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just dx w tumid lupus

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Old 07-30-2003, 06:37 PM   #1
Join Date: Jul 2003
Location: North Port, Fl USA
Posts: 1
deniseg HB User
Post just dx w tumid lupus

I have just been dx w/ tumid lupus. I can't find any information about this form of lupis. Does anyone know anything or have this type? The symptoms I have had are pleurisy (which was a solid growth that had to be removed by thoracic surgery), achy & swollen joints, hair loss, headaches, extreme fatigue, skin rash, fever for 3 months (still occasionally) and more. This past week I have had a metallic taste in my mouth. I just started plaquenil today. All of my blood and urine tests are within normal range. Any information or where I can find some would be greatly appreciated.
Thanks, Denise

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Old 07-31-2003, 10:11 AM   #2
Denise F
Join Date: May 2002
Location: Ohio
Posts: 222
Denise F HB User

Hi, I'm a Denise too. Sorry about your Lupus. I have Lupus also.
Don't know anything about tumid lupus. Never heard of it until
someone else on this forum mentioned it a while back. Do a search on this form with Tumid Lupus. It will bring up other
mentions of that kind of lupus. I remember one of the people
listed an address to a site about tumid. Good luck to you.


Old 08-02-2003, 04:38 PM   #3
Junior Member
Join Date: Jul 2003
Location: New York NY USA
Posts: 38
ClareTee HB User

Hi Denise
I am sorry about your diagnosis but at least you are the road to treatment that will bring great improvement in your health.
Tumid lupus refers to the particular sort of skin lesions that appear different from discoid or sub acute lesions.
Like any sort of lupus skin it may have a greater or lesser number of other symptoms but this sort is more likely to have systemic symptoms.

There may or may not be any confirming blood work.
It is especially photosensitive so take the utmost care to protect yourself/avoid the sun.
If Plaquenil doesn't help enough then add Quinacrine to it ~ this can make a dramatic difference.

Do search the term for full information.

Best of luck

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