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  • does anybody know what no lupus inhibitor means and help with blood test results

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    Old 09-09-2006, 05:23 PM   #1
    sisters3
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    does anybody know what no lupus inhibitor means and help with blood test results



    Hi there, the reason why i am asking this is my bloods came back, of which my doctor could not understand? but i was given copies of because i am going to lupus centre soon, looking at them this was mentioned during a r lupus anticoagulant blood test which came back high it says
    R DRVTT
    R DILUTE APTT HI 1.24 RATIO
    R DAPTT+PNP HI 1.15 RATIO
    8%
    NO LUPUS INHIBITOR DETECTED BY DRVTT OR DILUTE APTT



    BORDERLINE APTT AND DILUTE APTT ?SIGNIFICANCE

    DOES THIS MAKE SENSE TO ANYBODY?

    AND SECONDLY MY FIBRINOGEN LEVEL IS LO 1.87 G/L

    TJM IS NORMAL CHOLESTEROL IS HI

    its just that i was confused and i would like to know if poss before i go to lupus centre so i have a bit of an idea of what there talking about,,,

    I thought somebody may have had similar results, as apparently i have not had half of them done yet, and it is SLE/DISCOID LUPUS what they think i have as it seems to affect my skin esp, and causes me aches and pains in bones and swellings in ankles and feet and yet my rheum arthriitus is negative??/ yet i feel like i have it though???? can anybody help at all,,, thanks

     
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    Old 09-09-2006, 05:58 PM   #2
    realisticchic
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    Re: does anybody know what no lupus inhibitor means and help with blood test results

    [url]http://www.nlm.nih.gov/medlineplus/ency/article/003653.htm[/url] this site is the only one I have found so far that lists anything about appt tests. here is what it said:
    APPT stands for Activated Partial Thromboplastin Time
    PTT stands for Partial Thromblastin Time
    It is a test that measures clotting time in blood plasma, it is used to evaluate disorders of coagulation (clotting time)
    Normal levels are 25 to 35 seconds
    I'm still searching for the DAPTT+PNP, if I find it I'll post that site as well

     
    Old 09-09-2006, 06:12 PM   #3
    realisticchic
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    Re: does anybody know what no lupus inhibitor means and help with blood test results

    me again!
    [url]http://www.bloodjournal.org/cgi/content/abstract/68/4/869[/url] this site explains what R DRVTT is. It is short for " Diluted Russel Viper Venom Test" it is another test used to diagnose Lupus anti-coagulant. this site had far to many links etc. to list.

     
    Old 09-09-2006, 06:17 PM   #4
    realisticchic
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    Re: does anybody know what no lupus inhibitor means and help with blood test results

    Finally, one site that explains everything in good detail, even the fibrinogen.Sorry I didn't find it first!

    [url]http://www.**************.org/understanding/analytes/lupus_anticoagulant/test.html[/url]

    That is all from me tonight.....

     
    Old 09-10-2006, 12:46 PM   #5
    sisters3
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    Re: does anybody know what no lupus inhibitor means and help with blood test results



    Hi realistichic,, thanks for the internet addresses, i only wish now i had not read them as it is really confusing and i am confused enough now,,,so i am not now going to bother looking up any more blood test etc as its true you have to be a specialist to understand them,,, anyway, how are you, is everything ok with you, cos i feel like crap,,, i meant to ask you before do you have or do you get fluid around your ankles, and do your calves of your legs ache,,, it seems not to be the muscle but the bone itself, for example i have been feeling very tired and worn out past few days, and legs and feet really give me grief,,so i rest them by putting them up, today i nodded off for 45 mins with kids, and when i awoke and started walking say for 5 mins they feel like i have been on them all day, or run a marathon,,,,this is really beginning to worry me as this seems to be getting worse, my skin has settled but swelling hands, fingers, feet, ankles and pain and fatigue is getting worse, today i was upset, frustrated and angry, as i am an active person, and its driving me mad not knowing whats going on with my body, can you help at all, hope to speak to you soon,,, bye for now sisters3

     
    Old 09-10-2006, 07:18 PM   #6
    realisticchic
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    Re: does anybody know what no lupus inhibitor means and help with blood test results

    Today was a bit difficult. I understand about the fatigue, I usually try to take an hour nap in the afternoon. I haven't for about a week and during that time I developed a fever, and, what I call "death fatigue". What I mean by that is, this is no ordinary, I feel tired, I stayed out to late, kind of fatigue. The Lupus fatigue, at least for me, at times is....If my house were on fire and I were on my couch 4 foot from the door, I probably wouldn't make it out. The best thing I have found for leg swelling and pain is to prop up my feet for as long as I can. I was very active physically for most of my life, even with other health problems. It has been very emotionally painful and difficult for me to adapt to having this disease. I was an outdoor type of person, I loved collecting sea shells on the beach and going hiking. I have been gainfully employed since the age of 14. Now I am afraid because I don't know what is going to happen next. Will I still be able to work/ Will I lose my independence? I have an appt. with a neurologist on the 28th and I'm afraid to go because it may bring more bad news. I know however if I don't go, and there is a problem, it could get worse.I too, hate not knowing what is happening or why. What bothers me the most is,I have always loved taking care of others, and I have been very sad lately because I haven't been able to do that as much as I want to. I feel like I have so much less to offer now. This makes me feel like I want to withdraw from everyone, but, I know that is not the right, or healthy thing to do, so I fight that feeling constantly. I keep thinking in time I will get more accustomed to this, better able to cope, but the constantly changing nature of this disease makes that a real challenge. There are no support groups in my area, so I look to places like this for help and guidance. It has been a real Godsend for me to read about what others are going through and how they are coping, grieving, and living. Just knowing you are not alone is worth more than gold. I still have trouble with the fact that there are so many people who have some form of Lupus, yet there is little to no public awareness or research done on the disease. It can be so frustrating.

     
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