alot. One time I had to take him to urgent care cuz it would not stop. They bleed badly. It has to do with the brain or something. He was losing oxygen to his brain and that is why he was getting delerious.

    I am not sure how advanced your husbands cirrohosis is, but my husbands liver was practically null. His kidneys failed and eventually all his organs failed. I know this is horrible what I am writing but like I said this is what happened. I am hoping your husbands is not advanced as much as my husbands was. His cirrohosis was caused by alcohol. I don't think my husband thought he was gonna die til like 2 months before he did. I was in denial and just thought they would "fix" him.

    I did not write this to scare you, I am just telling you my experience. I hope you will write me back. We were married 38 years and I am having a terrible time coping without him. I would like someone to talk to and hopefully be able to help you if you need to know anything.

    Take care and God Bless
    Darlene

    Also, did doctors ever mention a transplant? Please let me know.
    Hi, Sorry I'm just getting back to you. I have medical problems myself but nothing serious just enough to keep me on depression pills, so his condition doesn't help any. My husband wasn't a drinker,but he also has a blocked artery and congestive heart. His enemy was being a smoker. He has had 5 surgeries on his back and now has had a morphine pump for the last 5 years and is not eligible for a liver transplant. So far no couphing up blood or excessive edema. He has enlarged spleen from eating his blood platelets. Dr's are doing absolutely nothing and has signed his death warrant. He's starting to have blood in his stool and the only thing they are going to do is an endoscopy to check his throat, stomach,etc.We're living one day at a time and making arrangements together for him. My heart is broken as we've been married 17 yrs and I love him dearly. He's always been so very good to me , so I can't show my weakness in front of him. He still has some good days. They did put him on oxygen that helps him sleep thru the night. But I'm always afraid that he just isn't going to wake up. But I would rather him go that way than the way that you were put through. I guess the worst just still may yet to come for us. Will keep you posted!!!!HJZ

     
    Old 01-18-2010, 02:45 PM   #11
    hjzgz
    Newbie
    (female)
     
    hjzgz's Avatar
     
    Join Date: Dec 2009
    Location: bowling green,ky usa
    Posts: 9
    hjzgz HB User
    Re: husband has cirrhosis(nash)

    Dear Candice, I'm new at this but I too feel alone.John wasn't a drinker but he smoked which was another demon. He was a successul man and has taken care of me since I fell many years ago and have suffered with hip and lower back pain since. I haven't had to work since I fell and I'm still not eligilble for disalibility. He's 58 and just a few months ago got his disability.He still was always sickly. Heart trouble, congestive heart, lots of back surgeries which finally led to a morphine pump implant for 5 years now,but always a go getter. 6 months he needed a stent put in his heart valve but they couldn't do it because his blood platelets were so low. So after many tests and biopsies found he had cirrohis and was told to get his life in order because his body could not take a liver transplant. They may be doing a few more test but he's just waiting to die which we pray will be a long time. But Candice, the lord brought this man back into your life for a reason, which no one can explain, just love him through this and the rewards that you will feel , you can't even imagine. Let's keep in touch and I'll do as I do every night. I'll, write a poem in the night for you,sincerely ,your friend HJZ

    Last edited by hb-mod; 01-19-2010 at 12:22 AM. Reason: Removed Quote.

     
    Old 01-18-2010, 03:35 PM   #12
    hjzgz
    Newbie
    (female)
     
    hjzgz's Avatar
     
    Join Date: Dec 2009
    Location: bowling green,ky usa
    Posts: 9
    hjzgz HB User
    Re: husband has cirrhosis(nash)

    Hi Vibelady,
    thanks for you interest. My husband has many other health issues that keeps him off the liver transplant list. His Drs. has just sorted gave him his walking papers. He has some edema, but my dad died of cirr. and it was totally different with him than with my husband. ultimately it will end the same but Drs, are just givin meds and telling him to enjoy everyday,So we just wait. some days good, most days bad. dread when the time gets close, hope and pray he goes to sleep and rest with the lord.
    My heart breaks for you and I silently cry every night and as I told the other girl candice, I'll keep you in my prayers and write a prayer poem for you, sincerely,HJZ

    Last edited by hb-mod; 01-19-2010 at 12:23 AM. Reason: Removed Quote. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

