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Old 11-04-2003, 09:23 PM   #1
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Join Date: Apr 2003
Location: Boston, MA, USA
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Megan31 HB User
Headache questions...

Just a quick question please any insight would be helpful...

I was diagnosed w/Lupus 3 1/2 yrs ago, and dealing with it very well, regular with doc's appts and all, and things have seemed to be regulated and fine with the occasional bad day... achy, fatigued, etc... BUT lately i've been getting very quick headaches on the top of my head, left, right and front sides. Even my roommates have commented they've noticed me grimace in pain for a few seconds or minutes, or however long they last. THey are not very long pains but it worries me after reading some previous postings about headaches... does anyone else have these types and what do you do? I am not due for a rheumy check up until mid-December and I don't want to worry my family if I come home from school for this...I used to get migranes and saw my rheumy about it, he gave me Axert to take when I felt the migranes coming on, but I have not had to take one since last winter so I'm not really dealing with any big migranes here, just small quick head pains that really get me...

Thanks for reading.

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Old 11-04-2003, 10:53 PM   #2
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Join Date: Jan 2003
Posts: 663
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Hi Megan!

The headaches may be one of two things. They could be caused by CNS Lupus, which affects the brain and/or spinal cord or it could be something called Antiphospholipid Syndrome. This is also called "Sticky blood" and one of the chief complaints with it is migraines or headaches. It is very common in people taht have Lupus. Has your Rheumy tested you for this? The blood tests are the anticardiolipin and Lupus anticoagulant. I posted in the Multiple Sclerosis forum about this disorder, please go and read it to see if you "fit" that. If the headaches continue I would get back to your GP to get that blood work done just to be safe. If it is CNS Lupus then you may need a real high dose of prednisone to kick it in the butt. I hope you feel better and headache free soon! I had headaches for years, the only thing that took them away was getting my blood thinned out. I have APS and Lupus and man, its nice to have the headaches and other Neuro symptoms better! Take care and please check out that post!


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