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Any thoughts?

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Old 05-08-2007, 08:53 AM   #1
Join Date: Mar 2006
Location: Mt USA
Posts: 427
BlueSteam HB User
Question Any thoughts?

After suffering from a lot of joint pain and migraines for over a year and a half (among lots of other things), I saw a differant dr who orded a lot of blood work. When I got home and looked up these tests, I am pretty sure he is looking for Lupus. I had no idea that there were differant kinds of lupus. It's been over two weeks and I still haven't heard from this dr. I did look through the "sticky" posts and I have a lot of the signs and symptoms--but what I'm wondering about is my mouth--I get a lot of tingling on my tongue and lips. Has anyone had this before? It's rather annoying, but not nearly as bad as some of the other problems. I have also had a lot of plurecy(sp?) lately. It gets painful, but at least it doesn't last for more than a few hours at a time. I did at one point have a very severe allergic reaction to a med I was put on and it looks like this in itself can cause a form of lupus. I seem to become allergic to just about everything I'm put on. Right now I live on naproxen and was taking nexium for stomach pain--which was working, but now I am allergic to the nexium. Isn't there a good, strong anti-inflamatory that works without hurting the stomach?

Sorry for the long thread, and thanks for any help and advice!

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Old 05-09-2007, 05:10 AM   #2
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Re: Any thoughts?

Hi, BlueSteam. On pain relief: in your shoes I'd work with the dr. who's testing you, to be on the safe side, given that you're already taking meds (Naproxen & Nexium) & that you're still looking for answers.

That said, personally I take Plaquenil (which has some anti-inflammatory effect) & an OTC (ibuprofen). And I still hurt some many days---but the pain is not nearly as severe as it was before I was diagnosed.

About there being various kinds of lupus: I was shocked, too, at how many major groups there are: SLE, SCLE, DLE, DILE & neo-natal. Then there are many variants within those major groups. And "close cousins", too.

About turnaround time for tests: My last round took a month to come back, but due to the skin biopsy, I think.

Oops, almost forgot. My mouth tingles sometimes, too. Red wine is the #1 thing that does it, not that I consume much of that. It's not pain, either, just tingling. And I keep up on dental checkups, so it's not that either...

I hope you keep posting here. Meanwhile, good luck! Sincerely, Vee

Old 05-09-2007, 04:11 PM   #3
Join Date: Mar 2006
Location: Mt USA
Posts: 427
BlueSteam HB User
Re: Any thoughts?

Thank you for your thoughts! My primary dr has prescribed me soooo many differant meds, mostly pain killers, and also valium as a muscle relaxer. I only take that one about once a week for fear of addiction. I hate the painkillers--they don't help anyway. The one miracle pill that was given to me was for my awful headaches and migraines. It was topamax, and while the s/e's were rather unpleasant, it was a God-send. I had been mostly free from a lot of nerve pain and headaches for a long time. (I felt pretty good last monday and mowed some lawn--now I'm suffering again with headaches) When I do have a rare good day, I tend to over-do it.

I called the dr again today and he has my report written up--I just have to fax a request and they will mail me my results. Wouldn't you know, my fax is acting up, but I have a feeling I'll know something soon.

I spent a lot of time reading a lot of the threads here, and really I am shocked that my primary hasn't looked into lupus. My skin has been purplish, blotchy for so long, and I get funky little sores on my arms. I fear people will think I'm a junky, so I keep legs and arms covered. When my sores, which I had always called "itch bumps" heal, they stay purplish or brown. Does anyone know what I can use to get rid of these scars? Take Care

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