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Old 05-16-2009, 05:00 AM   #1
Join Date: May 2009
Posts: 4
asiancandy HB User
Need advise

Hello all, I'm new to this board. I would like to get some opinion or advise or just someone to chat with. to make things short. I've been diagnose with lupus in 2002 I've been on preds since then but off and on. I'm on it 15 mg. My lupus is making my heart rate abnormal been taking Toprol and felodipine and my doc put me on simvastatin for my cholesterol. anyway, last year I starting to swole pretty bad. its the first swollen I've experience. went to see a kidney specialist and put on Imuran for a short time then put me on cellceph and stop. then I put on rituxan and then stop now they told me my kidney is not doing so good my creatine its on 729. couple weeks ago got another blood test few days ago and my kidney doc told me I have to get on dialysis now. I told him I feel pretty good he said the damage in inside. although I feel pretty good. My urine flows I think is normal. I feel fine I was actually in bad shape last year but my kidney is not doing good. I'm going to see my doc on tuesday to discuss treatment and for dialysis. I'm scared. I don't know anybody who has experience on this. the doc told me If I don't go through this disaster might happened meaning I could die. I don't know what to do. should I get a second opinion?? I haven't yet. the doctor told me my kidney is not complately gone yet it's working weakly but they don't want to wait too long and told me they would like me to start on dialysis and put me back on rituxan. please help any advice would be helpful who ever got the same experience on this. thank you.

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Old 05-16-2009, 09:57 AM   #2
Angel MJ
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Join Date: Apr 2009
Location: Johannesburg
Posts: 221
Angel MJ HB User
Re: Need advise

hi asian candy ... welcome to the board!
not having kidney involvement myself (non dx) but wanted to offer you my support.
have you read aliconti's post 'at wits end' for other reasons she is needing to start dialysis.

if you are going to get a second opinion then please do so immediately - DO NOT WAIT ... organ involvement needs serious attention!!! the sooner you start treatment the better chance of responding well ... we all get petrified at times but then when it counts we make sure to get tough! or lean on someone really soft


Last edited by Angel MJ; 05-16-2009 at 10:00 AM.

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