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Old 12-26-2003, 10:38 AM   #1
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rayofsunshine HB User
Question bloated stomach

[/FONT] [FONT=Franklin Gothic Medium]hi everyone. i have a question. i have dle and raynaulds. in the past 3 months i have had a very bloated stomoch. i have been to see the docs a couple of times, but they have said i need more fibre in my diet. well i have been eating a lot of fibre and yet i still have this problem. i am definately not pregnant, and i dont really put weight on. any one have any ideas, would be greatly apreciated. regards rayofsunshine

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Old 12-26-2003, 11:22 AM   #2
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AngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB UserAngelicBrat HB User
Re: bloated stomach

Hi Ray!

Are you on Prednisone for your DLE? I am just curious because Pred can cause bloating and all that fun stuff! If not, it could be something going on with your bowel or stomach. I have stomach inflammation and I get SO bloated!! And Irritable Bowel can cause bloating too.. it could be one of many things. What meds are you on? That might help me to figure this out Take care!!


Old 12-26-2003, 11:30 AM   #3
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rayofsunshine HB User
Smile Re: bloated stomach

hi angelic, thanks for the reply. i have never taken prednisone. i am currently taking hydroxychloroquine and warafin. i was wondering about IBS, although i do not get pain in this area. i will have to go back to docs .thanks for your time take care regards rayofsunshine

Old 01-03-2004, 04:37 PM   #4
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Re: bloated stomach

You might try changing your diet. Most obvious is no dairy, chocolate or
caffene. If that doesn't help you might check out how to cut out Gluten.
My Aunt has celiac's which is autoimmune related and she gets really bloated
if she eats anything with Glutin. Which unfortuately is in alot of stuff!!!
Good luck.

Old 01-04-2004, 08:13 PM   #5
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Christabelle67 HB User
Smile Re: bloated stomach

Hello Rayofsunshine

I'm a newbie here, my first post response...

I have had Raynaud's for a couple of years now, with Trigeminal Neuralgia also and CFS & Fibro for much longer, though only diagnosed with SLE last 2003. I also have 'bouts of celiac disease' - I say bouts because it depends on my diet then I get bouted! *chuckles* so it was a good pointer shared by both angelic and marionf to consider as being possibly related to? And also possibly connected through any medications.

Talk to your caregiver, Dr, and/or Specialist again and again (persistance pays)about the bloating to see if they can help pinpoint the cause and possibly ease the effects as soon as possible. Also ask about the medications your on and possible side effects?

I am on a low dose of prednisolone which did not give me immediate bloating effects, however I also am on anti-depressants (Avanza) to help with the anxiety I experienced immediately alongside the diagnosis. I had to change from Zoloft, and after a week I began experiencing terrible bloating in my stomach. It is not certain as yet to which medication is having such an effect as both are listed with such.

I felt like I was being pumped up like a balloon, AND you could see it *phewey* - no fun to say the least! I felt so bloated that I thought I would up and away from all that air inside me!

I've always had a shocking metabolism through an abusive diet. Raising my 4 teen age sons, I had a tendency to put everyone else high on the list of 'must feed' and neglected to apply that to myself, but recently I have had the most humungus appetite - eating, no correction - devouring every edible thing in site!

Being aware of your diet can help also. Take note or even better begin a journal of what foods you are eating, what time of day and of any effects or change in health immediately thereafter. You may find a connection to certain food groups that you can take action with. Recording your health history is also very helpful to give copies to your Dr and/or Specialists and even for your own references.

I have met some lupus folks who have adverse reactions to bean sprouts, capsicums, seafoods etc, to myself finding out that my love of HOT spicy flavoured foods were enough to bring on a lupus flare! - have since eliminated such from my 'once upon a time regular food-fix!'

