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phnuemothorax recurrence anxiety?

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Old 01-20-2012, 10:35 PM   #1
Join Date: Jan 2012
Location: dover
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gewakefie HB User
phnuemothorax recurrence anxiety?

hi everybody,

2 and a half years ago i has a spontaneous phnuemothorax on my left lung that was wrongly diagnosed in a and e as plueracy, a week later after x ray came back i got an alerting answerphone message from the hospital telling me to get in asap, lung was collapsed around 20 percent, he offered to needle out the air but i refused and it healed on its own...

i was 19, smoker, skinny - not tall

about 6 months later same lung collapsed again around 30 percent i think...

again refused tube and reinflated in around 1-2 weeks...

what i need to know guys is that its been nearly 2 years sin ce it last happened, unfortunately i havent packed in the fags yet idiot i know but plan to and have cut down alot, but i cxant stop feeling anxious to weather its gonna go again, i mean they cant give you an answer, cant an e xray pick up blebs or whatever they are? its like a ridiculous waiting game, and i dont get the re currence rates the way they are written everywhere when they say that theres a 30percent chance without treatment or after [2 years ect

so could someone please tell me what my chaces are and also, i know its SP but surely there may be an underlying cause??????

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Old 01-21-2012, 12:28 AM   #2
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Join Date: Apr 2003
Location: Winnipeg, Canada
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quincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB Userquincy HB User
Re: phnuemothorax recurrence anxiety?

The likelihood of it happening again are higher than it not happening. Tubing won't guarantee it not happening again...pleurodesis (abrasion) helps to have the lung remain in place, but if the blebs aren't sewn/removed/stapled, can collapse again.

The only thing I'd be concerned about would be that it can happen that the other lung might have blebs as well...and collapse, but that's not a guarantee.

My right lung is what collapsed.....first one happened when I was 19, the second the same year, the third a year later (30%, but it wasn't called a collapse and I was sent home to do 10 deep breaths every hour) and the final one the year after when I was 21 (80% and hospitalised). I was tubed 3 times, then had the surgery (thoracotomy, blebectomy and pleurodesis). It was a painful and long recovery...and I was informed as well that my other lung has blebs...but it never collapsed yet.

You have NO guarantees, your lung is flawed, and you might have another collapse when you least expect.

Quit smoking, you know it's a damaging habit, and you need your lungs forever.

Underlying cause....blebs. There are certain bodytypes that are more prone to them (ectomorphic) it seems...there's nothing you can to to prevent it from happening..but even though you have blebs, not all burst.

At least you know what the pain will be like, don't ignore it.

I understand your anxiety. Try to make the changes of the things you're able to...When you're "older"'ll look back as we all do and wonder why you didn't change what you should have. Sometimes it's too late and all that's left is regret.

Take good care!
It's all a matter of perspective!
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Last edited by quincy; 01-21-2012 at 12:31 AM.

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