It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board


Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 11-14-2003, 09:22 PM   #1
Junior Member
Join Date: Nov 2003
Posts: 28
moonliteandrose HB User
Question Confused

[FONT=Georgia]About 10 yrs ago (when I was 17) my doctor suspected that I had Lupus, so tests were run. All I remember was that I was ANA+, and Photosensitive (a punch biopsy was done on my face). I was also told that I had a faint butterfly rash. Recently, I have been having a lot of fatigue and joint pain, and I still get very ill after going out in the sun. My bloodwork came back ANA + 1:320, but my sed rate is only 1. I have 1 more blood test to go to this week that the DR said will rule out Lupus. He put me on Celebrex and said that even if this next test came back positive, my course of treatment would remain the same. He also stated that if it comes back -, he will just leave my diagnosis as an autoimmune disease and I will come back for yearly checkups, or until "my organs become damaged enabling him to make a diagnosis of which disease I have." I dont understand why I am in so much pain if my sed rate is only 1. I have no idea what all this means, and would appreciate any comments!

Sponsors Lightbulb
Old 11-14-2003, 10:05 PM   #2
Senior Veteran
Join Date: Jan 2003
Posts: 663
AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Hello moonlite!

Whatever happened to "Preventative" medicine?? Geez!! I don't know why doctors ignore the symptoms AND the positive blood work. So many people showing symptoms DONT have the blood work and they can get diagnosed, yet there are people out there like you that have the positiev blood work that can't get diagnosed. Its so weird!!

Have you ever seen a Rheumatologist? I suggest that you DO NOT wait until you have something bad happen. Your blood can not be false positive because you are symptomatic so it would be worth seeing one for evaluation. If your GP does not cooperate, I would find a new one becuz you need a good GP! The sed rate does NOT always become elevated, lots of people with Lupus have a normal sed rate when there ANA is sky high. That is not the best way to diagnose Lupus anyway- the ANA is more specific. Do you know what the pattern of your ANA was? Ex/ centromere, speckled etc If you could tell me that I can help you more.

I don't think it is in your best interest for your doctor to "rule out" Lupus with a positive ANA and symptoms! Please see if you can get a Rheumatologist to see you to evaluate you properly for Lupus. And if your GP won't cooperate, please find a new one!!! Take care and welcome to the board


Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
i am so confused!!Any ideas??? marmar2007 Cancer: Breast 5 12-26-2007 09:55 PM
missing grandad so much, and so confused chelle1980 Death & Dying 2 05-03-2007 03:02 PM
TTC and so frustrated and confused. HELP ishade Trying to Conceive (TTC) 0 09-20-2006 08:57 AM
I"M SO CONFUSED!!!!!!!!!!!!!!!! mtm9138 Lymphomas 4 08-04-2005 02:05 PM
Still confused: Leep & Dysplasia Sadiwest Cancer: Cervical & Ovarian 7 01-04-2005 11:45 AM
Shoreline Can U Help Me with Something I'm VERY Confused SpinalMalady Pain Management 13 11-21-2004 09:05 PM
so confused! help please! cofused1984 Pregnancy 2 11-01-2004 11:14 AM
Anyone know the answer? JimJ Heart Disorders 0 05-01-2004 02:41 PM
im really confused about this guy so_confuzzled Teen Health 9 02-28-2004 06:35 PM
confused... 2ManyQuestions Teen Health 2 12-27-2003 06:50 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:18 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!