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  • Opinions on Pain Journal. *Long*

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    Old 01-19-2012, 08:44 AM   #1
    bella189
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    Opinions on Pain Journal. *Long*

    Hi,
    So my appointment with the Rheumy is March 13th, and I have been keeping a pain journal since the end of May. I have just started adding other odd things that may or may not be relevent.

    I use a Mild/Moderate/Severe pain scale, as opposed to a 1-10 (does it matter?) Where Mild is just that annoying pain, but it dose not affect my daily activity, Moderate is painful and starts to affect my daily activity, and sever is exruciating, and severly effects my daily activity.

    Opinions are greatly appriciated in both how my journal is presented, and anything else you wish to add...

    Also, I have not added anything over a year old, suchs as complications during both pregnancies, and other health problems I have had, should I add all of that, even if i dont remeber the dates? Im sure that my file at the doctors office is very complete (my rhumy is in the same hospital as my clinic, so I think he will have full access to all my file)...

    Odd things (with in the past year)
    • Rash around mid section and forearms
    • Clicking in throat
    • Yeast infection (first ever)
    • Ocular Migraines (infrequent, average 2-3 a year)
    • Fingers can turn pale when cold (have turned blue three times since January 6)
    • Frequent cold hands and feet (always feeling cold)
    • Dizzy spells
    • Nausea spells
    • Frequent headaches, even when taking Tylenol/naproxen
    • Red rash on one cheek with little white raised bumps (lasted three days)
    • New food allergies (apples, carrots, cherries, hazelnuts…)
    • Swollen lymph node in armpit
    • Frequent swollen lymph nodes in neck
    • Swollen painful bump behind ear
    • Extremely tired (despite sleeping 9 hours)
    • Losing train of thought mid sentence
    • Mixing up common words

    Pain Journal

    MAY

    Since May 13
    • Knee pain – inside and outside
    • Right and Left wrist – top and bottom
    • Right thumb
    • Left knuckles
    • Right and Left shoulders
    • Right and Left Elbows – mild
    • Neck
    • Left side jaw
    • Left Hip

    May 29
    • Right wrist – moderate
    • Index finger – severe.

    May 31
    • Left wrist – inside, moderate
    • Right wrist – inside, moderate

    JUNE

    June 1
    • Right wrist – moderate,
    • Right shoulder – moderate

    June 2
    • Full right hand and wrist,
    • right hip,
    • right shoulder

    June 4-5
    • Left wrist

    June 10
    • Right index finger

    June 14-15
    • Left foot/ankle (top)

    June 21
    • Right big toe

    June 25-26
    • Left knee - severe,
    • Left ankle – severe
    • Right shoulder – mild

    June 27
    • Right shoulder – moderate
    • Left knee - mild
    • Left ankle – mild

    JULY

    July 4-5
    • Left wrist

    July 5-7
    • Right shoulder (back)

    July 6-7
    • Left Shoulder

    July 21-23
    • Right wrist, thumb area

    July 24
    • Right wrist - severe
    • Right knee – severe
    • left shoulder – mild

    July 25
    • Left shoulder – moderate

    July 27-28
    • Right wrist – moderate
    AUGUST

    August 11
    • Right wrist – moderate

    August 16
    • Right shoulder – mild

    August 20
    • Right ankle – moderate


    SEPTEMBER

    September 5
    • Right elbow, inside – moderate

    September 16-17
    • Left shoulder – severe

    September 18-19
    • Left ankle – severe

    September 27
    • Left wrist – moderate

    OCTOBER

    October 9
    • Right wrist – severe

    October 10
    • Right wrist – mild

    October 15
    • Right shoulder – moderate


    NOVEMBER


    DECEMBER

    December 20 – 24
    • Left knee – moderate to severe
    • Left shoulder – moderate
    • Left wrist – mild

    December 26
    • Right hip – moderate

    December 26-29
    • Right shoulder – severe

    December 30-31
    • Right shoulder – moderate
    • Left wrist – moderate


    JANUARY

    January 1 – 3
    • Right shoulder – mild

    January 4
    • Right wrist – mild
    • Right shoulder – mild

    January 5
    • Right shoulder - mild
    • Left shoulder – mild
    • Right wrist - mild

    January 6-7
    • Shoulder and neck area - mild

    January 8
    • shoulder and neck area - moderate

    January 7-9
    • Shoulder and neck area - severe

    January 10-11
    • Shoulder and neck area - severe in morning. Moderate in evening.

    January 12 -13
    • Shoulder and neck area - moderate in the morning, mild in the afternoon.

    January 14
    • shoulder and neck area - moderate in the morning, severe in the afternoon

    January 15
    • Shoulder and neck area - moderate in the morning, mild in the afternoon. Shoulder tip hurts around 4am when lying down.

    January 16
    • Shoulder and neck area - moderate. Shoulder tip hurts around 4am when lying down.

    January 17
    • Shoulder and neck area - moderate in the morning, mild in the afternoon. Shoulder tip hurts around 4am when lying down.

    January 18
    • Shoulder and neck area - mild. Shoulder tip hurts around 4am when lying down.

    January 19
    • Shoulder and neck area - mild.



