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    Old 03-20-2014, 07:14 AM   #1
    Amanda6044
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    My 5 year old son

    Hi there my son is 5 and has always gotten sick easy over the years , this time he got really sick and the clinic doctor rushed us to a specialist thinking it was kawasaki disease so the ped did a whole bunch of blood work, within the blood work was a CRP test. Aaden's came back as 70 ( I am told between 10 & 20 would be normal) So why is it so high??? That's what I started researching....turns out it indicates an infection or long term illness such as lupus. So I started researching a bit and read about Lupus, I got to picture number 5 on http://www.*****.com/lupus/ss/slideshow-lupus-overview and kept looking at these pictures of MY KID Here is why I am thinking I need to bringing this to my family doctors attention - he always has some sort of rash . We have always thought of excema , he has it all over and bad alot of times but mostly on his hands and face ( the one he gets on his face usually gets the worst while he is sick I always thought it was because it was dry of from him wiping snot usually covers his cheeks and mouth area, yesterday I noticed this rash got worse in the light outside ....his fingers looked really weird lately too specifially one like really dry and red around the cuticles , he keeps biting it , says it hurts there....we have excema cream and that seemed to help the rash there but he still says his finger hurts ...he had some cankers in his mouth recently too, said it didn't hurt though just annoying....I notice his hands and feet are sometimes FREEZING , he is a kid that still needs 12 hours sleep at least ( his 6 year old sister doesn't need as much at all) In the past few months he complains his knees hurt when we walk ( he used to be able to walk alot with me...like alot ) but kids complain so I thought growing pains.....he always gets sick and I mean like always, seems like he spends most of the winter months coughing. I don't know if all these things are just little boys problems or not......I never really put it all together in front of a doctor before but with this CRP level so high ( the day we tested he was starting to feel better) I am worried it could be something else ....anybody have any advice here...is 5 to young for Lupus...I have no clue I just know my kid gets sick alot and Lupus looks like something that he could have even my mom , his dad and aunt agree and they know him best.. they came to the same copnclusion on their own after researching about a high CRP level. We retest in a week....anybody have any advice?

     
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    Old 03-21-2014, 07:38 AM   #2
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    Re: My 5 year old son

    Hi. I'm really sorry that your son is struggling & for all your worries. I'm just a patient but think that lupus can occur at any age, more in females but also possible in males, in something like a 9:1 female-to-male ratio. So while lupus is always possible (in theory), based on what you know so far, it's likely not the only possibility.

    As you say, CRP is non-specific. Did anything else come back positive? Were any specialty labs done, like ANA (antinuclear antibody)? While ANA can be positive in a wide range of auto-immunes, or simply due to viral/bacterial infection, it would provide a flag that further & more specific blood tests are needed for various "ANA subtypes"*. (Examples of ANA subtypes seen in lupus are anti-ds-DNA, anti-Sm, anti-Ro, anti-La, etc. I say "etc." b/c this list isn't exhaustive.)

    If ANA or any of its subtypes are (or have been) positive, hopefully the pediatrician will refer you to a pediatric rheumatologist.

    Rashes are unfortunately common in many conditions, including some that are prevalent in children and highly contagious. For example, one little girl I know had Cocksackie virus with skin eruptions on face, arms, hands, etc. (fairly widespread); her pediatrician thinks source was her day care facility. She too was evaluated for Kawasaki, post-viral reactive arthritis, etc. In addition to the widespread skin eruptions, she had flu-like symptoms, aches, and a wildly runny nose.

    Lupus is diagnosed by a set of 11 pre-established criteria. You can read these in one of the "sticky posts" ("stickies" are the permanent info posts located right above the user threads). Generally, but not always, you must meet 4 or more of the 11 to sustain a diagnosis of systemic lupus.

    The lupus rashes mostly tend not to itch. There's also a "sticky post" on skin problems seen in lupus, so you could read it as well. Has a dermatologist evaluated his rash? If not, that's another possible option. Anyway... I'll stop here for now & hope that you'll post more soon. Sending best wishes to your son & to you, Vee

