It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

Help! I am very new to this!

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 04-24-2009, 06:52 AM   #1
Join Date: Apr 2009
Location: Marion, In. USA
Posts: 4
Bfones HB User
Help! I am very new to this!

I am just starting the process of diagnosis. All I know is that I've been sick for 5 years and have gotten the run around like most of you. I had an ANA test done four years ago and the titer was 1:80 so no one pursued it. Since then, I have become anemic and just had another ANA and the titer is now 1:640. I have some skin issues but not alot. Just a general flu-like feeling, headaches, creepy crawlies, chills and so on. I do have a gland on my neck that swells and hurts off and on.
I have an appt. with a Rheumy next Wed.

Any thoughts?


Sponsors Lightbulb
Old 04-24-2009, 10:35 AM   #2
Angel MJ
Senior Member
Join Date: Apr 2009
Location: Johannesburg
Posts: 221
Angel MJ HB User
Re: Help! I am very new to this!

i think the worst part about being sick is not having answers ... if it has a name then there are ways forward ... i was 'lucky' to have been dx quickly ... i have had the symptoms for years but going to different doctors never helped nail down SLE ... eventually i got pericarditis (heart lining inflamation) and tested positive (ANA 1:640 & double strand dna)

3% of lupus patients will always have a negative ANA (according to Dr Daniel Wallace) so it is quite common for the levels to change especially higher at times of flares or lupus activity ...
my best friend has become reasearching ... books, internet, anywhere ...
Hang in there and although scary you are definitely not alone ...
PS good luck with the rheumie and look on some 'lupus' sites re: how to prepare for a doctors appt. i found the advice invaluable as i am now having to change doctors for a while ... keep posting!

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Help me? Bunny1991 Self-injury Recovery 10 03-24-2009 11:46 AM
help please? i need some advise. Quick replys? hannaere92 Depression 2 06-15-2008 08:07 PM
In need of advice/help KillerKitten Asthma 3 02-29-2008 03:32 PM here...really need help darrenslilangel Schizophrenia 4 02-16-2008 10:47 AM
Help...I feel like I'm drowning.... m1e1b1s1 Grief & Loss 4 09-23-2006 12:43 AM
Help....I don't know what to do... m1e1b1s1 Caregivers 6 09-22-2006 04:29 PM
Need help My hubby is bipolar and won't seek more help jusbreatheOM Bipolar Disorder 1 10-20-2005 10:43 AM
I Need HELP!!!! emrose2007 Eating Disorder Recovery 2 11-18-2004 07:01 PM
Can someone help? imsolost Depression 5 05-20-2004 12:44 AM
Friends I need some help please.. autumn83175 TMJ Disorder -TemporoMandibular Joint 19 04-26-2003 06:34 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 09:37 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!