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01-19-2012, 08:44 AM
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#1 | Junior Member (female)
Join Date: May 2011 Location: Ottawa, On
Posts: 13
| Opinions on Pain Journal. *Long*
Hi,
So my appointment with the Rheumy is March 13th, and I have been keeping a pain journal since the end of May. I have just started adding other odd things that may or may not be relevent.
I use a Mild/Moderate/Severe pain scale, as opposed to a 1-10 (does it matter?) Where Mild is just that annoying pain, but it dose not affect my daily activity, Moderate is painful and starts to affect my daily activity, and sever is exruciating, and severly effects my daily activity.
Opinions are greatly appriciated in both how my journal is presented, and anything else you wish to add...
Also, I have not added anything over a year old, suchs as complications during both pregnancies, and other health problems I have had, should I add all of that, even if i dont remeber the dates? Im sure that my file at the doctors office is very complete (my rhumy is in the same hospital as my clinic, so I think he will have full access to all my file)... Odd things (with in the past year)
Rash around mid section and forearms
Clicking in throat
Yeast infection (first ever)
Ocular Migraines (infrequent, average 2-3 a year)
Fingers can turn pale when cold (have turned blue three times since January 6)
Frequent cold hands and feet (always feeling cold)
Dizzy spells
Nausea spells
Frequent headaches, even when taking Tylenol/naproxen
Red rash on one cheek with little white raised bumps (lasted three days)
New food allergies (apples, carrots, cherries, hazelnuts
)
Swollen lymph node in armpit
Frequent swollen lymph nodes in neck
Swollen painful bump behind ear
Extremely tired (despite sleeping 9 hours)
Losing train of thought mid sentence
Mixing up common words Pain Journal
MAY
Since May 13
Knee pain inside and outside
Right and Left wrist top and bottom
Right thumb
Left knuckles
Right and Left shoulders
Right and Left Elbows mild
Neck
Left side jaw
Left Hip
May 29
Right wrist moderate
Index finger severe.
May 31
Left wrist inside, moderate
Right wrist inside, moderate
JUNE
June 1
Right wrist moderate,
Right shoulder moderate
June 2
Full right hand and wrist,
right hip,
right shoulder
June 4-5
Left wrist
June 10
Right index finger
June 14-15
Left foot/ankle (top)
June 21
Right big toe
June 25-26
Left knee - severe,
Left ankle severe
Right shoulder mild
June 27
Right shoulder moderate
Left knee - mild
Left ankle mild
JULY
July 4-5
Left wrist
July 5-7
Right shoulder (back)
July 6-7
Left Shoulder
July 21-23
Right wrist, thumb area
July 24
Right wrist - severe
Right knee severe
left shoulder mild
July 25
Left shoulder moderate
July 27-28
Right wrist moderate
AUGUST
August 11
Right wrist moderate
August 16
Right shoulder mild
August 20
Right ankle moderate
SEPTEMBER
September 5
Right elbow, inside moderate
September 16-17
Left shoulder severe
September 18-19
Left ankle severe
September 27
Left wrist moderate
OCTOBER
October 9
Right wrist severe
October 10
Right wrist mild
October 15
Right shoulder moderate
NOVEMBER
DECEMBER
December 20 24
Left knee moderate to severe
Left shoulder moderate
Left wrist mild
December 26
Right hip moderate
December 26-29
Right shoulder severe
December 30-31
Right shoulder moderate
Left wrist moderate
JANUARY
January 1 3
Right shoulder mild
January 4
Right wrist mild
Right shoulder mild
January 5
Right shoulder - mild
Left shoulder mild
Right wrist - mild
January 6-7
Shoulder and neck area - mild
January 8
shoulder and neck area - moderate
January 7-9
Shoulder and neck area - severe
January 10-11
Shoulder and neck area - severe in morning. Moderate in evening.
January 12 -13
Shoulder and neck area - moderate in the morning, mild in the afternoon.
January 14
shoulder and neck area - moderate in the morning, severe in the afternoon
January 15
Shoulder and neck area - moderate in the morning, mild in the afternoon. Shoulder tip hurts around 4am when lying down.
January 16
Shoulder and neck area - moderate. Shoulder tip hurts around 4am when lying down.
January 17
Shoulder and neck area - moderate in the morning, mild in the afternoon. Shoulder tip hurts around 4am when lying down.
January 18
Shoulder and neck area - mild. Shoulder tip hurts around 4am when lying down.
January 19
Shoulder and neck area - mild. Days in Pain by Month
June 2011 - 11
July 2011- 11
August 2011 - 3
September 2011 - 6
October 2011 - 3
November 2011 - 0
December 2011 - 11
January 2012
February 2012
March 2012
TOTAL Days in Pain by Area
Right Shoulder - 16
Neck/ Shoulder Muscles - 13
Right Wrist - 11
Left Shoulder - 6
Left Wrist - 6
Right Hand - 3
Left Knee - 3
Left Foot/Ankle - 3
Right Hip - 2
Right Foot/Ankle - 2
Right Elbow - 1
Right Knee - 1
Left Hand - 0
Left Hip - 0
Left Elbow - 0 Previous Medical Issues
Tubes in ears as a baby
Hospitalized for pneumonia around the age of six
Frequent hospital trips for Asthma (between the ages of 7-11)
Stool sample for frequent diarrhoea, came back normal, was said to be stress related.
