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Er diagnosed allergy and possible lupus

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Old 08-05-2005, 12:10 AM   #1
Join Date: Mar 2005
Location: london
Posts: 469
zorm HB User
Er diagnosed allergy and possible lupus

Hello all,

Already posted on here tonight. sorry was a bit alarmed cause of allergic reaction. did the right thing went to ER. I had had a sulfamide reaction it seems. Gave me a weeks worth of steriods to clear it up. .. then the docs said Have you got any family history of lupus or connective tissue disease?
This is about the eigth time i have heard this in er. They have written to my doctor asking them to hurry up and get me to see to by a rheumatologist in the next couple of weeks.

Sorry to have alarmed anyone but i did the right thing by going to er.

my head looks pretty blown up though.

zoe xx

ps . i really dont want this disease but i would rather this horrible illness had a name whatever it is.

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Old 08-05-2005, 03:42 AM   #2
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Re: Er diagnosed allergy and possible lupus

Hi, Zorm.

It's NEVER made sense to me that often our drs. treat the possibility of lupus as hush-hush. Maybe they don't want to alarm us until they are sure? Turn us into basket cases (who might call THEM all the time)? Second-guess them by reading the Internet & posting on lupus boards?

If there's even a chance someone has it, why would they want that person lounging in the sun? Taking a load of sulfa drugs without some advance warnings?

I actually stuck a "Post-It" in my purse, on top of my medical insurance card, saying "suspected lupus"---in case I fell over unconcsious on the street & was rushed to the hospital by strangers.

Have you & your dr. talked since your ER trip? How did that go?

All my best, Vee

Old 08-05-2005, 05:42 AM   #3
Join Date: Mar 2005
Location: london
Posts: 469
zorm HB User
Re: Er diagnosed allergy and possible lupus

Hey vee,

I came back from er about six hours ago. Have not been to sleep yet. i feel like i have been dragged along by a car on the motor way this last six months! I feel like crying forever im so tired and look so wretched. but enough of feeling sorry for myself. im glad i had the guts to go to a and e .
Im pretty scared of taking the steriods even in case i react to them. But the docs at a and e said if it went wrong or i got worse to come back.
they have given me a letter to give to my Doctor saying that the appointment i already have with the endocrinologist specialist should be brought forward quickly. they told me however though that they think i need to see a rheumie for definate quickly too.

Im too tired to call the doctor today. but i may do anyhow. I am going to ask for an urgent rheumie appointment with graham hughes in london. im going to tell them i will make a formal complaint if they dont as i was given a drug that i had an allergic reaction too anyway. this is going to be hard as the doc i saw two day ago told me he was referring me to no more specialists or for anymore blood tests!! when i first got sick i was having wierd allergic reactions all the time and i think its cause i was having sulfamide drugs. I was always better when i had no drugs at all.

I cant even say if its lupus still i know it may be one of the little family it belongs too. but i counted at least two thirds of the criteria off on my check list. have excess protein in my urine high white blood cell count etc etc. why the first rheumatologist did not want to chase it up who knows. whatever this is i just cant be left.
Thanks for all your support and i will keep you updated.


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