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    Old 06-15-2004, 05:08 AM   #1
    Dee74
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    Message for AngelicBrat - blood test results

    I know you're not around right now, but I promised to post the results to my blood tests to you when I got them.. I hope things are ok with you!!

    Well, I went back to the Rheumy yesterday.. grrrrrrr. I'm SO unbelieveably ticked off right now. I HATE that man. He just sat down and told me that he "couldn't find anything wrong" with me in the blood work at all. That everything was "perfect", which he says "is a good and promising thing" (yeh, maybe to YOU, idiot) and he had NO reason whatsoever to suspect any connective tissue disease was going on. He flat out said that he couldn't help me and that there was no reason to come back to him. He said that I just needed to go to a Pain Clinic and have them help me deal with the pain. WOOHOOO!!!! Yeh I walked out of there and bawled in the car. Hubby is highly ticked off.. we both were praying that this time something would show up and point us in the right direction.

    A question.. how common is it for docs to just hand you over the blood test results?? The only reason I ask is because when we left, he asked me "are you planning to see your regular doctor anytime soon?", When I said "yeh hopefully this week", he said, "here, then give these to her". Meaning my blood work.. I didn't even have to ask for them.. just handed them right over and walked out of the room!! Ok, I guess I shouldn't complain.

    Ok, NOW I'll post the results of them.. or at least the ones that WERE NOT OK like he claimed it all is. And maybe some other possibly significant/insignificant ones. This is from Quest diagnostics. I'll post exactly what it says on the paper and then my comments.


    ANA screen EIA W/RFL titer IFA - NEGATIVE (there are NO values posted anywhere on this **** paper like I was hoping for.. nothing at all).

    Under Complete metabolic panel -
    Sodium - 145 (Normal) Reference Range 135-146
    Chloride - 110 (Normal) Reference Range 98-110
    Albumin - 4.8 (Normal) Reference Range 3.7-5.1 (this was high with the last round of tests.. was 5.5, but went back down to normal range)

    Globulin - 2.3 (Normal) Reference Range 2.2-4.2
    Albumin/Globulin ratio - 2.1 (High) Reference Range .8-2.0
    Rheumatoid Factor - 7 (Normal) Reference Range - <14
    C-Reactive Protein - .1 (Normal) Reference Range - < .8

    Lyme Disease IGG and IGM, WB
    All negative.. says all bands NONREACTIVE (doc said there was no need to even do this test since he had no reason to suspect it.. he said he only did it because I ASKED for it.. what a ****).


    Under CBC W/diff & PLT
    MCV (Mean Corpuscular Volume) - 98.4 (Normal) Reference Range - 80-100
    MCH (Mean Corpuscular Hemoglobin) - 33.2 (High) Reference Range - 27-33

    Platelet count - 101 (LOW) Reference Range 140-400 (these went down more since last tests.. were at 110. They called it Idiopathic Thrombocytopenia (sp?).


    UROGRAM W/microscopic RFX - everything just says NEGATIVE under this small section without any values typed.. except for Protein.. (TRACE) amount found.

    Then the next section starts like this..

    Color - (DK yellow) Reference Range - yellow
    Appearance - (Cloudy) Reference Range - clear
    Calcium Oxalate Crystals - (MODERATE) 6-15/HPF) Reference Range - none/few
    Bacteria - (MANY (>50/HPF) ) Reference Range - none seen
    Squamous EPI Cells - (6-10 HIGH) Reference Range - 0-5


    Ok that's it.. now from what I understand here with the urine, looks to me like I have an infection possibly? What's funny about that is that I'm ALWAYS complaining of whats FEELS like a bladder infection. I always have urgency, always have back pain, always crampy feelings after I urinate. And I told him all this, and just said that I didn't know what one thing had to do with another but felt he should know about it as well... But he said yesterday that ALL my bloodwork was perfect?? HUH? Should I point this out to my regular doc??

    I'm really annoyed that there were no ANA titers listed. I wanted to be able to compare it with the other ANA tests when I get copies from my regular doc. But since they always go through Quest, apparently no values are ever listed?? How the hell do they know if the titer has changed???????????

