It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

confusing lab results

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 03-07-2003, 01:22 PM   #1
Junior Member
Join Date: Mar 2003
Location: Los Angeles
Posts: 11
stinner HB User
Question confusing lab results

In the last 3 years I have exprienced blood in my urine on 5 occations. I have been to a Urologist, Nephrologist and now a Rheumatologist. No one seems to know what is wrong with me because I have had no other symtoms. However, my ANA was positive as well as my double strand DNA - they have also found kidney cast cells in my urine as well. Each doctor just wants to send me to another doctor. Some think I have Lupus, others disagree but have no answers because my health is well. Has anyone experienced something similar? Im tired of getting shuffled around.

Thanks so much!

Sponsors Lightbulb
Old 03-09-2003, 08:28 PM   #2
Denise F
Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User

This might sound weird but do you have a job that
might consist of trucking,operating a bulldozer or
jack hammer? I ask this because all these things can
cause blood to show up in your urine.


Old 03-10-2003, 01:11 PM   #3
Junior Member
Join Date: Mar 2003
Location: Los Angeles
Posts: 11
stinner HB User

no -- I'm a graphic designer. I work in front of a computer all day...

but thanks for asking.

Old 03-29-2003, 09:48 PM   #4
Join Date: Mar 2003
Location: Lompoc, Ca. USA
Posts: 6
krotondi HB User


It's frustrating, isn't it? I have had blood in my urine since I was dx'd with SLE in 1994. Sometimes it's just a trace, other times it's >2.

I, too have seen every doc imaginable, but none can figure it out. So, it's still a mystery. My rheumy doesn't think it has anything to do with the lupus, since my kidney function is normal.

But my mother-in-law, who also has lupus, has had blood in her urine for decades, without knowing the cause.

I know this doesn't help, but wanted to let you know you're not alone.


Old 04-02-2003, 06:28 PM   #5
Junior Member
Join Date: Mar 2003
Location: Los Angeles
Posts: 11
stinner HB User

Thanks for replying. It has been very frustrating -- seeing all of these doctors and not getting any answers.

Right now I have 10-25 RBCs in my urine when the norm is 0-2. I also have hemoglobin present 4+ (whatever that means). Until I did a 24 hour urine collection that was it. I still have no other symtoms and I feel great. But the 24-hour results showed that my total volume protein was 2250, when it should be between 600-1600ml/24hr. And the protein was 182 when it should be 0-150mg/24hr.

Looks like I will be getting a kidney biopsy next even though I don't want one.

Has anyone had a biopsy in correlation to Lupus? I'm scared and sometimes I just don't want to go to the doctors anymore -- until I start to feel sick.

Thanks for any support,

Old 04-10-2003, 10:16 AM   #6
Junior Member
Join Date: Mar 2003
Location: ME, USA
Posts: 15
wowosmama HB User

Your protein is not that bad; you may be able to wait on the kidney biopsy. Eventually you will probably have to do it but I don't see the rush. They should just monitor you for the blood and the proteinuria at this point. The main thing is to keep an eye on your kidney function too. How is your BP?
About the kidney biopsy. Yeah, it's no fun but it's very quick. Be prepared for the fact that they have to get in there 3 or more times to be able to get enough of a biopsy- and it is a very uncomfortable sensation, like someone reaching in and messing with your insides-which is exactly what they're doing! If they offer you valium take it, that will help (if I ever have to do it again that's what I'll do!). Once it's done you will have to lay on your back and not get up for 6 hours. That was the hardest part for me. At first you don't want to get up, but after 3-4 hours you start to feel really sore from laying in one place. After 6 hours you can get up to go to the bathroom, but it's still pretty hard to get around for about 24 hours. It takes about 2 weeks to recover and about a month to be completely back to normal. The results can take up to 6 weeks to come back, and sometimes they are inconclusive. In my case, I had high BP, proteinuria of 3.5 grams/24 hour, and persistent hematuria. The biopsy just said "basement membrane abnormality" and trace IgA nephropathy. In other words, they don't really know yet. They keep saying it's heriditary but no one else in my immediate family has it- alot of kidney disease initially presents this way though. So, I'll probably have another biopsy sometime in the (hopefully faraway) future! I hope this helps to know that your proteinuria is not that bad. Just keep monitoring it!

Old 04-21-2003, 04:09 PM   #7
Junior Member
Join Date: Mar 2003
Location: Los Angeles
Posts: 11
stinner HB User

Thanks for the reassuring words. I am going to wait on the biopsy for now and take a break from visting doctors. It has stressed me out and I want to just enjoy life as it is now because I feel great! We always take that for granted. I don't know when I won't be able to say that anymore -- and I don't want to think about it.

I truely believe that positive thinking has something to do with the bigger picture.

I know what to look for and hopefully I will have some time before I have to worry about getting the biopsy and lab results.

Thanks again.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Steriod Use and Blood Test Results Stronginthearm Kidney Disorders 0 04-22-2010 06:55 AM
TSH and prolactin levels so confusing! Please help! holly7986 Hormone Problems 0 09-16-2008 10:53 AM
Confusing Results JKT284 Human Papillomavirus (HPV) 2 10-13-2007 03:33 PM
Recent testing confusing IsabelleJ Thyroid Disorders 6 10-06-2007 04:58 PM
Abnormal paps, dysplasia--this is so confusing! jujukitty Cancer: Cervical & Ovarian 11 07-19-2007 11:48 AM
Latest Results Confusing BamaC High Cholesterol 3 03-04-2007 11:10 PM
Lab Results very confusing cgebbie Thyroid Disorders 6 09-27-2006 09:14 AM
Blood test results are confusing Dark Stranger Blood and Blood Vessel 4 11-05-2004 01:28 AM
Confusing biopsy results - in limbo LindaMB Lymphomas 3 11-25-2003 06:38 PM
confusing colposcopy results kaesle Cancer: Cervical & Ovarian 4 10-24-2003 07:21 AM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 12:02 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!