It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board

  • Anyone Take Cyclosporine?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 10-22-2002, 04:32 AM   #1
    SJSharksLvr
    Newbie
     
    SJSharksLvr's Avatar
     
    Join Date: Oct 2002
    Location: California
    Posts: 2
    SJSharksLvr HB User
    Wink Anyone Take Cyclosporine?

    Hey there! I've been taking Cyclosporine for 8 years and was wondering if anyone else is taking it? I had severe kidney problems (never complete failure, but function at 20%)and at that time my main meds were imuran and prednisone with various other meds to combat the side effects. After using this therapy successfully for about 3 years, it stopped working for me. I gained 35 pounds of that "wonderful" water weight in 3 days. I am one big stretch mark, let me tell ya. Tried cytoxin, but couldn't complete the cycle because of a low white count. Went to Stanford where I became the ultimate human pin cushion (never thought I'd jump for joy at getting a central line!) and they thought I was going to have to have a transplant. At that time, giving cyclosporine to a non-transplant patient for nephritis was very experimental but they thought they'd try it as kind of a last resort before a transplant. Within 3 weeks, there was a huge change in my kidney function (from 24 grams of protein in the urine to 5)and I've been on it ever since. They've tried to wean me off the cyclo without success a few times. If anyone else out there is taking it, I'm curious as to how it has affected you and your lupus and if you've had any side effects from it and if you've been able to be weaned from it. I haven't yet come across any other SLE'ers who are taking this med without having a transplant. Me and my sister (who also take it for her kidneys) can't be the only ones! Thanks all!

    Sharkie

     
    Sponsors Lightbulb
       
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Can anyone diagonise...? hollychocc Open to All Other Health Topics 1 04-23-2010 04:08 PM
    Iritis/Uveitis: Is anyone dealing with this disease? Random_Woman Eye & Vision 7 12-05-2005 11:24 PM
    Has anyone actually gotten better? Wantobehealthy Acid Reflux / GERD 24 08-10-2005 08:53 PM
    Restasis anyone for dry eye? sandrae Eye & Vision 5 05-12-2004 04:26 PM
    anyone with high dosage of Aderral XR??? miteebabe ADD / ADHD 10 06-20-2003 11:29 AM
    my story...wondering if anyone relates lala88 Dental Health 2 04-22-2002 04:24 AM




    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:22 PM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!