I live in a very hot tropical climate here and drinking plenty of water was something I really loved doing, other than for the necessity to not dehydrate! But I have also noticed that since taking both the meds I'm on and drinking tonnes of water, that I experience this bloating feeling more over? So rather than guzzle it down like I used to it, I spread out the water in-take in more moderate amounts. Im not sure why that is so? Perhaps a water and medicine reaction when combined causes bloating? Perhaps there is too much water for the kidneys to process and it stores it in a bloated effect until it gradually gets it all processed? (just pondering out aloud here) Hows your water intake?

As I am gluten intolerant also, this means I have to limit if not eliminate entirely the amount of wheat I eat and/or products that contain traces of wheat etc. Its been some years now since I found out that I had Celiac Disease, as well as 2 of my sons (hereditary plays a role here for some) and as I began researching what had gluten in it, I was - ok, what doesn't then?! There are the most obvious products - cereals containing wheat, bread, cakes, desserts and then the not so obvious, soya sauce to certain sweets and candies to alcohol and beverages.

You could ask your Specialist or Dr to be checked for gluten intolerance. The most important factor in this case is being savvy with your diet, depending on one's level of effects to how you can help improve upon. You may find cutting back helps to having to cut back entirely on gluten products.

Celiac Disease can be associated to SLE.

My eldest sons Celiac is far more complicated and also involving lactose intolerance, we have had fun altering his diet at the best of times. But he quickly appreciates the immediate improvements.

Don't give up in your quest to know, eventually with your persistence, you will find out what it is and likely be able to make immediate changes and regain a sense of well-being in doing so.

(((Gentle Hugs))))

Old 04-21-2004, 06:45 PM   #6
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lupus24 HB User
Re: bloated stomach

I dont want to worry you, but it could be some type of kidney involvement. I have SLE, Systemic Lupus Erythematosus, and I'me not familiar with DLE and whether or not kidney involvment is a concern, but I do know that when I'm having protein spillage And my kidneys are on the fritz, I tend to have alot of swelling, and for whatever reason it starts with my belly. Right now I look like I'm about 4 months pregnant . ypu posted awhile ago so hopefully you've found out what going on, if not I hope I've given you some insight.


Old 04-21-2004, 08:32 PM   #7
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Re: bloated stomach

Hi, rayof sunshine. I have had IBS for years and was Dx'ed with lupus about 4 years ago. I have a whole raft of foods that have bothered me since childhood: all fried foods; fatty foods (gravies, butter, rich desserts, peanut butter); foods with seeds (sesame, raspberries, etc.), veggies with skins (tomatoes); whole milk (I used 1% or skim); all corn products; carbonated beverages; etc.

The #1 thing that helped me was greatly reducing high-fat foods. If I want a sweet, I eat something like a peppermint patty.

Metamucil helps some people with IBS, as in some people it helps the GI tract absorb water and smoothes out the cramping and bloating, etc.

You could keep a food diary, to see which foods are getting to you. And if you don't improve, or if you experience any other symptoms, maybe you should try a consult with a gastroenterologist?

Take good care & good luck with this. Hoping things go better for you!
From Vee

Old 04-22-2004, 01:44 AM   #8
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rayofsunshine HB User
Cool Re: bloated stomach

hi there ,thanks for reply. my bloating has got a little better(parping a lot less lol) , i have been back and forth to the doctors, but they seem as puzzled as me. as for kidney involvement, i do check my urine with test strips a lot , so nothing has shown up(i take you have to look for protein in your urine, for kidney involvement) also have regular blood screening. i have been waiting for a apointment with my rheumy, finally got that at the weekend(although i shall have to wait until july for that, good old british NHS, only had to wait 6 months, lol) so i shall see what he has to say about, and shall mention the ideas i have got from these posts. Anyway thanks guys for your help, when i get some answers i shall let you know. lots of love sarahx

Old 04-22-2004, 05:11 AM   #9
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Re: bloated stomach

SarahX, Sorry! In the States, Metamucil is one of those powdered bulking agents that you add to water & guzzle. It's an OTC, meaning drugstore item, no Rx required. I don't know what the brands are in the UK. Take care! Vee

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