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  • Lupus Patient with Severe Breakthrough Pain

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    Old 02-21-2015, 03:27 PM   #1
    Flaredup's Avatar
    Join Date: May 2014
    Location: Charlotte, NC
    Posts: 1
    Flaredup HB User
    Lupus Patient with Severe Breakthrough Pain

    Hello, I have SLE, and I am currently being managed with hydrocodone for my pain. I currently am in a drug study program for an infusion drug called Epratuzumab. I was on methotrexate, and I have been taking prednisone (high doses) for most of the past year.
    Thanks to the hydrocodone, I was able to wean myself off of the prednisone, which I'm sure most of you know has evil side effects. (I called them evil, because they make me feel like a completely different person, the moon face, the weight gain, the pain in the joints, the pain in my kidneys, and other side effects.)
    Now that I have had to quit the methotrexate because of high liver level bloodwork readings, my pain has increased tenfold. The hydrocodone helps for the most part, however I have breakthrough pain that completely debilitates me for several minutes to an hour several times a day.
    I suddenly scream and cry and moan, because I feel as if someone is hammering hot lead spikes through my legs arms and back.
    Do any other lupus patients have breakthrough pain treatment? If so, what is your doctor using? Thank you so much for your responses!

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    breakthrough pain, fibromyalgia, lupus (sle), pain managment, pain medications

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