It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

Symptoms of SLE?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 01-16-2006, 07:10 PM   #1
Senior Member
Join Date: Jan 2006
Posts: 119
marky1956 HB User
Symptoms of SLE?

I have been having a number of different symptoms since Oct, 2005, which include.......

> Over-all blahh feeling
> Fatigued
> Ringing in my ears, especially at night
> Tired feeling in my legs (no weakness)
> Muscle twitching and some muscle pains in calves and forearms
> Some joint pains in hands, knees
> Stiffness in my ankles
> Dull, droaning pain in my lower back (non-muscular)
> Heart-burn (5-6 days a week)
> Pains in my front neck muscles & below tongue
> Troubled breathing (5-10 minutes, to 2-4 hours)
> Trouble swallowing (slight)

It's these last 3 symptoms that give me the most anxiety. My ANA levels have come back HIGH twice at 1280, with a homogeneus pattern & ESR of 13 (good). However, my ANA came back normal last week, along with negative ds-DNS, ss-DNS, and RF. I have my 1st Rhumie appointment on Feb.1st to see what the heck is going on.

To those of you with a Dx of SLE or another autoimmune disease of some sort, have you experienced symptoms of troubled breathing and/or trouble swallowing? I know these autoimmune diseases have 100's of symptoms. Thanks for your input.

Sponsors Lightbulb
Old 01-17-2006, 02:33 AM   #2
Senior Veteran
Join Date: Feb 2004
Posts: 5,719
VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: Symptoms of SLE?

Dear marky2956,

Very high ANA's are often seen in Sjogren's syndrome, which can occur "standalone" or in conjunction with lupus. Some of its symptoms are dry mouth, joint pain, dry lungs, gastritis, thick blood, possibly even SCLE rashes (SCLE = subacute cutaneous lupus), and fatigue. (I'm quoting from my lupus hardcover here = the one by Dr. Daniel Wallace. There are several out there by Dr. Robert Lahita, also very useful and thorough.)

The autoantibody most correlated with Sjogren's is *anti-Ro*---as opposed to the ones you noted (anti-ss-DNA, anti-ds-DNA, and RF). It's seen in about 70% of Sjogren's---but also in about 30% of those with SLE.

I know several women with Sjogren's, and I also know two women firsthand (including myself) with positive anti-Ro in conjunction with the SCLE "subset" of systemic lupus. So give a holler if you want...

But your rheumie appt. is obviously what counts the most here, so I hope you get established quickly and move quickly towards some useful findings. Good luck and best wishes, Vee

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Occasional strange & severe symptoms: 10 years and no diagnosis! Natja Kristy Mental Health 9 12-13-2010 09:00 PM
anyone with addisons? please read my symptoms jessmari Addison's Disease 6 04-28-2010 04:41 AM
Vertigo, other small symptoms? ljd88 Dizziness / Vertigo 4 03-04-2007 11:01 AM
Severe HypoT??? Need help w/ symptoms! greenman101 Thyroid Disorders 15 10-29-2006 02:03 PM
Different symptoms in different situations? CFD 333 Panic Disorders 5 05-02-2005 08:30 AM
Im back! TSH has no connection to symptoms. HERE'S PROOF. hypodude Thyroid Disorders 4 11-01-2004 04:39 PM
"Episode" symptoms vs1988 Thyroid Disorders 4 07-21-2004 09:58 AM
Anxiety/Alcohol and Lab Symptoms lizzy33 Inner Ear Disorders 6 02-02-2004 08:42 AM
Help! Does this sound like MVP or something else? Mom_of_two Heart Disorders 5 11-10-2003 10:05 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 03:02 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!