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  • Scleroderma

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    Old 11-10-2013, 05:23 PM   #1
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    Join Date: Feb 2010
    Location: NW Indiana USA
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    My husband has Scleroderma which has caused pulmonary fibrosis. He is achy all the time and has been on oxygen for 2 1/2 years. Can anyone contact me if you have suffered or know someone who has this condition so I know what we can expect?

    Please! I need more information. Doctors are not really saying. They want him to continue being a guinea pig and keep taking medication. So far no meds have worked and we already know there is no cure.

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