It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Lupus Message Board

  • Scared

  • Post New Thread   Closed Thread
    Thread Tools Search this Thread
    Old 08-03-2010, 05:04 AM   #16
    VeeJ
    Senior Veteran
    (female)
     
    Join Date: Feb 2004
    Posts: 5,711
    VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
    Re: Scared

    Whoknew, I'm so sorry to read your update on your mom's condition. Your mom & you definitely have my prayers.

    Have you discussed your latest results with the rheumie? In your shoes I'd ask how high that ANA is. Also, how high the RF is, and in what conditions other than Rheumatoid Arthritis and Lupus elevated RF is seen.

    Also, you were just tested for RF---but did you see OTHER specific tests like anti-ds-DNA, anti-Sm, anti-Ro, anti-La, anti-RNP, ETC? In other words, how extensive were the tests performed---what were the tests looking for? Lupus? RA? Anything else?

    My B-12 and Folate definitely dipped during flares.

    Bye for now, with best wishes to your mom and to you, Vee

     
    Sponsors Lightbulb
       
    Old 08-03-2010, 11:29 AM   #17
    Whoknew7
    Junior Member
    (female)
     
    Whoknew7's Avatar
     
    Join Date: Jun 2010
    Posts: 10
    Whoknew7 HB User
    Re: Scared

    Vee
    yes there is a lot of things on the paper that i got.
    There is all the Cbc results
    iron profile
    comp metabolic panel
    serum proteins
    then it has
    esr 9
    ccp ab 4.0
    ana 1:80
    anti dna 37
    anti rnp <20
    anti smith <20
    sjogrens ssa <20
    sjogrens ssb <20
    anti scl 70. <20
    jo1 antibody <20
    pm scl neg
    ra factor 21

    does that tell you anything because its all garble to me.
    i dont see b12 or folate on here anywhere.
    Grief i need a translator.

     
    Old 08-03-2010, 01:28 PM   #18
    VeeJ
    Senior Veteran
    (female)
     
    Join Date: Feb 2004
    Posts: 5,711
    VeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB UserVeeJ HB User
    Re: Scared

    Whoknew, I hope you can see your dr. in person (not over the phone). Because it's critical to understand lab results in the context of your overall symptoms, only a dr. can provide the perspective to make these numbers really meaningful. That said, in your shoes I'd especially ask about all "absolute values", meaning where fixed numbers show, not "less than's".

    ESR @ 9. This may be sed rate, which indicates inflammation. I don't know whether this value is high or not.

    CCP ab 4.0. This may be anti-cyclic citrullinated peptide, a new-ish test that can zero in on early Rheumatoid Arthritis (RA). You could ask if "ab" means abnormal, what a value of 4.0 suggests, and what the result means.

    ANA 1:80, coupled with anti-dna 37. ANA is seen in multiple conditions, but anti-DNA is considered specific to lupus, I think. I don't know what value of 37 means---whether it's high or not.

    RA factor. You could ask if 21 is high & for what conditions this result is meaningful---Lupus? RA?

    During my many appts., I tried to listen first, then ask questions about things the dr. hadn't covered. That way I didn't appear too crazed, peppering the dr. with questions the second I walked in. (Maybe I appeared crazed anyway? ) And I took brief notes as best I could. I think you're asking good questions & hope you learn more soon. And I hope you update us all when you can. With my best wishes to you & to your mom, sincerely, Vee

     
    Closed Thread

    Related Topics
    Thread Thread Starter Board Replies Last Post
    Scared to start Methotrexate MegHurts Arthritis 6 05-18-2009 04:49 PM
    Scared of others throwing up 777444b Panic Disorders 3 08-23-2008 06:02 AM
    Please! I am so scared, I just want to give up! Hamilton92 Digestive Disorders 6 09-15-2007 05:39 AM
    feeling scared/anxious snoopy63 Family & Friends of Cancer Patients 6 05-28-2007 02:12 PM
    Addiction to oppiates, I am scared. Anyone else? Need advice!!! Chaddyfriend Addiction & Recovery 10 12-01-2005 10:34 PM
    getting a PIC line next week....a little scared Roman77 Lyme Disease 12 07-22-2005 10:24 PM
    scared to go to sleep damaged Sleep Disorders 5 03-12-2004 05:54 PM
    just took pregnancy test this morning, scared Jenn_2003 Pregnancy 8 09-19-2003 04:19 PM
    I'm so scared... AnotherOne Depression 8 10-18-2002 11:53 PM

    Tags
    1:160, carpal tunnel syndrome, lupus, scared



    Thread Tools Search this Thread
    Search this Thread:

    Advanced Search

    Posting Rules
    You may not post new threads
    You may not post replies
    You may not post attachments
    You may not edit your posts

    BB code is On
    Smilies are On
    [IMG] code is Off
    HTML code is Off
    Trackbacks are Off
    Pingbacks are Off
    Refbacks are Off




    Sign Up Today!

    Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

    I want my free account

    All times are GMT -7. The time now is 04:35 AM.





    © 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
    Do not copy or redistribute in any form!