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  • ANA positive and now hypothyroid....Lupus?

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    Old 05-11-2008, 10:12 AM   #1
    Les44
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    ANA positive and now hypothyroid....Lupus?

    Three years ago I was diagnosed with hemolytic anemia. It took about about a year but I've been in remission since. Now the hematologist says I'm ANA positive but don't have Lupus. Last week my family doc diagnosed me with hypothyroidism and has put me on synthroid. Here's the question.....
    I have growing pains/cramps in my legs and lower back. Combined with the new thyroid problem does this look like Lupus? Should I go back to the hematologist for more testing?

     
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    Old 05-12-2008, 04:13 AM   #2
    VeeJ
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    Re: ANA positive and now hypothyroid....Lupus?

    Les, Hello. I'm just a patient, obviously. From what we read of SLE, it can cause a huge variety of problems, but only certain very specific ones support the Dx of lupus. Those criteria are in a "sticky post" ( = permanent info post) at the top of the thread list. You'll see that you generally have to meet at least 4 of the 11 criteria listed, at some point (not necessarily all at once), to be Dx'ed with the *systemic* form of lupus. As I understand it, hemolytic anemia & positive ANA both fulfill separate criteria.

    That said, I bet there are probably OTHER causes for BOTH your diagnosed conditions---meaning it may be possible to have both but not have lupus. But because SLE can sometimes explain BOTH, it make senses that you ask for further discussion & evaluation (well, to my untrained mind, anyway...)

    Also, you could also ask your doctors
    (1) if they've done any of the specialized autoantibody blood tests typically done when lupus is a candidate (anti-dsn-DNA, anti-Sm, anti-Ro, anti-La, & many more). While only two appear in the criteria, there are LOTS more possible in lupus.
    (2) whether you seem to fulfill any OTHER of the criteria for lupus.
    (3) whether Synthyroid (or any other meds you're taking) might explain the pain/cramps you describe.

    If, after discussion, etc., lupus still seems to be a possibility---then, in your shoes, I'd ask to see a rheumatologist, as this is the specialist who usually "takes the lead" in diagnosing SLE. I hope something here helps some. Post again when you can, OK? Good luck & best wishes to you, Vee

     
    Old 05-12-2008, 04:20 AM   #3
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    Re: ANA positive and now hypothyroid....Lupus?

    P.S. There are some excellent lupus rheumatologist/authors whose books are in most libraries & bookstores: Dr. Daniel Wallace; Dr. Robert Lahita; and Dr. Graham Hughes.

     
    Old 05-12-2008, 09:20 AM   #4
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    Re: ANA positive and now hypothyroid....Lupus?

    les44,
    I just wanted to let you know that I had positive ANA a year ago, when I was lasted tested. It was 1:640. I went to a rhemo in Hershey who tested me for everything under the sun, and at the time, nothing showed up. So, I just had the high ANA, but no diagnosis. She said that I did not have lupus. Now I have intermittent high calcium for about 2 months now, so I just wanted to let you know that you may not have lupus, because they told me at the time that I did not.
    Good luck and keep us posted.
    mmee

     
    Old 05-12-2008, 01:32 PM   #5
    Glojer
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    Re: ANA positive and now hypothyroid....Lupus?

    I have had a positive ANA and hypothyroid. When my thyroid situation was treated and under control, the ANA count went to normal. According to one of the docs I was seeing, having the thyroid problems could have caused the positive ANA. Right now my diagnosis is UCTD/ MP. None of my blood work for lupus shows up positive and I am hoping it stays that way. I know it is very difficult to work your way through the maze and get treated but don't ever give up. Being hypothyroid can cause a lot of strange things happening in your body including muscle pain. It was when I finally felt my thyroid problems were under control that I could see progress with the CTD problems and how they were being treated.

    Glojer

     
    Old 05-17-2008, 12:59 PM   #6
    tom429
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    Re: ANA positive and now hypothyroid....Lupus?

    Yes hypothyroid can look alot like lupus as well as diabetes, the symptoms that is. Work on your meds, and you will fell much better with time.

     
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