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    Old 08-03-2010, 05:04 AM   #16
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    Re: Scared

    Whoknew, I'm so sorry to read your update on your mom's condition. Your mom & you definitely have my prayers.

    Have you discussed your latest results with the rheumie? In your shoes I'd ask how high that ANA is. Also, how high the RF is, and in what conditions other than Rheumatoid Arthritis and Lupus elevated RF is seen.

    Also, you were just tested for RF---but did you see OTHER specific tests like anti-ds-DNA, anti-Sm, anti-Ro, anti-La, anti-RNP, ETC? In other words, how extensive were the tests performed---what were the tests looking for? Lupus? RA? Anything else?

    My B-12 and Folate definitely dipped during flares.

    Bye for now, with best wishes to your mom and to you, Vee

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    Old 08-03-2010, 11:29 AM   #17
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    Re: Scared

    yes there is a lot of things on the paper that i got.
    There is all the Cbc results
    iron profile
    comp metabolic panel
    serum proteins
    then it has
    esr 9
    ccp ab 4.0
    ana 1:80
    anti dna 37
    anti rnp <20
    anti smith <20
    sjogrens ssa <20
    sjogrens ssb <20
    anti scl 70. <20
    jo1 antibody <20
    pm scl neg
    ra factor 21

    does that tell you anything because its all garble to me.
    i dont see b12 or folate on here anywhere.
    Grief i need a translator.

    Old 08-03-2010, 01:28 PM   #18
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    Re: Scared

    Whoknew, I hope you can see your dr. in person (not over the phone). Because it's critical to understand lab results in the context of your overall symptoms, only a dr. can provide the perspective to make these numbers really meaningful. That said, in your shoes I'd especially ask about all "absolute values", meaning where fixed numbers show, not "less than's".

    ESR @ 9. This may be sed rate, which indicates inflammation. I don't know whether this value is high or not.

    CCP ab 4.0. This may be anti-cyclic citrullinated peptide, a new-ish test that can zero in on early Rheumatoid Arthritis (RA). You could ask if "ab" means abnormal, what a value of 4.0 suggests, and what the result means.

    ANA 1:80, coupled with anti-dna 37. ANA is seen in multiple conditions, but anti-DNA is considered specific to lupus, I think. I don't know what value of 37 means---whether it's high or not.

    RA factor. You could ask if 21 is high & for what conditions this result is meaningful---Lupus? RA?

    During my many appts., I tried to listen first, then ask questions about things the dr. hadn't covered. That way I didn't appear too crazed, peppering the dr. with questions the second I walked in. (Maybe I appeared crazed anyway? ) And I took brief notes as best I could. I think you're asking good questions & hope you learn more soon. And I hope you update us all when you can. With my best wishes to you & to your mom, sincerely, Vee

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