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I don't know where to go to next...pain always

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Old 08-06-2012, 12:42 PM   #1
Join Date: Jul 2012
Location: chicago burbs
Posts: 61
kselibrary76 HB Userkselibrary76 HB User
I don't know where to go to next...pain always


I'm Karen and having a major "IN THE VALLEY" type moment.

I have fatty liver, which should not freak me out so, but my father died of cryptogenic liver disease, and had many of the symptoms I have, so I do freak out.

Pain in right side, just below bottom rib
greasy pale stools
bone pain in extremities
Vit D deficiency
off and on generalized itching (for 5 years)

I was told to get an appt with an endocrin metabolism specialist. I did, but not until the middle of October. By then I'll either have found someone else, OR I will have lost my mind.

What do any of you do for the liver pain? I'm taking 2 capsules of milk thistle at this time (3 make me itch...allergy I think) but if I take one or two a day it isn't too bad and I seem to have less liver pain.

I'm so very scared. Watching someone you love go through liver disease with no transplant available is horrible.

Any thoughts on what to do would be appreciated.

I have an appt with my regular doc Wednesday where I plan to insist on more being done. I am fighting for an earlier appt with my gastro (who works with liver patients) to try to get things moving better too...and I'll continue to work on the endocrin.

My fatty liver was diagnosed through ultrasound, NOT bloodwork which seems to show ok, as of the last time it was checked.

Should I push for a CT scan or biopsy or what???

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