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Old 07-11-2002, 12:20 PM   #1
Senior Member
Join Date: Jul 2002
Location: Parksville B.C Canada
Posts: 237
spungy HB User
Unhappy PLEASE......SOMEBODY HELP!!!!!!!!!

I'm hoping to find some answers here!!!
I've been loosing hair and had skin rashes for a year.
I've been realy sick for 2 months now.
They have been testing my thyroid cuse i have symtoms
related too thyroid problems.All my tests are showing that my thyroid is functioning well.
I mostly have tighness in my throut ,they did say i have some kind of swelling in my thyroid.
Other symtoms i have are:
Tighness in neck
throut and tounge tremmors
hand tremmors
carpell tunnel
mood swings
swelling and numbness in face,neck and feet
i'm always cold
i have hot flashes
i feel weak
blurry vision
sesativaty to light
eye twitches
puffy red watery eyes
burning sensation in chest and arms
chest pain
shortness of breath
weird rushed out feelings
redness in hands and feet
itchy rashes back of knees and calfs
hair loss in round patches
brain fog
various shooting pain everywhere
and joint pain
They were looking at a thyroid problem untill my tests
came back that i have a high rhuematiod factor.
My doctor said it wasn't high enough to investigate but the throut specialist i was seeing wan't me to see an internal medacine specailist!!!
I'm still hoping i have a thyroid problem but now i'm scared!!!!!!!!!
I do get redness on my nose and cheeks when i go into the sun and my hair stared falling out last august after i spent alot of time tanning.
Eanyway does lupus attack your thyroid?????? i get swelling and burnig there that flares up and goes away.
I'm only just turning 25 on the 28th of july.
I'm soo scared ,i don't wan't to die ,I have two kids
5 and 3 who realy need me..I just want my life back.
I'm so afaid and alone!!

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Old 07-11-2002, 01:20 PM   #2
Junior Member
Join Date: Jul 2002
Location: Windsor Locks CT usa
Posts: 30
Kristeen HB User

I also have lupus. Both the systemic and Discoid(skin) Stay out of the sun. The way I finally got control of my life and my disease was to find out the root of my disease. It was my mother, believe it or not. It took years to figure it out. I am not saying it's your mother but somewhere in your life someone or some thing like a job that is causing you to feel negative about yourself and your life and this is your bodies way of expressing it. I finally started to figure it out after 20 years of medical tests and drugs that do all kinds of nasty things to you. Sit down and take a real hard look and see what could be doing it to you. It won't be easy but it will be worth it in the end.

Old 07-11-2002, 01:55 PM   #3
Senior Member
Join Date: Jul 2002
Location: Parksville B.C Canada
Posts: 237
spungy HB User

Do you mean my stress is causing this?????
I came from a family were my dd drank and hit my mother
When i was 15 i was in a car accident it killed my best friend and her boyfriend(infact it was nine years
ago to this day jul.11.93)I broke both of my legs and shattered my arm ,had ahead injury,and nerve damage to my wrist.I am currently stuck at home all the time with my kids and in a loveless marrage.Last year right before started loosing my hair,I fell in love with another man.This did not happen intetionaly ,he's 20 years older than me and i couldn't believe it was.My husband and i haven't been close for along time and we haven't slept together for like a year.My husband is realy self centered and is very money oriented.This other man has been the best thing thats happened to me.
He's loving caring and understanding,he's my best friend.I m such a horrible person "ive been having an affair with him"I've always hated cheaters !!!
I can't leave my husband because i have no way to support myself or my kids.I'm disabled from my car accident.I've been living with this secret forever and
this is the first time i've vented eanthing.
I can't beleive i'm aring my dirty laundry to everybody
,but maybe this is what i need.
I can't even go to a counsler because i have no way to get there.I live with guilt every day !!!
I wan't to be with the man i love but i don't want to hurt my husband or my kids.I sometimes think that yhe reason i'm sick is because God is punnishing me for my sins.I've never been so in love before and i can't live without him!!Now i'm so sick i can barely take care of myself or my kids.I can't imagine living like this .I can't even imagine being with the man i love eanymore becuse i'm so ill,I don't wan't to live.
Thanx for listenig

Old 07-11-2002, 06:13 PM   #4
Junior Member
Join Date: Jul 2002
Location: Windsor Locks CT usa
Posts: 30
Kristeen HB User

Hi Hon.
Yes, it sure sounds like you've had some stress in your life. No God is not punishing you. God loves you, no matter what. Your body is just trying to tell you You need to make some changes. I know it seems like your stuck where you are, there's no way out but there is. If you stay where you are, doing what your doing, your not going to be any good to anyone let alone your children. You do need to talk with someone and let some of this out. You need to speak your truth. Start by giving up trying to control everything and give it to God. God is the only one who can really have any control over anything. Then start by looking for the lessons in each situation for there really is a lesson. Then you can look into the mirror every day and tell yourself that you love yourself, no matter what you have done, and smile. Smile Smile. Even when you don't want to. The simple act of smiling releases endorphins, which are good chemicals into your body. The only thing in your life you can control is you and how you look and react to things. Start there.
Always with light and Blessings

Old 07-15-2002, 05:56 PM   #5
Junior Member
Join Date: Jun 2002
Location: MA
Posts: 45
Cleo68 HB User

I haven't been diagnosed with lupus, but do have myofascial pain. It's amazing what stress can do to your body... I am now on Zoloft which has helped me trememdously. I'm not saying it's a cure-all, but it has made me feel much less anxiety than I used to. No matter what is going on, you can handle it. I know it is very scary right now, but you are definitely not alone - and there are people who can help. It's frustrating to have something no one can explain - and sometimes (like in my case) people don't even believe your symptoms exist. You just have to have faith in yourself and do whatever needs to be done to face life with courage and hope. You are the master of your own destiny and you don't have to be alone.

Old 07-17-2002, 11:37 AM   #6
Join Date: Apr 2002
Location: Atlanta, GA , US
Posts: 310
scbagrrrl HB User

Spungy -
I have SLE, Rhuematoid Arthritis, Sjogren's Syndrome, Raynaud's Phenomenon and they are trying to tag me with Fibromyalgia now too. Basically, I have the autoimmune variety pack.

I was a robust, never sick person until I had a lot of stress in my life too. I was assaulted by a man who continued to stalk me for four years. I constantly lived in fear and internalized 99% of it. Two years after it started, I started having mysterious illnesses that "stumped" the doctors. A year later, I finally got the SLE diagnosis. I haven't read any scientific/medical journals about it, but I've spoken to a number of women that had similar experiences.

Hope you're feeling better -

Old 07-29-2002, 06:29 PM   #7
Junior Member
Join Date: Jul 2002
Location: Windsor Locks CT usa
Posts: 30
Kristeen HB User

Hey Spungy
thought this might help


By John O’Donohue

On the day when the weight deadens
on your shoulders and you stumble,
may the clay dance to balance you.
And when your eyes freeze behind the gray window
and the ghost of loss gets into you,
may a flock of colors, indigo, red, green and azure blue
come to awaken in you a meadow of delight.
When the canvas frays in the curach of thought
and a stain of ocean blackens beneath you,
may there come across the waters
a path of yellow moonlight to bring you safely home.
May the nourishment of the earth be yours,
may the clarity of light be yours
may the fluency of the ocean be yours,
may the protection of the ancestors be yours.
And so, may a slow wind work
these words of love around you,
an invisible cloak to mind your life.

be well

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