Borderline high blood pressure and protein in my urine with first child, born 3 weeks early.
Tachycardia, chest pains, spotting, with second pregnancy, born 6 weeks early.
o Underwent EKG (came back abnormal)
o Went to heart institute, EKG was ok, Echo was ok, slow valve pumping.
o Had legs and Lung scans for clots. (results were negative)
Kidney infection spent the day in the ER with IV and IV antibiotics, no UTI prior to
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01-21-2012, 04:37 AM
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#2 | Senior Veteran (female)
Join Date: Feb 2004
Posts: 5,711
| Re: Opinions on Pain Journal. *Long*
Bella, in your shoes I'd probably summarize everything on a single page, but stow a detailed version in my handbag for reference if dr. poses more specific questions. I say this only because my earnest efforts were met with eye-rolling & shoulder shrugging by drs. who seemed in a rush to get rid of me.
I'd probably group symptoms into categories. The sticky posts on the board provide a model, of sorts, on possible groupings. For example:
SKIN: rashes, turning blue. I'd describe each with info such as---itchy/not, appearance (color, flat/raised, size, shape), duration, scars/depigments?, possible triggers (UV light, cold temp, food, don't know).
CONSTITUTIONAL or GENERAL could include fatigue, pain, dizzy, nausea, etc.
NEURO-LIKE could include brain fog, headaches, etc.
INFECTIONS, etc.: swollen lymph glands (those might be very interesting!); yeast infection (prob. not much weight would be given to a first-ever).
Can you clarify what you mean by FOOD ALLERGIES? What happens when you eat apples, cherries, hazelnuts, and carrots? Does skin react, and have you seen an allergist? Or digestive system? Or ??? The word "allergy" may have a very specific meaning to a doctor...?
I'd avoid any supposition about cause(s), as doctors seem to hate our guessing. But if asked? Well, that's a golden opportunity to ask, Gee, could something be wrong with my immune system that causes such a wide variety of problems that come & go?
I know I sound craven, but I was blasted and cursed, so I turned to a "less is more" approach. But I hope others weigh in with their thoughts re: what worked best for them, as I may have become too cynical in my old age! Keep in touch OK? Sending all my best, Vee
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01-23-2012, 05:21 AM
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#3 | Junior Member (female)
Join Date: May 2011 Location: Ottawa, On
Posts: 13
| Re: Opinions on Pain Journal. *Long* Quote:
Originally Posted by VeeJ Bella, in your shoes I'd probably summarize everything on a single page, but stow a detailed version in my handbag for reference if dr. poses more specific questions. I say this only because my earnest efforts were met with eye-rolling & shoulder shrugging by drs. who seemed in a rush to get rid of me.
I'd probably group symptoms into categories. The sticky posts on the board provide a model, of sorts, on possible groupings. For example:
SKIN: rashes, turning blue. I'd describe each with info such as---itchy/not, appearance (color, flat/raised, size, shape), duration, scars/depigments?, possible triggers (UV light, cold temp, food, don't know).
CONSTITUTIONAL or GENERAL could include fatigue, pain, dizzy, nausea, etc.
NEURO-LIKE could include brain fog, headaches, etc.
INFECTIONS, etc.: swollen lymph glands (those might be very interesting!); yeast infection (prob. not much weight would be given to a first-ever).
Can you clarify what you mean by FOOD ALLERGIES? What happens when you eat apples, cherries, hazelnuts, and carrots? Does skin react, and have you seen an allergist? Or digestive system? Or ??? The word "allergy" may have a very specific meaning to a doctor...?
I'd avoid any supposition about cause(s), as doctors seem to hate our guessing. But if asked? Well, that's a golden opportunity to ask, Gee, could something be wrong with my immune system that causes such a wide variety of problems that come & go?
I know I sound craven, but I was blasted and cursed, so I turned to a "less is more" approach. But I hope others weigh in with their thoughts re: what worked best for them, as I may have become too cynical in my old age! Keep in touch OK? Sending all my best, Vee |
Hi Vee,
Thanks for the information! I like the idea of having a grouped summary! The food allergy so far seems to only be Oral Allergy Syndrom, My lips swell and get a bit itchy, and i can get sores in my mouth, that disapear a couple hours later. I have mentioned it to my doctor at my last appointment, and she seemed more concerned at the time on my joint pain and getting me to the specialist!
I dont tend to walk in and tell a doctor what I think, lol.. .it usually dosent bode well
However, at my last apointment, When i told my doctor that I read alot and have some ideas, she asked me what they were, to which I replied Palindromic Rheumatism, Rheumatoid Arthritis, or Lupus, (at Lupus her eyebrows went up... not sure what that means, lol) After that, she wrote up my next blood work and said we are re-running your levels, and testing for ANA, and as im sure you know in your reading, is a marker for Lupus...
And that was that. lol.
Anyway, I am usually the one who will sit and listen, but be well enough educated to know if I am being brushed off... I figure its the best of both worlds
(My Parents keep telling me I should of been a doctor, lol)
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