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lupus and sacrioliitis

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Old 06-19-2009, 04:31 PM   #1
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lupus and sacrioliitis

I hope this makes scense. i have lupus with many overlapping autoimmune diseases, i have been complaining of low back pain and not able to walk or stand for more than 2 or so minutes this has been going on for about 3 years now which was a progressive type of pain and grew with each addtional symptoms. I had an NCV with results of abnormal slowing as being peripheal nuerapathy in both legs i found out last month that i have sacriolitiis which added to the DJD, DDD, Smorels Nodes and end plate wedging with fractures in the lower spine. my question is my latest labs results are showng progessive disease activity for my lupus and my non mobility from the extreme lumbar pain is causing many health problems, high BP, 750 tryglicerites, very low vit D just to name a few. would you recommend surgery for my back before controlling my autoimmune diseases? i feel if i had mobility i could excersize and then agressiveloy treat my diseases. HELP,,,

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Old 06-19-2009, 09:21 PM   #2
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Re: lupus and sacrioliitis

What does your rheumy say. I know there was one point when I saw a doc in lake havasu that he wouldnt touch me with a ten foot pole. Said I was not a canidate for surgery but I was also in full blown lupus flare non stop with hyperthyroid, pernisious anemia, 2 back fractures, and interstitial lung disease from lupus. It was very difficult dealing with the high intense heat there and the sun every (almost) every day. I feel for you. I would talk with your rheumy to see what he thinks. You will need him and your surgeon to be on the same page.

Old 06-20-2009, 06:41 AM   #3
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Re: lupus and sacrioliitis

Mardee, hi. I'm really sorry you have so much going on. Awful! First, I also think that your rheumie has to be deeply involved. And (just curious), do you know HOW you got the spinal fractures? I'm curious because I *think* I've read that Vitamin D deficiency affects bone mineralization.

Personally I wouldn't entertain back surgery without at least two opinions from orthopedic surgeons.

A few days ago I saw a TV show featuring patients with elusive problems. One woman had severe GI problems, screaming back pain, neuro problems, and visual disturbances. After 12 yrs, she learned she lacked IF = intrinsic factor: her Dx was pernicious anemia. Her final specialist, a rheumie, noted that severe back & GI problems are symptoms; and that a small subset of people with the condition (confusingly) have normal *iron* levels. The woman will need B-12 shots for the rest of her life.

Sorry... that story was WAY out of LEFT FIELD, huh???! But what you wrote about very low *Vitamin D* made me wonder about *its* causes & effects. In summary, in your shoes I'd definitely want multiple specialists on the same page before entertaining surgery. Post more soon, OK? Sending you my warmest wishes, Vee

Old 06-20-2009, 07:06 PM   #4
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Re: lupus and sacrioliitis

Thanks VeeJ for that info. Ive not heard of it, never really gave a second thought to my pernisous anemia before because my B12 was ok.

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