     
    Old 03-21-2014, 09:04 AM   #3
    Amanda6044
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    Re: My 5 year old son

    thank you so much for replying to my post! I have made an appointment with my family doctor , we also have a ped appt and another CRP test next week. I hav e read the 11 signs which is what put it all together for me and initiated my post here. Nothing else within the blood cultures WBC urine cultures came back abnormal it was all good. Can I simply request an ANA test based on what I have seen? What other early onset signs would signal something in a lupus patient? I notice his fingers nails and finger looks weird ( almost exactly like a photo of a lupus patients hand I seen online) he is always biting says it hurts inside not the skin He did see a dermatologist at 2 for the excema but recently the rash has spread and looks different and not always itchy . I am starting a list of all the things he has complained about in the past 7 months to bring to my doctor, from what I read his often sickness also looks like a lupus flare up. I am going to take a look at the sticky posts for sure , again thank you sooo much!!!! Lupus or not this has definatally helped me see what my son is complaining about may not be so run of the mill kid problems and warrants further investigation, greatful for the doctor who did run the CRP test, normally I don't rush him to the doctor when he is sick since they always say viral , glad I did this time

     
    Old 03-21-2014, 09:28 AM   #4
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    Re: My 5 year old son

    I think a pediatric rheumatologist is your best bet also, but his pediatrician could run some initial screening tests. An arthritis panel would check a bunch of appropriate tests, including an ANA, RA factor, ASO titer (for rheumatic fever), sed rate and CRP. On kids, I think it is helpful to request an extra tube drawn for "add ons" in case something comes back abnormal and Dr wants to check something else. Then the child doesn't have to get stuck again (an ordeal in a 5 year old). Most labs hold that tube for a week for add ons. If he didn't have a CBC done already, he should have that too. The inflammation around the nail beds can be sign of lupus, as well as the sunlight causing the rashes to flare up. When he feels sick, you might want to take his temperature to document whether he has a fever and how high it is. I hope you get some answers soon. Kids this age can get lupus, even boys, but it isn't the only possibility. Is there a family history of autoimmune disease? That is important to relay to Drs. Some ibuprofen in appropriate age dose would probably help his joint pains to make him more comfortable.

     
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    Old 03-21-2014, 12:33 PM   #5
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    Re: My 5 year old son

    So we just went out for a short walk and I watched the rash ( the one that doesn't seem to bother him either) very closely .....I did notice it getting worse again in the sun and also noticed a ring like pattern that I believe I recoginize from my research on Lupus....I just looked again now that we have been in for about 10 mins and the ring that was close to his eye is gone, I am starting to take photos of it all and compile everything I can, while we were out he also complained about a pain inside his foot again. It helps having this board to talk it out even so I can go back and look with my doctor. Thank you so much to everyone who takes the time to read this and reply

     
    Old 03-21-2014, 12:52 PM   #6
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    Re: My 5 year old son

    During this past sickness Aaden did have a low fever , there have been lots of times I think he is but I didn't have a thermometer until recently.....as for a family history on my side that;'s a no BUT I have no clue about bio Dad's side Thank you for all the info , it is really helping know what to look for , take note of and bring to my doc attention. And GREAT idea for the blood work, this was his first time and he was brave at first til they stuck the needle in and already doesn't wanna go back. I am letting him play outside again right now and I can see the rash more for sure , I wanna describe his fingernails as water logged looking and really red under cuticles on skin ( on one finger particular )during flare ups

    Last edited by Amanda6044; 03-21-2014 at 12:54 PM.

     
    Old 03-21-2014, 12:58 PM   #7
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    Re: My 5 year old son

    Pictures of the rashes are very helpful, and I would take pictures of his fingers too when they look weird, whole hand plus closeups. I would keep a daily log of symptoms and fevers as well to show frequency. I would keep him out of sun too, as sun exposure can flare all the symptoms, even joint pain, fever, etc. He can play outside but I would keep him in shade and with sunscreen on, long sleeves and pants to cover his skin as best as you can.

     
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    Old 03-21-2014, 01:17 PM   #8
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    Re: My 5 year old son

    Hi. For what it's worth, I had many annular (ringlike, targetlike) SCLE lesions, but they lasted for weeks. Each lesion started as a papule (red raised bump, about size of mosquito bite), then expanded into a ring, then expanded further & lost circularity, meaning, they got pretty sizeable, 2-4 inches on my adult body.

    The other form of SCLE, papulosquamous or psoriasiform, resembles psoriasis.

    Psoriasis is another condition that can greatly affect nail beds. There's also a skin plus musculoskeletal (meaning broader) condition featuring psoriasis called "psoriatic arthritis". I don't know typical age range of onset for either (sorry).

    I get livedo reticularis, that vascular disruption that causes a lacelike red appearance just under the skin. For me it lasts only minutes to maybe an hour at most. It isn't really a rash per se, btw.

    Good luck next week!

     
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