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Not again!!!

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Old 10-12-2002, 02:05 PM   #1
Join Date: Apr 2002
Location: Atlanta, GA , US
Posts: 310
scbagrrrl HB User
Unhappy Not again!!!

3 1/2 years ago, I had a nightmarish case of diarrhea that lasted more than 6 weeks. It's what eventually led to my SLE diagnosis after being pricked, poked, and prodded by more doctors than I care to see again. They ruled out Crohn's, Irritable Bowel...

I had pseudo-sushi a couple of days ago for lunch. (Grilled salmon in a sushi roll). A coworker ate the same thing I did. But the runs hit me - she's totally fine. And they are continuing just like it did several years ago. I don't want to live on Gatorade and IVdrips again and not be able to venture further than a few steps from the bathroom.

Has anyone else with SLE had a similar experience?

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Old 10-16-2002, 12:09 AM   #2
Join Date: Aug 2002
Location: Missoula,Mt. USA
Posts: 9
Dreamer33 HB User

I experienced diarhea for about a month when my symptoms were the worst, until I was diagnosed and put on prednisone. It felt like my body was trying to flush out toxins that needed to come out. I wouldn't call what I had nightmarish diarhea, except for the fact that everytime I got up or down off the toilet, I would have incredible pain in my knees. No, I don't miss those days at all.

By the way, it's been almost 3 months since my diagnosis, and I've been off prednisone for 14 days now-Yee Haw. Still have pains in my left rib area-but nothing I can't handle, they never have completely gone away(yet). I am not taking any pharmiceutical (sp?) medicine except 800mg ibu. once in a while. I am continuing to see an acupuncturist and take chinese herbs, and continue to feel better, (except for the last few PMS filled days, when drinking whiskey seemed to be a good idea, although I refrained). I have an appt to see my doctor next week to go over the blood tests I'll have done sometime this week. Will be interesting to see what they say.
I would drink Psyllium Husks in water when I had my bout with the runs and that seemed to help.
Good Luck.

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