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Old 03-18-2006, 08:02 PM   #1
Junior Member
Join Date: Aug 2005
Posts: 16
gbmccaw HB User

Hi all, has anyone been using Cellcept??? Is this meds can really works put Lupus under control or remission the disease?? My doc really want me to be on this meds to control my lupus and I told her I think about it. My Lupus has been the same as when I was diagnosed and nothing really been changed. I'm taking 1 200 mg. of Plaquanil and 10 mg of prednisone and I am fine with that. I'm worried this new meds she put me on. I'm afraid it might cause more health problem and I'm worried of the side effect of the cellcept. Thanks all!!

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Old 03-18-2006, 10:01 PM   #2
Join Date: Apr 2005
Location: Beautiful West Virginia
Posts: 27
Langoley HB User
Re: Cellcept

Well, I chose to try Imuran before I go on CellCept. Mostly because of the cost and partly because I have taken Imuran in the past with WONDERFUL results. I think you'd probably benefit from trying something as it's not wise to stay on 10 mg of Pred for the rest of your life.
Something to think about........
Best of luck toyou,

Last edited by Langoley; 03-18-2006 at 10:03 PM. Reason: put more info in

Old 03-19-2006, 10:29 AM   #3
Junior Member
Join Date: Mar 2006
Posts: 10
lushine40 HB User
Re: Cellcept

hi there,

i question if there's no change in your condition why cellcept. cellcept is a tough drug with lots of side effects. it was created originally for kidney transplant as an anti-rejection drug. now, as in the last 5 yrs, (in canada atleast), its used for lupus nephritis. which is what i have. kidney disease due to lupus.

has ur lupus affected your kidneys?

i've been on cellcept for approx 6 wks and having a rough go of it. i have to say that i'm sensitive to meds. always have been. we're all different.

good luck, lulu

Old 03-20-2006, 10:40 AM   #4
Senior Member
Join Date: May 2004
Posts: 267
darkwater HB User
Re: Cellcept

Hi, there. I think you will find many helpful posts about Cellcept if you do a search on this board. Some people have had very good experiences with Cellcept, although it has only been a few years since doctors actively began prescribing Cellcept for lupus nephritis, so there is no long-term record yet. There are some really informative articles out there. Try the Hospital for Special Surgery web site, they have great stuff on lupus nephritis there. I found it very informative to read the prescribing information for Cellcept on the drug maker's web site, it spells out a lot about the side effects. To make her case, my doctor printed out some articles on Cellcept for me to read, and they did help.

I am in a similar situation to you. I have lupus nephrtis (membranous). I am on 200mg plaquenil and 10mg prednisone. I began with an initial dosage of 200mg plaquenil and 40mg of prednisone almost two years ago, with my prednisone being bumped down gradually. I have been on the current 10mg dosage since last fall. I have a doctor's appointment later this week, and I am anxious to see how my kidneys are doing after about 6 months at this dosage. I am also on a beta-blocker and a statin drug, which my rheumatologist says helps to protect my kidneys and cardivascular function from being further damaged by fluid retention and the elevated cholesterol levels caused by taking steroids. So far, my nephritis has mostly seemed to go into remission. My doctor wanted me to go on either Imuran or Cellcept over a year ago, but I have refused for personal reasons, namely, I wanted time to attempt a pregnancy. I am to be married Easter weekend, so unless I get some bad news at the doctor's, I guess that experiment will begin immediately!

I do know that once I make an attempt at the pregnancy thing, I will definitely agree to take some sort of immunosupressive, most likely Cellcept or Imuran. Because I do realize that long-term, the chances are that the deterioration of my kidney disease will be slowed, perhaps even put into years and years of remission by these drugs. If you read the studies, the results do lean in the direction of fewer relapses with the immunosuppresives than with the steroids. The side effects of these immunosuppressive drugs are mostly temporary (besides infertility, which is most likely permanent). Whereas, the main side effects of steroids, namely, accelerated cardiovascular disease, joint deterioration and loss of bone mass, are permanent. It's not that the steroids don't do the job, they do, but the risk/benefit ratio can be high for some people. Some do choose to stick with the steroids and do pretty well long-term. It is all such an individiual thing.

Perhaps you are like me, the image I have in my head of people who are on chemotherapy or take immunosuppresives is that it makes them sickly in their everyday life--weak, nauseous, losing hair, etc.--like cancer patients receiving treatment. This idea is what makes me want to reject taking them, that I would look and feel sick on a daily basis, when the steroids allow me to look and feel pretty normal (if fat, lol). How wrong am I about this, guys? I have read some people's messages and know that this isn't necessarily true, that some people have no or only a little sickness or that it goes away with time.

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