It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Liver & Pancreas Disorders Message Board

Possible End Stage Liver Disease?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 09-16-2012, 06:43 PM   #1
Join Date: Sep 2012
Location: Ga
Posts: 1
jmsk HB User
Possible End Stage Liver Disease?

My husband has had 3 bleeds since Dec 2011, he has ascites, portal hypertension and varices, he tells me that he is eating, but I'm not at home during the day so I'm not sure, muscle wasting, jaundice, it appears that he is sleeping more and he has had white stools, bleeds and bruises easily. The doctors never want to say that he is in end stage, or decompensated liver failure, or stage four. Everything I've read says he is. Like so many other people I'm very frustrated with the doctors.
Is he in end stage and what kind of time does he have? I know he gets very frustrated with me hovering over him. Any information would be helpful!

Last edited by jmsk; 09-16-2012 at 07:54 PM.

Sponsors Lightbulb
Old 09-22-2012, 01:52 AM   #2
Join Date: Sep 2012
Location: NRH Texas
Posts: 4
jim76180 HB User
Re: Possible End Stage Liver Disease?

If he is being treated by liver specialist you should know his MELD score. That will tell you what level he is at. I had all of those symptoms for nearly two years before I was considered end stage and got my liver transplant.

I feel for you and your husband. I was rushed to the emergency room multiple times near death from internal bleeding or my lungs filling up with fluid. I got my transplant April 18, 2011. My kidneys were damaged and I almost lost them. I was in the hospital for over a month.

My liver disease, NASH, ruined my life, my marriage, my career, my sanity, and forced me into bankruptcy and foreclosure. Watch for psychological problems, the toxins that are not filtered out attack the brain. My wife left me less than 6 months after the transplant.

Now my anti-rejection drugs that can run $3200 a month are damaging my kidneys, causing osteopenia, high cholesterol and high blood pressure.

Look into different transplant boards for more help.

Good luck, Jim

Last edited by jim76180; 09-22-2012 at 02:17 AM.

Closed Thread

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:57 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!