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Could this be lupus?

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Old 10-05-2009, 03:35 PM   #1
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thunderstruck HB User
Could this be lupus?

Hi everyone,

Male, 32, England. I've had about 7 years of illness now, and never really been satisfied with any diagnosis (I was labelled as having CFS as I think most are when other things have supposedly been ruled out).

- Fatigue
- Frontal headaches, feeling of "pressure" in the eyes and sinuses (currently awaiting results of a head and neck MRI)
- Swollen (not always sore) throat, occassional hoarseness, neck and shoulder pain
- Occassional swollen lymph nodes in neck (collar bone area)
- Horrible taste in mouth, halitosis, feeling of trying to swallow thick mucus, bit of a blocked nose, dry mouth
- Bad acne flare ups on face and back and very greasy skin
- Eyes feel itchy/burning - bit bloodshot
- Hot flushes, night sweats
- my ribs are tender around the sides of the body (believe this is called costochondritis?)
- nausea and random mix of dihorrhea/constipation
- tests have shown consistantly both blood and protein in my urine - fully investigated and put down as idiopathic. However I continue to have pain (in the bladder?), need to go all the time, urine smells like acetone...
- Get very, very cold hands and feet

2 years ago I randomly had acute pancreatitis followed by gallbladder removal via keyhole. Not overweight and non-drinker.

Had a rash a couple of times as well, most recently for the past few days coinciding with my symptoms increasing. < edited >

ANY advice, guidance, words of wisdom, or even spells would be most appreciated. I'm so bored of all this and just want an answer.

Thank you.

Last edited by thunderstruck; 10-05-2009 at 03:55 PM. Reason: Please don't post links to pictures, or images, per posting policy. Thanks!

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Old 10-05-2009, 06:10 PM   #2
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Location: Brielle, NJ
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heidiclouser HB User
Re: Could this be lupus? (with pics)

Sounds terrible Thunder. I don't know too much about the english medical system but is there someplace you can go to get a thorough work-up? Your symptoms sound like several things are going on which is quite common with autoimmune diseases.

Old 10-05-2009, 08:01 PM   #3
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Re: Could this be lupus?

Thunderstruck, welcome! I'm just a patient, so please take what I post in that light, OK? In your shoes I'd want to think some doctor is taking a WIDE view, considering, as one of my drs. said, a "single bullet theory". Problems may not have a single cause, but it's an obvious line of inquiry, is what he meant. In my case, I knew nothing about rheumatology, that it's a speciality that can encompass disparate symptoms.

Has a dermatologist tried to diagnose your rash? A turning point for me was my telling my GP that I really believed that my recurrent rashes correlated to my other recurrent problems AND seemed to be sun-triggered. (My rash did turn out to be lupus-specific.)

For ongoing blood in urine, have you seen a urologist? A nephrologist (kidney specialist)?

Have you read the "stickies" at the top of the thread list?

Hope you post more when you can. Meanwhile, sending warm wishes, VeeJ

Old 10-07-2009, 06:44 AM   #4
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thunderstruck HB User
Re: Could this be lupus?

Thanks so much for taking the time to reply, both of you.
I have had several blood tests etc taken at my doctor's, but nothing conclusive ever really shows up. I'm not sure if any tests for lupus specifically have been carried out.
I haven't seen a dermatologist, just my GP. I even went to a pharmacist in desperation - obviously he wasn't that much help.
I have seen a urologist, who said that my symptoms were idiopathic. Maybe if he'd taken in the wider picture...
Thanks again.

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