It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

Will I ever have a full diagnosis?

Post New Thread   Closed Thread
LinkBack Thread Tools Search this Thread
Old 04-30-2003, 04:14 PM   #1
Join Date: Apr 2003
Posts: 8
Amberylie HB User
Post Will I ever have a full diagnosis?

Hello, I am posting to this board because I am sure many of you have gone through crap for years and years too. I do not have lupus, as far as labs and other things have shown. I have had a long history, but am now morbidly obese so many doctors blame my pain and fatigue on my weight. When I was a child I had a lot of upper respiratory infections and had those up to about a year ago. I started having joint pain in my wrists and fingers at the age of about 13 and would get weak and tired often. Had a borderline ANA, and in my pediatric files there is notation of my mom taking me in for concern of a butterly rash. I was thin then. I have a nice rheumatologist I saw a few years ago and am seeing now. I have my second appt. on Monday. I have arthritis in my ankles and lower spine. Bone scan showed uptake in both my wrists as well. Have to see x-rays on monday to see if there is anything there. In the last 4 years I have had a couple borderline and one low positive ANA result. My ESR is always elevated to some extent. My poor rheumy still never came to a conclusion about my diagnosis, and didn't consider the old childhood butterfly rash because it was so long ago. On mom's side (mom's mother has RA, and her mother was just diagnosed with Lupus at 84). My other great grandma who passed several years ago had Lupus as well. My rheumatoid factor is negative, but last time was one point below where it would have been a positive. I generally do not get red hot joints or anything like that. I have had symptoms of raynaud's since childhood too. I recently had an arterial doppler that showed some mild occlusive disease related to my feed and hands, so I will have to see what the rheumy has to say about that.My cholesteral has always been fine so I am not sure what is causing that. I would just like a proper diagnosis for this hodgepodge of symptoms. I don't have fibro, he checked me for that too. I am so scared I will never have a full diagnosis and proper treatment until it might be too late. Just needed to vent.

Sponsors Lightbulb
Old 04-30-2003, 06:58 PM   #2
Cadet Janice
Junior Member
Join Date: Apr 2003
Posts: 36
Cadet Janice HB User

It stinks not having a difinative diagnosis. I had my health problems from my early teens and I was told that I was just suffering from a case of typical teenager laziness. Ok great doctor huh. They did no testing then and I didn't even bother with doctors until I got with my husband and I realised I had to do sometimng. I was diagnosed with probbable Lupus 10 years ago and then this year I was positively diagnosed with Lupus. 10 freaking years. Ok whatever. I had been reciving treatment for lupus all those years but it took them this long to say yep its the wolf.

I hope the doctors figure out whats going on so they can help you out. Just don't give up. Sorry I don't have any thing earth shattering to say. But just know you are not alone.

Old 04-30-2003, 09:20 PM   #3
Denise F
Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User

Dr's can treat the symptoms with out a definite
diagnoses. In fact it could be good not to have a positive diagnoses of Lupus in your medical files.
In this day and age with all the problems with health
care if you lose your health insurance getting another
policy would be almost impossible with that little
5 letter word LUPUS. Just a thought.


Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Fibro and full time work. Juliel85 Fibromyalgia 19 02-22-2010 09:04 AM
Will you guys adopt me? Karen4you Alzheimer's Disease & Dementia 22 11-30-2009 07:55 AM
Your past will always catch up with you blp101 Bipolar Disorder 3 09-27-2009 03:24 AM
Will i ever be diagnosed??? topsy123 Fibromyalgia 7 05-10-2009 02:47 AM
Ferritin 2; Doctor will not test B12 herekittykitty Anemia 24 02-14-2009 09:01 PM
Help/Advice neededASAP -Fentanyl detox, pain pat. abused meds will need meds in futre Confused089 Abuse Support 34 07-06-2008 05:33 PM
Making Decisions That Will Effect Your Recovery trg247 Depression 89 01-23-2008 10:31 AM
Will I ever breathe again? cinting Relationship Health 29 10-03-2005 08:33 AM
Will I ever feel normal again? Brenda East Menopause 25 05-13-2005 03:03 PM

Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 04:19 AM.

Site owned and operated by HealthBoards.comô
© 1998-2018 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!