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    Old 06-15-2004, 04:33 PM   #1
    Join Date: Dec 2002
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    Sampy123 HB User

    I have spasticity in my lower legs, making walking quickly or long distances, virtually impossible. My calves are rock hard when I flex my feet, and it's not tight muscles from exercising. I have APLS and lupus, I'm not sure which condition causes this. Does anyone else have this problem?

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    Old 06-15-2004, 06:04 PM   #2
    Join Date: Jun 2004
    Location: Atlanta, GA
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    jrf5460 HB User
    Re: spasticity

    Yes I do. But I also have multiple sclerosis which causes spasticity. Do you have anymore problems with your extremities? Such as numbness, tingling, burning sensation or muscle twitching?

    I am not an alarmist and I don't want to cause you any unwarranted stress, but I've never heard of lupus causing spasticity. I am only recently diagnosed with lupus, but have had the symptoms since 1997. I may be wrong. I recommend that you keep a daily log or diary of your symptoms. List any problems you're having, what meds you take and anything out of the ordinary. I did this for about 4 months leading up to my diagnosis of MS. Doctors found the diary very helpful.

    Just a thought...
    Take care,

    Old 06-15-2004, 06:48 PM   #3
    Join Date: Dec 2002
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    Sampy123 HB User
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    Thanks for taking time to respond to my post. Boy, MS and lupus, you got a double whammy! Now that you mentioned it, in thinking back to last year, my neurologist thought I had MS, because of the symptoms I was presenting with. Numbness, tingling, burning, active white brain lesions, etc. During "flares", I would drag my hip and leg for weeks. I declined to do a spinal tap as I had one as child and vowed never to do it again. Anyway, I remembered that the antiphosholipid syndrome that I have, eerily mimics MS. The spasticity is probably coming from that. I will keep track of the symptoms and make a list of questions for the doctor. Thanks for the suggestion.


    Old 06-16-2004, 05:50 AM   #4
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    VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
    Re: spasticity


    I have only brief "herky-jerky" moments, nothing lasting for even minutes.

    I totally agree with Joe, Sampy, about keeping a diary. [Hi, Joe!]

    I'm really glad to know that you are booked to see a top specialist and am so eager to learn how you make out. Thinking of you. Always, Vee

    Old 06-16-2004, 07:29 AM   #5
    Join Date: Dec 2002
    Posts: 433
    Sampy123 HB User
    Re: spasticity

    I have those herky-jerky things too, completely uncontrollable. They're so weird!!!! Will keep you posted on my visit.


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