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Is this rash, Lupus on my face?

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Old 07-09-2003, 05:29 PM   #1
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Post Is this rash, Lupus on my face?

I used to get this redness on my face which i thought was rosacea. I thought I cured it cause it doesn't go red anymore. however this skin i have across my nose and going cheek to cheek is slightly raised. This patch of skin shows LARGE pores and becomes very oily over 6 hours or so. The skin towards my cheeks scar extremely easy causing me with deep and large scars. Is this butterfly pattern on my face lupus??? Is there anyway to make this patch of skin normal again? These large pores look really sick even from a few feet away!!! This raised skin also has this waxy, shiny look to it even after i wash my face a cleanser. It also feels very tender. Is this lupus?

what are some ways to diagnose lupus? i did a blood test and they say everything was normal. i know this means nothing cause i have to get tested for my ANA, right? Who should i see? a dermatologist or physician or doctor?

Other symptoms i have is uncontrolled weightloss (my throid results were normal). My blood takes forever to clot too!

Please could anyone help me. I am extremely depressed lately cause of my facial scars. I know there's nothing much that can be done to scars. but i would like to have the raised skin to turn normal.

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Old 07-09-2003, 07:38 PM   #2
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I suggest you go to a rheumatologist. Rheumatologists see many lupus patients since a main result of lupus is arthritis. A rheumy can order the blood tests (and the ANA is an important one), but lupus is often not easily diagnosed. It often takes the passage of time and what symptoms you develop to point to which auto-immune disease you might have.

Do an on-line search with "lupus symptoms" as the key words. There are 11 main symptoms and you may have lupus (or another auto-immune disease) if you have just 4 of the 11 symptoms (the butterfly rash and weight loss are 2 of them).

A friend of mine was given a prescription by her doctor for an antibiotic cream to use for the butterfly rash and it did help. The other thing that is very important is to stay out of the sun. Use a good sun screen, long sleeves, long slacks, and a big hat when outside for a little while.

Hope this bit of information helps! Barbara

Old 07-09-2003, 09:09 PM   #3
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hey, thanks for the info. that realy helped!

I'm not exactly sensitive to the sun. i guess its more psychological for me in being sensitive to it. my skin is so crappy, the sun only shows my scars to everyone.

to give u a slight idea of what the skin across my cheeks and nose look like, here's a link. I am no where that severe, but i know this is what i have in a lesser form:

Is there anyway to cure or get this away from me? i thought the large pores and raised skin was due to my oily skin or acid peels. i guess not.

so do i have to ask a dermatologist for a skin biopsy test? or do u think they could visually see it?

anyway, i'm experiencing hairloss too, aside from weight loss and crappy skin across my cheeks.

one last question.. do insurance comanies usually cover lupus' skin disease's? i understand most don't cover cosmetic stuff, but still lupus is no joke.

Old 07-10-2003, 07:43 PM   #4
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GTI, the symptoms you're experiencing could be from Lupus, but they could be from other things too. I would also suggest a rheumatologist. She/he would see the whole picture, and would probably refer you to a dermatologist. However they would also take into account your weight loss, hair loss, and other things. You could also have a thyroid problem that just wasn't diagnosed by the tests your doctor did. The rheumatologist should know what other tests to order. There should be no problem with insurance covering lupus, just as they would any other medical condition.

Does your insurance require you to get a referral to specialists? If so, you'll need to ask your primary care doctor to refer you. Also some specialists (such as dermatologist, or rheumatologist) may require that you be referred by another dr.

Don't panic. Just get to a good doctor and get it checked.


Old 07-11-2003, 02:43 PM   #5
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Hello, again,

I still suggest a rheumatologist as your best source of care and answers. As has been said, start with your primary care doctor if your insurance requires that.

I did go to a dermatologist because one of my 1st lupus symptoms was an ugly non-itchy red blotchy rash on my forearms and hands. It started with one spot on each arm, then spread as part of my allergic reaction to Celebrex that the GP put me on for my joint pain. The dermatologist was mystified, did a skin biopsy, and reported to me a week later that the biopsy report said I had an incurable, very disfiguring skin disease that usually started when the patient was a teenager (I was 48). NOT!! By then, I'd seen the rheumatologist who had the insight to notice my symptoms had worsened dramatically after I started taking Celebrex. The rheumy also recognized my rash as being a lupus-type rash. He discontinued the Celebrex. No Celebrex, no rash. Also no explanation as to why I had the initial 2 spots, but my history and elevated ANA lead him to suspect probable lupus.

Yes, insurance companies cover lupus and the diagnostic process. Call your insurance company for any specific answers.

No, there is no cure - yet. What will best help your skin are those 2 things I wrote last time: stay out of the sun, wear a good sunscreen and big hat, etc. for short trips outside.

Go see the doctor - primary or rheumy!! Barbara

Old 08-03-2003, 03:57 AM   #6
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ClareTee HB User

Is this skin condition your only symptom apart from those you mention ?
You need to see a generalist and get a referral to a dermatologist It is very hard to tell what skin conditions are from photos, some times even an expert looking at them can't tell. That picture is not very good at all, in fact I would rate it very poor for that sort of lupus skin.
The subacute cutaneous rash isn't usually like you describe , isn't usually on the face and doesn't scar.

If it isn't clear to the dermatologist what this is then a biopsy could help. With the symptoms you mention there's no reason to even suspect lupus and you would get nowhere with a rheumatologist.

There are as many bad rheumatologists as dermatologists
Mine was diagnosed at once even though it looked nothing like a full blown lesion.

They refer to dermatologists for lupus skin that doesn't respond to the meds for systemic lupus.

Good Luck

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