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Old 05-04-2009, 01:02 PM   #16
Join Date: Mar 2009
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*erica* HB User
Re: question

Hi Vee,
It's odd that you brought up a cystic disease, I've had pelvic fluid from cysts that have burst that my doctor found recently, but again there was no further investigation into that.

I never have dry mouth. I've been hospitalized for dehydration several times as a child, before the lupus diagnosis, and even then my mouth never felt dry. It's just an overall feeling of extreme thirst.

I have an appointment with my rheumy wednesday and if he can't recommend a specialist I'm going to make an appointment with my gp and see what she thinks. Another odd thing is that I've had a chronic UTI for about the past six months. I'm not sure if any of these things go together or not but it seems like maybe a urologist would be a good start. Thanks for all the support Vee, I really appreciate it

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Old 05-04-2009, 02:31 PM   #17
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Re: question

"Ebuns", are you sure you've had a chronic UTI, meaning, has repeated microscopic urinalysis shown ongoing evidence of infection?

I asked like that *only* because if you have symptoms but no other cause can be proven, a urologist might next consider cystitis of various types: interstitial cystitis, lupus cystitis, etc. (I don't know how many kinds of cystitis there actually are---I only know those two!)

Have you been given *antibiotics* for what's been thought to be a prolonged UTI? I ask that because Dr. Wallace states in his lupus hardcover that women with lupus are particularly prone to UTI's; then, to worsen matters, many urologists & GP's prescribe *sulfa antibiotics*, which too often provoke or exacerbate lupus flares.

Good luck sorting things thru with your GP. Maybe a urologist will be next? Hope you get a plan together fast! Sending my best, V.

Old 05-04-2009, 02:35 PM   #18
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Re: question

...and to add to what VeeJ said: how do the doctors know you have a UTI? Are you having symptoms of burning when you pee and that type of stuff, or are they continually doing tests on your urine and finding bacteria?

Urinary tract infections should ONLY be treated when there are clinical symptoms (i.e. the above) or if there are signs of systemic toxicity combined with objective evidence of inflammation or infection in the urine. Otherwise, many women have bacteria in their urine WITHOUT symptoms (called asymptomatic bactiuria) and this does NOT need to be treated in anyone except for children, pregnant women and PERHAPS renal transplant patients.

As an addition to this: if a woman comes in with a minor urinary tract infection, a short course 3-5 days of antibiotics is all that is needed. There is also NO need to retest the urine at the end of the treatment! It is surprising how many doctors (both general practitioners and specialists don't know this!!!!)

Old 05-04-2009, 09:09 PM   #19
Join Date: Mar 2009
Posts: 99
*erica* HB User
Re: question

Hi Vee and Cgran,
I'm positive I've had a chronic UTI, I get a urinanalysis done along with my blood work at least once a month if not more and I've had extremely high levels of bacteria and blood in my urine on and off. Also I've had I guess what you would call "flank" pain on and off throughout all of this. With antibiotics the first time I was given ciproflaxin(a sulfa based antibiotic) for three days. It still persisted so I took it for seven days, then another seven. Finally the flank pain went away, but the blood and bacteria are still there but my doctors not continuing any treatment for it.
Thank you both for your replies

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