It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

I don't have lupus now????

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 12-14-2005, 01:11 PM   #1
Join Date: Dec 2005
Location: PA, about an hour and a half from Philly
Posts: 0
Francie723 HB User
I don't have lupus now????

I had a question for anyone who would like to help. I was diagnosed with lupus in May 2001, have had flareups and all. I went to the doctor last month and my ana and anti-ana (dna???) came back negative. Completely negative. My doctor said to be happy, but I was angry and confused! Am I cured? Do I have to restrict myself like before? What does this mean? were all questions that ran through my head and now I am as confused as before. This is a hard enough disease to begin with, now I am told I am not testing for it. Huh? If anyone has any advice or has dealt with this, I would be more then grateful. Thank you!

Sponsors Lightbulb
Old 12-14-2005, 05:37 PM   #2
Senior Veteran
Join Date: Feb 2004
Posts: 5,719
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: I don't have lupus now????

Dear Francie, Hi. I'm just a patient like the others in this group. But it's my understanding (based on reading, especially Dr. Wallace's book on lupus) that anti-DNA values reflect disease activity; so when you are not in a flare, it's actually expected that the value would go way down. But it's also my understanding that this *doesn't* mean you no longer have lupus...

In other words, you should still be treated and monitored closely, on a regular basis---watched like a hawk, is my sense.

FYI, I was positive ONLY for anti-Ro; and five years out, my rheumie still demands check-ups every 4 months (down from every 3). I'm on a maintenance dose of Plaquenil. And all this WITHOUT major organ involvement... And WITHOUT anti-ds-DNA, which apparently gravitates to kidneys more than the other "anti's". AND he does full bloodwork & urine testing minimally every other visit & extra tests if he thinks I look "punk" (I'm prone to anemia).

Maybe your dr. was just trying to convey that you've responded well to treatment? Which WOULD be very good news, actually.

I hope others will chip in soon, so you'll get more input from people whose bloodwork has improved over time & treatment. Meanwhile, hang in there, OK?! Take good care, Vee

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Dr. said test positive but I don't have it yet???? kover2 Lupus 4 10-08-2008 09:33 AM
Diagnosed with Lupus/Now I don't have it? Angie10 Lupus 19 08-15-2008 10:24 AM
I was told I don't want the diagnosis Shashy Lupus 3 01-27-2007 08:04 PM
I'm so ANGRY!!!!!!!!!!!!!!!! enigma3 Lupus 10 01-10-2007 09:10 AM
Does ANA-negative lupus exist? Blessed4Life Lupus 4 08-21-2005 06:42 AM
Need some sympathy-docs sure don't give it! Hewie Lupus 10 04-26-2005 05:59 PM
One says "no", the other says, "I don't know" jacintal72 Lupus 4 03-26-2005 08:01 AM
my blood work was fine does that mean I definitely DON'T have Lupus? shelly49 Lupus 5 04-29-2004 03:41 AM
Criteria to Diagnose Lupus AngelicBrat Immune Disorders 1 11-21-2003 04:37 AM
Tumid Lupus Erythematosus (TLE) info Mara Lupus 0 09-09-2003 04:49 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:00 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!