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    Old 04-08-2005, 12:13 PM   #1
    debjayg
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    Help/advice?

    Hi everyone - I've posted a couple of times in the past andI check in periodically to catch the latest conversations. My daughter was diagnosed last August (after 6 years - you all know the drill) She has been on Plaquenil since October and has been doing very well. A little over two weeks ago, she had some oral surgery (wisdom teeth extracted) She is now in a flare which I believe was probably brought on by both the emotional and pphysical stress of the surgery. My question is does anyone have any advice for how to get through this? Her hands, knees and feet hurt. She is having frequent urination and is generally fatugues and miserable. What do you guys do to get through a difficult flare?
    Thanks
    Debbie

     
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    Old 04-08-2005, 02:16 PM   #2
    VeeJ
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    Re: Help/advice?

    Dear Debbie,

    Did your daughter by any chance take antibiotics for the wisdom tooth extraction? Sometimes certain classes of these drugs can sit poorly with people with lupus.

    Did she ever experience urinary irritability BEFORE this? I did for years and almost every time, no evidence of infection was found. For sure, during a falreup, acid foods irritate me; ditto with caffeine, cola, carbonation, spicy foods, etc. Extra water often helps this for me.

    Have you touched base with her dr.?

    Hoping things calm down quickly for your daughter. Best wishes, Vee

     
    Old 04-08-2005, 02:42 PM   #3
    debjayg
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    Re: Help/advice?

    Thanks for the response - she has had urinary issues before with no sign of infection and yes- she was on antibiotic. We called the doctor - he told her to take some Naproxin for now and see how it goes. It breaks my heart when she gets like this - She's resting and trying to de-stress! Thanks for the help
    Debbie

     
    Old 04-08-2005, 04:57 PM   #4
    VeeJ
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    Re: Help/advice?

    Hi, again, Debbie.

    A few years before I even suspected I had lupus, my urinary irritability was so bad that I was evaluated for IC (Interstitial Cystitis).

    Although I think my irritability is lupus-related (not IC), I do find that many foods & beverages indeed irritate me.

    Maybe browsing for & printing out such a list could help your daughter a bit when her system goes off. Just a thought... Good luck! from Vee

    Last edited by moderator2; 04-08-2005 at 06:22 PM.

     
    Old 04-10-2005, 10:15 PM   #5
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    Re: Help/advice?

    I have had those symptoms- been in a flare for the past three years- it sucks...but make sure you get your daughter the proper pain medications...if she needs them. Letting the pain get out of control- I can say from personal experience- is not a good idea...leads to emotional breakdowns and creates anxiety as well as changing overall brain chemistry. Good luck. Try to help her stay as comfortable as possible- taking baths with a couple cups of epson salts can help ease inflammation and although it smells funny...IcyHot cream can also help.

     
    Old 04-11-2005, 05:01 AM   #6
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    Re: Help/advice?

    Hello and welcome oeee,

    I have noticed you have posted on a few forums. Glad to have you with us.

    One thing though I cannot understand. You have been in a flare for 3 years you say? This seems to be so wrong to me. Are you under the care of a lupus specialist? Your medications should have been sorted out for you by now. A continuous flare is not in the normal range of things. Pain is a normal thing with lupus and affects any part of our bodies, but not a constant flare. You perhaps need to make an appointment to see a new specialist if you can. You need to bring him/her up to date on what you are going through. You really have no need to be in this position.

    Just my thoughts on this. Hope you are doing a bit better today.

    goldenwings
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    Last edited by goldenwings; 04-11-2005 at 05:02 AM.

     
    Old 04-11-2005, 11:16 AM   #7
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    Re: Help/advice?

    I am under the care of a great rheumatologist, but the pain has been getting worse for the past three years....I see the doctor every month and bc it has gotten worse i now have to go in every week...he is frustrated cause i don't respond to the medications the way i should...i have been rotating medicines for years now...Now i take prednisone, lodine, trental, norvasc, neurontin, darvocet, and prozac...and it all helps...but i am still not close to being fully functional. I have been taking steroids for more than a year...i know there is a way out of this...but i am still in the process of finding the door. Thanks.

     
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