    Days in Pain by Month
    June 2011 - 11
    July 2011- 11
    August 2011 - 3
    September 2011 - 6
    October 2011 - 3
    November 2011 - 0
    December 2011 - 11
    January 2012
    February 2012
    March 2012
    TOTAL

    Days in Pain by Area
    Right Shoulder - 16
    Neck/ Shoulder Muscles - 13
    Right Wrist - 11
    Left Shoulder - 6
    Left Wrist - 6
    Right Hand - 3
    Left Knee - 3
    Left Foot/Ankle - 3
    Right Hip - 2
    Right Foot/Ankle - 2
    Right Elbow - 1
    Right Knee - 1
    Left Hand - 0
    Left Hip - 0
    Left Elbow - 0


    Previous Medical Issues
    • Tubes in ears as a baby
    • Hospitalized for pneumonia around the age of six
    • Frequent hospital trips for Asthma (between the ages of 7-11)
    • Stool sample for frequent diarrhoea, came back normal, was said to be stress related.
    • Borderline high blood pressure and protein in my urine with first child, born 3 weeks early.
    • Tachycardia, chest pains, spotting, with second pregnancy, born 6 weeks early.
    o Underwent EKG (came back abnormal)
    o Went to heart institute, EKG was ok, Echo was ok, slow valve pumping.
    o Had legs and Lung scans for clots. (results were negative)
    • Kidney infection – spent the day in the ER with IV and IV antibiotics, no UTI prior to

     
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    Old 01-21-2012, 04:37 AM   #2
    VeeJ
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    Re: Opinions on Pain Journal. *Long*

    Bella, in your shoes I'd probably summarize everything on a single page, but stow a detailed version in my handbag for reference if dr. poses more specific questions. I say this only because my earnest efforts were met with eye-rolling & shoulder shrugging by drs. who seemed in a rush to get rid of me.

    I'd probably group symptoms into categories. The sticky posts on the board provide a model, of sorts, on possible groupings. For example:

    SKIN: rashes, turning blue. I'd describe each with info such as---itchy/not, appearance (color, flat/raised, size, shape), duration, scars/depigments?, possible triggers (UV light, cold temp, food, don't know).

    CONSTITUTIONAL or GENERAL could include fatigue, pain, dizzy, nausea, etc.

    NEURO-LIKE could include brain fog, headaches, etc.

    INFECTIONS, etc.: swollen lymph glands (those might be very interesting!); yeast infection (prob. not much weight would be given to a first-ever).

    Can you clarify what you mean by FOOD ALLERGIES? What happens when you eat apples, cherries, hazelnuts, and carrots? Does skin react, and have you seen an allergist? Or digestive system? Or ??? The word "allergy" may have a very specific meaning to a doctor...?

    I'd avoid any supposition about cause(s), as doctors seem to hate our guessing. But if asked? Well, that's a golden opportunity to ask, Gee, could something be wrong with my immune system that causes such a wide variety of problems that come & go?

    I know I sound craven, but I was blasted and cursed, so I turned to a "less is more" approach. But I hope others weigh in with their thoughts re: what worked best for them, as I may have become too cynical in my old age! Keep in touch OK? Sending all my best, Vee

     
    Old 01-23-2012, 05:21 AM   #3
    bella189
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    Re: Opinions on Pain Journal. *Long*

    Quote:
    Originally Posted by VeeJ View Post
    Bella, in your shoes I'd probably summarize everything on a single page, but stow a detailed version in my handbag for reference if dr. poses more specific questions. I say this only because my earnest efforts were met with eye-rolling & shoulder shrugging by drs. who seemed in a rush to get rid of me.

    I'd probably group symptoms into categories. The sticky posts on the board provide a model, of sorts, on possible groupings. For example:

    SKIN: rashes, turning blue. I'd describe each with info such as---itchy/not, appearance (color, flat/raised, size, shape), duration, scars/depigments?, possible triggers (UV light, cold temp, food, don't know).

    CONSTITUTIONAL or GENERAL could include fatigue, pain, dizzy, nausea, etc.

    NEURO-LIKE could include brain fog, headaches, etc.

    INFECTIONS, etc.: swollen lymph glands (those might be very interesting!); yeast infection (prob. not much weight would be given to a first-ever).

    Can you clarify what you mean by FOOD ALLERGIES? What happens when you eat apples, cherries, hazelnuts, and carrots? Does skin react, and have you seen an allergist? Or digestive system? Or ??? The word "allergy" may have a very specific meaning to a doctor...?

    I'd avoid any supposition about cause(s), as doctors seem to hate our guessing. But if asked? Well, that's a golden opportunity to ask, Gee, could something be wrong with my immune system that causes such a wide variety of problems that come & go?

    I know I sound craven, but I was blasted and cursed, so I turned to a "less is more" approach. But I hope others weigh in with their thoughts re: what worked best for them, as I may have become too cynical in my old age! Keep in touch OK? Sending all my best, Vee

    Hi Vee,

    Thanks for the information! I like the idea of having a grouped summary! The food allergy so far seems to only be Oral Allergy Syndrom, My lips swell and get a bit itchy, and i can get sores in my mouth, that disapear a couple hours later. I have mentioned it to my doctor at my last appointment, and she seemed more concerned at the time on my joint pain and getting me to the specialist!


    I dont tend to walk in and tell a doctor what I think, lol.. .it usually dosent bode well

    However, at my last apointment, When i told my doctor that I read alot and have some ideas, she asked me what they were, to which I replied Palindromic Rheumatism, Rheumatoid Arthritis, or Lupus, (at Lupus her eyebrows went up... not sure what that means, lol) After that, she wrote up my next blood work and said we are re-running your levels, and testing for ANA, and as im sure you know in your reading, is a marker for Lupus...

    And that was that. lol.

    Anyway, I am usually the one who will sit and listen, but be well enough educated to know if I am being brushed off... I figure its the best of both worlds

    (My Parents keep telling me I should of been a doctor, lol)

     
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