It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

Where to go from here?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 07-26-2002, 01:15 AM   #1
Join Date: Jul 2002
Posts: 1
LadyLilac HB User
Question Where to go from here?

Hi, new here. In a nutshell I've been dealing with what they think is Systemic Lupus, RA and possibly Ankylosing Spondylitis. They say that the diseases are similar and I could have any or all of them. I have a the elevated ANA, severe joint pain, stiffness and swelling,fatigue, sun sensitivity, etc.. the basics. I've been on Indomethacin for almost a year now (it's the only NSAID thats ever helped even a little) and 800 mgs of Plaquenil a day for 7 months. I had been doing a bit better (not so much pain and fatigue)until recently. Lately ive been in a great deal of pain in my hands, neck and spine, legs etc and mobility is terrible. Even my ribs and sternum hurt to breath. My question is this: what might my next step be? They say that Indomethacin is the strongest NSAID to be on so now what? What other meds might it be time to try? I will be seeing my doctor of course, just looking for some info before I do. Thanks in advance

"The universe is wider than our views of it"
"The universe is wider than our views of it"

Sponsors Lightbulb
Old 07-27-2002, 10:36 PM   #2
Junior Member
Join Date: Jul 2002
Posts: 26
tholavina HB User

When I was diagnosed, they had a really hard time getting me to respond to treatment. What it was coming down to was filtering my blood. Basically, a form of dialysis. They were going to put a helplock in my hand, I would come in once a week and they were going to take all my blood out (little by little of course) filter out the antibodies that were causing my problems and put my blood back in "clean". This was extreme, but my body was refusing to respond to steroids and NSAIDs. I'm not sure how much they do this anymore (this was 10 years ago) as I haven't heard of anybody else having had it done. My other option was going on...I believe, don't quote me....Cytotoxin. This was not wanted though, as I was only 13 years old and it would have made me very definately sterile. They would have filtered my blood first. Other than that, I can't tell you a whole lot.

Old 07-28-2002, 01:00 AM   #3
Join Date: Apr 2002
Location: Atlanta, GA , US
Posts: 310
scbagrrrl HB User

I don't know BUT I have always found info on meds online. *****, Ivillage, etc - I usually type in the drug name under Google and read whatever is there - you should get some good info on it that way.

Good luck, keep your chin up and keep us posted.

Old 10-10-2002, 05:30 AM   #4
Senior Member
Join Date: Sep 2002
Location: Moncks Corner, SC, usa
Posts: 114
Ceya HB User

My symptoms are very similiar but not as severe. I do not know if you have tried these but I have been on celebrex and later change me to Bextra. It was aproved last Dec. I take it 2x a day. Also transdone(spelling may be off) this helps me sleep so that I don't wake up all during the night. I recently started the plaquenil for lupus 2X a day. Hope this helps the bextra has helped my joint pain and swelling.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Pain~Sadness~Waiting~Isolating!~Where and what Now?? skych Chronic Pain 40 08-05-2008 08:07 AM
Where Do I go From Here ? Heart2Blu Relationship Health 10 02-19-2008 09:29 AM
HELP! Botox no longer working as well - where to from here??? batty Cerebral Palsy 17 04-30-2007 01:02 AM
New Here, Need Help! Where to turn? jgoldfarb Depression 2 12-29-2006 08:38 PM
Where do I start?OMG DazedandConfused Relationship Health 7 09-28-2006 07:58 AM
So this is where..... ACluelessOne Allergies 7 07-06-2005 08:21 PM
Help guys! Where do I go? barteel Pain Management 38 01-20-2005 05:03 AM
I'm losing my will to keep on going... where do I go from here? illmatix Depression 20 06-28-2004 09:08 AM
Where am I?? Twinlynn Addiction & Recovery 19 03-20-2004 08:33 AM
Sick of it all. Where was the good life? Aaron43 Depression 3 05-18-2003 05:12 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:57 PM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!