It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Lupus Message Board

  • Could it be Lupus?

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 06-06-2003, 09:59 PM   #1
    Rivera's Avatar
    Join Date: Jun 2003
    Location: St. Louis, MO, USA
    Posts: 1
    Rivera HB User
    Question Could it be Lupus?

    Hi..I am a 31 Year old female with a multitude of symptoms and no answers. For Years I have had strange episodes of chest pains which have led me to emergency rooms but no tests showed anything. Only once,about 6 years ago I thought I was having a Heart attack. The hospital finally said I had Pericarditus??(not sure if I spelled that right)They weren't sure why I had gotten it because I hadn't been ill but I was treated with prednisone, a week on, a week off for several weeks and it helped. I have also been to the hospital and doctors with strange outbreaks of hives and rashes. From the time I was 4 years old I have had severe joint pain in my knees, ankles, and wrists. So severe I could not walk. My mother took me to several specialists back then who couldn't figure out what was wrong with me. XRays showed nothing.I have dealt with the aches and pains every since then. Usually Tylenol or aspirin relieves it but sometimes not.Having this pain since childhood I think that I have grown acustomed to it,but in December it suddenly got worse..I blamed the cold weather..but it never went away. My knees and ankles ache so bad almost every day. In January I began to get overly tired and pale throughout the day and then I noticed my hair was falling out...all over..not just in one spot...but falling out alot...I began having Bowel trouble...blood in the stool..severe bloating..constipation.Bloating is with or without constipation,dizziness,ringing in my ears, a strange rash on the lower part of my arms underneath that seemed to come on with activity,the rash was big red splotches under the skin,but they come and go??? My lymphnodes in my neck were swollen for 3 months to point where you could see them by looking at me,but that finally went away,off and on shortness of breath. I have had a colonoscopy,abdominal cat scans,pelvic ultrasound,ultrasound of gall bladder,thyroid scan ,upper gi,mri of my head,chest xrays and a gazillion blood tests... My first cat scan came back with small kidney stones, cysts on my ovaries 2 and 3 cm, and a possible mass in the body/tail of the pancreas,my second cat scan(pancreatic protocol) came back okay...I had 3 weeks since December where I felt as if I was getting better. Then all of a sudden I slowly became tired,bloated,dizzy,pale,my hair was falling out again,rashes were starting to appear,my knees were achey again...I went to a rhuematologist who read my blood test results, looked at my fingernails??..made me walk across the room and then said she didn't see any signs of Lupus but gave me pamphlets on Fibromyalgia??? Oh and medicine for my stomache which gave me severe diahreah so she told me to stop taking it.... I'm not sure I am comfortable with the Fibromyalgia diagnosis..I don't hurt to the bones just ache inside and I have rashes and hair loss. I go back to see her in a week..I have not been myself now for 7 months..I have 2 active children who are tired of me being tired..I am a very active person who enjoys every inch of my life and all of a sudden I feel like it's been taken from me..I just want to feel better..I can't get through the day at work without feeling sick every day..and my hair is falling out which is traumatic to me because you can tell now...Could this be Lupus??? Even with normal blood ANA and rhuemetoid factors were all mom says I should contact The Lupus Foundation for a good Doctor who is knowledgable with Lupus...she goes to the VA so I can't see her Dr...Could all of this be Fibromyalgia..or could it be Lupus???

    Sponsors Lightbulb
    Old 06-07-2003, 10:01 AM   #2
    Join Date: Apr 2002
    Location: Jersey City, NJ
    Posts: 2,896
    zip2play HB User

    My heart is with you,

    but the post is SOOOO hard to read....maybe tomorrow!

    Old 06-07-2003, 01:18 PM   #3
    Senior Veteran
    BarbaraH's Avatar
    Join Date: May 2003
    Location: Virginia, USA
    Posts: 2,347
    BarbaraH HB UserBarbaraH HB UserBarbaraH HB UserBarbaraH HB User

    Hi, Rivera,

    I had symptoms similar to yours, but the rash and intense joint pain was over just a 3 week time period. I'd had fatigue and slow hair loss for more than a year. The red rash with raised edges was on my forearms, backs of my hands and my fingers and it did not itch. The 1st doctor I saw put me on Celebrex and all my symptoms intensified dramatically and I missed 3 weeks of work because of the symptoms and doctor appointments. At that time I could not stand up for more than 20 minutes because my legs would start to hurt a lot. The 2nd doctor was a dermatologist who biopsied the rash and his conclusion has not been borne out my life over the last 4 years since then. The 3rd doctor I saw was an internist with the empathy of a rock. He did the ANA which was unimpressive but he announced I had lupus. Normal is the ratio 1:39 or less. Mine was 1:40. At my request, he referred me to a rheumatologist (a most wonderful doctor!). The rheumy noticed my symptoms had worsened after being on Celebrex, took me off Celebrex, put me on Naprosyn, and I slowly improved. He reasoned I might have been allergic to Celebrex (it has a sulfanomide in its make-up, so if you're allergic to Sulfa, you're probably also allergic to Celebrex - I had no known allergies at that time)and said people with lupus just become allergic to things sometimes. 6 weeks later he did another ANA and it was 1:600 - more impressive. I started on Plaquinyl.

    I suggest you have your ANA retested and consider if your symptoms have worsened after you were started on a new medicine - you might be allergic to it.

    I wish you you well - Barbara

    Old 06-07-2003, 03:01 PM   #4
    Join Date: Apr 2002
    Location: Jersey City, NJ
    Posts: 2,896
    zip2play HB User

    As Barabara implied:
    First do your can go high from lots of things.

    If high, do the several Lupus specific antibody tests:
    especially the double stranded DNA test. About 5 good tests in all.
    They will confirm or deny SLE!

    I was never so happy to see NEGATIVE! (Now I guess I have to call the pain fibromyalgia, or shut up ...probably old age!)

    Old 06-14-2003, 01:20 PM   #5
    Junior Member
    xtian1's Avatar
    Join Date: Jun 2003
    Location: LA, CA, USA
    Posts: 14
    xtian1 HB User


    Please see my reply below to "PUT A NAME TO MY ILLNESS". I'd suggest retesting the ANA and having your mercury levels checked. Make sure the mercury levels are checked properly, preferably through a naturopathic Dr.

    Also, have you had your thyroids levels checked (t3, t4, tsh-must do all) ?? Also ask about a reverse T3 to check for Wilson's Syndrome. Take your temperature every morning to see if it's low. This wuld indicate a thyroid problem. Sometimes it doesn't show up on the test.

    I wish you well,


    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    could it be lupus? mtm9138 Lupus 7 02-26-2008 09:44 AM
    Could this be lupus? jenilee70 Lupus 8 04-29-2007 12:22 PM
    hi wandered if i could have some advice please floridakey77 Lupus 3 11-15-2006 02:21 PM
    could it be Lupus???????? Jamie2703 Lupus 3 09-30-2006 08:12 AM
    Could my son have lupus? princessmom68 Lupus 2 06-23-2006 08:35 PM
    Could I possibly have Lupus? missy19 Lupus 11 02-14-2006 12:01 PM
    I'm scared...could this be lupus? hivesincali Lupus 6 02-08-2006 11:19 AM
    Could I have Lupus? creinha Lupus 13 06-13-2005 06:18 PM
    Could this be Lupus? tammylew Lupus 2 12-14-2003 10:27 PM

    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off

    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 11:58 PM.

    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!