    I didn't get ANYWHERE with these tests.. and I just want to cry and cry and cry

     
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    Old 06-15-2004, 07:37 AM   #2
    lovemythreeguys2002
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    Re: Message for AngelicBrat - blood test results

    I'm really annoyed that there were no ANA titers listed. I wanted to be able to compare it with the other ANA tests when I get copies from my regular doc. But since they always go through Quest, apparently no values are ever listed?? How the hell do they know if the titer has changed???????????>>>>>>>>>

    Hi and ((((HUGS))))). I use Quest also, and they do run titers, IF there is something to titer.

    Your ANA was totally negative, there is nothing for them to titer, I hope this makes sense.
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    Old 06-15-2004, 07:39 AM   #3
    Dee74
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    Re: Message for AngelicBrat - blood test results

    Thanks, I understand now

     
    Old 06-15-2004, 09:15 AM   #4
    VeeJ
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    Re: Message for AngelicBrat - blood test results

    Hi, Dee74.

    Sorry to read your tale of frustration. All I can say is that I hope you can work with the things you know to be true at this moment... VERY trying, for darn sure.

    Anyway, you could browse on "idiopathic thrombocytopenia", which really means low platelets (of some kind or another---I'm not qualified to say!). "Idiopathic" simply means "of unknown origin". Maybe a cause can be determined? (Hope so.) Is this the first time you've seen this finding?

    Re: urinary irritability, I had a lot of this with very few findings, despite being sent to a urologist for awhile. I wasn't testing positive for infections, either. The discomfort and urgency was at its worst as my rashes were "on the rise". Then it subsided, only to restart with the next new rash. (I did have one bout of true stones and a total blockage---ugh! But that never recurred, so stones/grit didn't seem to be the root cause.)

    The urologist did consider interstitial cystitis but didn't test me for it, as the test requires full sedation. He did prescribe an anti-spasmodic drug that I tried briefly, with horrible results = big pain, cramping and nausea.

    Among the things that made burning & frequency worse: alcohol (I gave up totally), acid foods & beverages (tomatoes, coffee, tea, etc.), caffeine, artificial sweeteners. But with all that, I think rising inflammatory response was the likely root cause. I've been on Plaquenil for 4 years now; and the urinary problems are very mild, compared to what they once were.

    About doctors handing me test results: Yes, I've seen this, esp. with specialists sending you to another specialist or back to your GP. I was OK with it, as I'd then make a copy for my own files.

    With my best wishes to you & hopes that your doctor now narrowing their findings into something usable! Vee

     
    Old 06-16-2004, 05:20 AM   #5
    Dee74
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    Re: Message for AngelicBrat - blood test results

    Veej, the low platelets have been found with every single blood test I've had in the last 3.5 years. They'd never been low before I got "sick", or at least my old doc back home had never mentioned it and she ALWAYS mentioned anything that wasn't normal on my bloodwork, whether it was .1 below or above.. so she would have said something.

    The lowest they've dropped is 90. I was sent to a Hematologist a few weeks back and he said that he didn't believe that it had anything to do with me being sick OR the cyst that I have in my spleen, just a coincidence only. He said I needed no meds, nothing.. just to watch it and if it goes really low, then meds may be needed.

    As far as the urinary problems go, I don't know what's up with it yet. There's always something found on the urinalysis.. whether it's hematuria or protein or something. There's rarely ever any bacteria found. I have tried cutting out caffeine completely, but I just can't do it lol but I'm decreased it dramatically. I have one cup of coffee a day, and the rest of the day, I either drink water or something else that's decaf. I don't drink alcohol but maybe twice a year at most. I do use alot of artificial sweeteners - I've always done that.

    Totally off the wall here.. but, the urinary problems are ten times worse after sex. I also have endometriosis and cysts in my right ovary. Maybe that has something to do with it. If I have the big "O", omg omg omg OWIE. I'm in pain for hours afterward and feel like I have to pee constantly. My gyno is concerned that maybe the endometriosis has attached itself around my bladder or something, or possible adhesions in there. I'm having more tests next months and a possibly laparascopy. Maybe something will be found then.

