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Just dx with Hughes snyndrome (APS) (Sticky Blood) ?

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Old 10-16-2007, 01:16 PM   #1
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Just dx with Hughes snyndrome (APS) (Sticky Blood) ?

Hello everyone, today i have been dx with hughes syndrome! Up until a few months ago i had'nt even heard of it. I am so very scared to say the least, just can't believe that it can cause strokes etc! I have had several miscarriages and am to start on asprin soon to see if this helps. Any advice for a newbie with regards to medicines etc.?

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Old 10-17-2007, 02:05 PM   #2
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Re: Just dx with Hughes snyndrome (APS) (Sticky Blood) ?

Dear Wen, WELCOME. I'm sorry to read of your miscarriages, as I know how painful those are, on all levels.

There's a "sticky post" (permanent informational post) at the top of the thread list on APS---also two on lupus. I don't have personal knowledge of APS, as I've been Dx'ed only with an intermediate form of lupus (SCLE).

I think lupus books usually cover APS as well. Dr. Hughes, who did breakthrough work & for whom the syndrome is named, would be a good author to seek out.

Other people here have more direct experience & will probably chip in soon. Sorry I have so little to offer---but sending you warm wishes, Vee

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