     
    Old 01-18-2010, 11:02 PM   #13
    grandma2o2girls
    Member
    (female)
     
    grandma2o2girls's Avatar
     
    Join Date: Nov 2008
    Location: sacramento, ca
    Posts: 59
    grandma2o2girls HB User
    Question Re: husband has cirrhosis(nash)

    Hi Candice, as far as sending me a message I really have no idea except for on here. One time I put my email address on here and got in trouble for it. And, they deleted it. So I am not sure how to go about it. Hope to hear from you. I hope you are doing okay.
    Take care
    Darlene

    Last edited by hb-mod; 01-19-2010 at 12:23 AM. Reason: Removed Quote. Please use "Quick" Reply rather than "Quote" Reply. Thanks!

     
    Old 01-19-2010, 07:04 AM   #14
    vibelady
    Newbie
    (female)
     
    vibelady's Avatar
     
    Join Date: Jan 2010
    Location: Wichita, KS USA
    Posts: 5
    vibelady HB User
    Re: husband has cirrhosis(nash)

    Hello Ladies,
    I am so glad I found this site. It does me good to hear others and what they are going through. I feel so alone at times with my husbands illness. He knows he is dying and can't do much but he wants everything fixed and ready for me when he's gone. He starts home repair projects that he can't do or finish. I have paneling for my bathroom, paint for my kitchen and wood for a deck. All things he wants to get done for me before he goes, but I know they are things my son-in-law and I will do when he is gone. He just does not have the strength to do these things. He's urine is dark rust color and smells bad. He has trouble going and sometimes can't even taking diuretics. He used to wear a size 10 shoe and now gets a size 13 wide because his feet are so big. He walks so slow and this is hard for me. We both have bad backs, I have had 3 surgeries and he has had 4. I don't tell him it hurts me to walk slow it would make him feel bad. He does things sort of like sleepwalking that he doesn't remember and then say I did it. That I move his stuff or hide it from him. I know it is the diease process and not him but sometimes it still hurts. Sometimes I am the root of all evil and others I am the best wife in the world. We've been married 91/2 years. I took him for better or worse, sickness and in health and I'll be by his side forever. I love him with all my heart and he's always been good to me.
    I am so glad I found you girls and I will remember you in my prayers always
    Cyndi (Vibelady)

     
    Old 01-22-2010, 11:15 AM   #15
    Dohna
    Junior Member
    (female)
     
    Dohna's Avatar
     
    Join Date: Jan 2010
    Location: Torrance,CA
    Posts: 26
    Dohna HB User
    Re: husband has cirrhosis(nash)

    Hi my boyfriend is 42 we have been together for almost 3yrs. he has cirrhosis of thhe liver and hospis is involved. This is all new to me I want to have hope and believe that he will get better. It seems like everyone I talk to thinks this is the end. Iam so scared I love him so much and I too get angry of why did he keep on doing this to himself and to us. The way I see it , it goes to show that this is a bad disease. Iam hoping for the best. He really doesnt have anyone but me and his mother of which she is a whacko. Its very hard to deal with her. I'am fortunate that I have family and friends who are threre for us. I just don't know what to expect. Iam so sad for him thinking that he is thinking wow I did'nt think this would really happen to me and to know that you are going to die and try to accept it how can you really except it. It hurts so much to see him like this I hope there is still hope for him and that hopefully he can stay sober for a year and get a liver transplant. It also makes it hard when the doctors seem so cold regarding this disease that you would think they would understand. I only hope that if he is to go with god that it is quick I don't think I could bare to seem him suffer.

    May God bless him and lookout for him and give him another chance at life.

    Dohna

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    cirrhosis question kindra11 Liver & Pancreas Disorders 1 11-05-2008 07:03 AM
    NASH Nonalcoholic Steatohepatitis socrates2k1 Liver & Pancreas Disorders 6 07-16-2007 07:10 AM
    PLEASE HELP, is my husband going to die young? anne is asking Liver & Pancreas Disorders 9 04-19-2006 06:27 PM
    Reliability of ALT/AST readings? LBJ Liver & Pancreas Disorders 2 03-14-2005 03:50 AM
    fatty liver and cirrhosis jrace Liver & Pancreas Disorders 18 03-03-2005 11:21 AM
    NASH diagnosis LauraE25 Liver & Pancreas Disorders 7 08-13-2003 03:54 PM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 06:50 PM.





    © 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!