    In all honesty though, I swear I'm about to just give up. Really I am. I'm so sick of being treated like a quack when certain things aren't found on the blood tests. Maybe I'll just go to the pain clinic and get hooked on drugs and just deal with it (I know that's not the case with everyone, but I know it does happen and at this point, I just don't care anymore if it happens or not). They already treat me like all I want is pain meds, but that is SO not true. I hate taking meds.. especially things that make me feel loopy. But, **** it. I just want relief that's all.

    I'm SICK of masking the pain.. find the cause, figure out a cure, or at least decrease the symptoms.

    My biggest fear?? That whatever is wrong with me isn't going to be figured out until it's too late.. the damage will be done. Then I'll just croak. Then hubby will sue the living crap out of these buttheads.

    Ok I'll shut up now.. I'm irritable as hell

     
    Old 06-16-2004, 07:52 AM   #6
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    Re: Message for AngelicBrat - blood test results

    Dee,

    In your shoes, I'd have used the really mad face =

    I can see from your latest post more reasons, though, why the rheumie (awful as his manner may have been) *may* have felt your symptoms should be worked through by other specialists, at least at this juncture.

    From what I know of cysts and endometriosis, which is only a tiny bit from a cousin's experiences, it sounds as though the drs. are putting those issues on the front burner, so to speak?

    Anyway, I sure hope you make out well with your OB/GYN & the upcoming tests. And that something can be clarified---where the pain is coming from---and help put into motion fast. Don't blame you for toying with a pain clinic, but if it's something that could just keep regenerating, you might end up in some awful endless loop.

    Please stay in touch, Dee. Hoping for your "voila moment"! Vee

    Last edited by VeeJ; 06-16-2004 at 07:55 AM.

     
    Old 06-16-2004, 08:11 AM   #7
    Dee74
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    Re: Message for AngelicBrat - blood test results

    Vee, I can't say that I'm mad at the rheumy for not figuring it out.. afterall, the blood tests didn't point him anywhere. I am however, quite ticked off at how he treated me. I mean, the expressions on his face, the arm folding and leaning up against the wall and telling me pretty much that there is NOTHING wrong with me and if there is, no one can figure it out. It was one of those things that you just had to be there to see.. I hate him, HAAAAAAAAAAAAAAAAAAATE him.

    Ya know, doctors make a buttload of money.. and I'm realizing that THAT is all they care about anymore. They don't give a d*amn about their patients and how they feel, how THEY MAKE US FEEL. Excluding my regular doc who does have an awesome bedside manner.. she's so sweet and refuses to give up. But if things aren't showing on the blood tests, I'm beginning to wonder if I AM crazy.. or maybe it is just Fibromyalgia afterall. I don't know anymore. grrrrrrrrrrrrrrrrrrrrrrrrrrrrr

    My new gyno is really nice.. She seems to want to take care of things, but of course has to go along with the insurance in the order of how things are done.. I just got insurance this past January and it requires certain things to be tried and filed with them first before the next step is taken.. even though other things have been done already, but since it wasn't filed with THEM, it just doesn't count. So I'm starting all over again.. I hope that made sense.

     
    Old 06-16-2004, 08:20 PM   #8
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    Re: Message for AngelicBrat - blood test results

    Dee74,

    Your description of that rheumie visit brought back memories. I do understand. I started dragging my husband along to key appts. You know, I was treated better when he was there with me, which just...made me madder! The looks you describe: yep. Awful. Just awful. One rheumie had a really bad rug (toupee) that made my husband nearly roll off his chair. AND a manicure, including nail polish. We howled the whole way home.

    Life takes such strange twists and turns. Starting over may, oddly, be the turning point for you, Dee. I was chagrined when I had to, but that was what was needed. Else I'd still be sitting there staring at that awful toupee & no further along. And a baaaaaad "rug" it was! from Vee

     
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