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hi, i need some information

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Old 02-29-2012, 11:40 AM   #1
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Location: warrington, cheshire, england
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jacqui1976 HB User
hi, i need some information

i have been the doctors and they have told me i have lupus, im new to all this so sorry if its not making sence and for the bad spelling.. well they told me that its mainly because of the sun... now i work outside and dontknow what to do. can anyone help. what sort of clothes should i ware. i ware a green jumper and tee shirt. but my work pants are black. if anyone can give me any advice i will be so happy thank you.xx

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Old 02-29-2012, 02:44 PM   #2
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Re: hi, i need some information

Many people with Lupus and MCTD are sun sensitive. However the sun does not cause lupus. Your doctor should be discussing treatment options depending on the type and severity of your disease.
That being said. You need to protect your skin as much as possible. Sunscreen is a must 365 days a year. also thin fabric with long sleeves is also helpful. A hat is another must as the sun can make the malar rash more pronounced.

Hope this helps

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Old 02-29-2012, 05:26 PM   #3
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Re: hi, i need some information

Hi. Another thought: there are several companies that manufacture clothing with SPF protection built into the fabric.

I became very photosensitive over time, with systemic problems AND rashes being worsened by sun. Avoiding & blocking sure helped reduce my disease flares, but I eventually became Vitamin D deficient, so now I take supplements. So you might ask your dr. to monitor your Vit D level.

Are you on medication? I've taken Plaquenil for years. It's helped me a lot.

I found reading helped, too, as I knew so little about the disease. You could look in your local library for books on lupus that you could borrow for free.

I hope this helps a little. Keep posting, OK? You'll meet nice people who are always happy to talk. Sending you my best wishes, sincerely, Vee

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