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just dx with lupus

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Old 08-29-2007, 10:10 PM   #1
Join Date: Jul 2007
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tbissell HB User
just dx with lupus

am i going to die or will i live to be 70 i am only 20 years old and tired all the time i am so scared am i going to die soon

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Old 08-30-2007, 03:35 PM   #2
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Join Date: Aug 2006
Location: southeast Indiana U.S.A.
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realisticchic HB User
Re: just dx with lupus

Lupus is treatable today, and new treatments will be on the market in a few years. All is not lost, Life is not hopeless. There are many people who were DXD at a young age a long time ago and still alive and kicking today. Really though, the answer to your question is the same for you as it is for everyone else on this Earth......none of us know the day we are going to die, you might live to be 100 and your non Lupus/healthy friend get hit by a bus tomorrow. That fact is one of the many reasons we should all live each day to the fullest, cause you never know Whenever anyone tries to be negative with me about Lupus or life expectancy I look them straight in the eye and say "yeah, I'll probably die of Lupus.......WHEN I'M 128!"

Old 08-31-2007, 07:24 AM   #3
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goldenwings HB User
Re: just dx with lupus


No sweetheart you are not going to die. I have had SLE for well over 30 years and I am still here and getting on with things. When I was first diagnosed there weren't the medications there are now, even less was know about SLE and I realised that this was something I was going to be dealing with and I thought "well, I know I will be changed by what is happeneing to me, but I will fight to do the best I can". What I mean is that once I and my parents knew what was going on, we worked together with the medical teams of course to enable me to have a full life. Some of the things I had to go through seem quite barbaric now, but at the time it was the only way to go. Now there are things I cannot do, but the things I can do I try my best to do well because I am determined to.

I have other illnesses and disabilities and I help others with the same things going on, or I hope I do. I only started to speak to others about SLE about 2 1/2 years ago here, and it is the best thing I have done. I hope I can help others here and indeed I am helped just by knowing that there is someone else who understands me. It is good to talk about your feelings.

There are so many wonderful treatments now and so many medications and help. Plus the fact that the love, care and concern from people on this forum will be invaluable to you, they all know exactly how you feel whether it is scared, lonely, upset. A lot of times too you will be happy and so glad that you are here with us because we have all been where you are at the present time.

Lean on us, ask us any questions and we will do our best to answer them and give you a big hug whenever you need and want one.

Take care my love

I am not a medical doctor, I only speak from my own experience of the illnesses I discuss here.

Last edited by goldenwings; 08-31-2007 at 07:28 AM.

Old 08-31-2007, 01:36 PM   #4
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VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
Re: just dx with lupus

Hello & welcome. I want to say DITTO to the replies you've already received. With good doctors and appropriate treatment, most people can manage this disease & live full lifespans, the experts agree.

You said you were recently diagnosed. How severe did your disease get before it was Dx'ed? What medications do you take? Will you have regular follow-ups with drs. you trust?

I'm so sorry you got a diagnosis but am glad for you that you now can get the help & support you need. Hang in there, OK? I hope you post more when the mood strikes. Until then, all my best wishes. Hugs, from Vee

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